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Chemo for Life - how many on this site?

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

I was wondering how many for lifers are on this site and how long they have been on this phase of life. 

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

chime in. i wasnt told those exact words but my chemo onc explained it to me we are running a marathon not a sprint.so the only thing for me is chemo and surgeries,i had liver resection done sept 2011,RFA done on liver feb  2012 i started on irrinatecan and avastin march 2011 til march 2012 then xeloda plus avastin april 2012 til june then off avastin and xeloda only til current.now i am off everything til slpleen is taken due to low platelets.if all goes well my goal is to start taking avastin and i dont know what he will put me on with it.my hopes are xeloda we will wait and see.just found out cant do surgery on lungs because there are too many spots.so chemo is my only ammunition in this fight and my GOD who has been by my side on this journey.good luck to you Vicki my surgery is thursday....Godbless...johnnybegood

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

I'll be thinking and praying for you Johhny for a speedy recovery!   Funny my doctor used the same marathon line.  Lol

belindahill's picture
belindahill
Posts: 142
Joined: Jan 2011

 

My husband is on chemo for life. His cancer is in the liver, lung and peritoneum. the cancer started in the bowel, he did have surgery Aug 10. The cancer spread June 11. Its a roller coaster ride, he has just lost al his hair, another hurdle for us. How long he can take the chemo for, or how long will it last it's all in gods hands. Take care all. X

 

 

 

luvinlife2
Posts: 172
Joined: Jul 2012

I was diagnosed Sept 2008 and have been on irinotecan with avastin with a change from 5fu to Xeloda in 2010.   I've had 3 breaks and always progressed after 2 months (once the avastin wears off).  I integrate my treatments with a bit of natural medicine and TCM to maintain a good quality of life as I try to stay alive.  It's difficult when the disease is deemed inoperable but there are options out there that can help to keep the cancer responsive to chemo while helping the body to heal from the damage of chemo.  I'm almost 4.5 years on the same chemo and beginning to get the attention of my oncologists at the cancer clinic.  Smile   Having said that, I have to admit it's getting old already.  Don't get me wrong...I love my life and I love living it!   It would be nice to be to commit to plans a little further ahead without hesitation, reduce the appointments etc.  Well, if I stay alive long enough, perhaps I will see the cure discovered.  For now, I'm looking to be my onc's first patient who has survived 5 years on chemo with active disease.  Only 6 months to go!!

herdizziness's picture
herdizziness
Posts: 3390
Joined: Apr 2010

Chemo since Feb 2010, with 3 months off for surgery (one month before, two after) then I think 3 or 4 month break when I was going to have dental work and had heart attack instead.

So 2 1/2 years of chemo if you take 6 months of breaks off.  Don't know how long I'll be doing this, but maybe for years, they originally told me chemo for life, but looking forward to another surgery and a break again (I hope) in 3 months.

Winter Marie

renw's picture
renw
Posts: 282
Joined: Jan 2013

I am on palliative chemo for life I have been told. Not too happy with that and plan to get off after 4 more cycles. I believe this is a dead end and have to give some immunotherapies a go before my immune system gets too hammered.

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

Chemo for life was my prosribed treatment plan, but I may take a flyer and try going to Germany like Pete.  I'll make that decision this summer.....

BusterBrown's picture
BusterBrown
Posts: 221
Joined: Mar 2005

Chemo is a subject I know all too well. I've had roughly 50 doses, 12 Folfox and the rest Folfiri.  At one point my doctor told me I had incurable and inoperable cancer and that chemo was my only option.  At about dose 36 I decided that I could not longer do chemo every 2 weeks, it was taking me longer and longer to recoup. This was no way to live life. I told my Onc I was going to take my dose every 4 to 5 weeks, depending on how I felt.  I explained to him that I needed to feel good for awhile, the extra 2 and 3 weeks of recouping after chemo was heaven sent! I felt so much better taking chemo this way, I felt I had my life back and things were for the most part normal.  The only reason my Onc agreed to this timeline is because the biology of my cancer has proven to be very slow. He could see that taking chemo was becoming a real struggle.   I took my last dose of chemo in Oct of 2011, at that point I had enough. Lucky for me it was also the point where my Onc made a complete 180 degree turn on my prognosis.  In a three year period, he saw the tumor in my abdomen decrease in size and he saw the tumor in my plural stay the same, and no new new tumors anywhere.  He decided that we should remove the the tumor in the tummy and keep an eye out on the plural tumor. I was successfully operated on April 2012 , tumor in my belly is gone, I had recent CT & Pet scan done, my abdomen is clean and the tumor in my plural didn't show up on the PET Scan and may now be nothing but scar tissue. 

Buster

 

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