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Avastin for Oligodendroglioma Stage 3

scorpio79
Posts: 25
Joined: Nov 2012
Feb 04, 2013 - 8:25 am

Hi is there anyone out there who has used Avastin to treat Oligodendroglioma...my brother in law is in stage 3 ...my brother in laws cancer has spread to the Spine....he is 29 years....the doctor has given him 1-2 months..although they have ruled out the possibility of him getting better yesterday he was smiling and even moving his limbs after more than a month...the doctor said that he would not recommend to use Avastin although it is a form of treatment that is available...

 

Has anyone out there used Avastin for their loved ones...does it improve the cancer.....Are there any known side effects of Avastin

 

Thanks
Raani01
Posts: 69
 Joined: Mar 2011
Feb 04, 2013 - 12:31 pm
Avastin is good and bad

Hi dear,

Please consult couple more doctors to learn about the options to help YOUR FAMILY make the  decision.What i learned from other' experiences and my own, Avastin can be extremely beneficial and dangeroous at the same time. Since Avastin is not a typical chemo (no poisonus medicine is injected to the sytem, rather it helps block the oxygen to the brain cell to make the cancerous cells starve thus shrink the tumor!) , I heard a lot of people buy quality time with Avastin with no side effect. Actually, I heard people feel better during the treatment!.

On the other hand, it can cause brain bleeds that is fatal that is what happend to my husband(he had Oligo 3  you can see my post in "Help please - GBM getting close to 11 months" to see my husband's history).It only took 2 weeks for us after the first Avastin infusion. Please know that my husband had some build up of blood even before which the doctor told us would not be an issue. But , now I wonder whether that was n't a highest risk in my husband's situation!! and my kids comforts me we had no other option that taking this high risk path,a s the doctor reommended. In our case, the doctor told us if we take the risk of letting the tumor grow without giving Avastin, he would go to a coma very soon. My only comfort is the fact that we did our best with what we knew at that time.

So, my answer is that nobody knows the outcome. All I can say to you is,  research your best, team up with your doctor, pray, and take the path following your  heart telling you what to do.

Prayers and positive thoughts on your way,

Raani
scorpio79
Posts: 25
 Joined: Nov 2012
Feb 04, 2013 - 12:57 pm
Hi Raani   Thanks for your

Hi Raani

 

Thanks for your reply...my brother in law is in India and this kind of cancer is not common among asians and the cancer spreading to the spine is almost very rare in Oligodendroglioma ....my brother in law is so unlucky...we are struggling to make a decision...will definitely talk to the doctor and understand the side effects of Avastin

 

Thanks again
scorpio79
Posts: 25
 Joined: Nov 2012
Feb 05, 2013 - 2:34 pm
Is there anyone else who has

Is there anyone else who has any input on Avastin...have you tried this for your near or dear ones
wilmel
Posts: 3
 Joined: Feb 2013
Feb 08, 2013 - 10:14 pm
It was used on my son he is 19

It was given to my son every other week. He only got to treatments. A week after his second treatment he developed a blood clot on his left leg. One of the side effects that may occur. It went from the middle of his legs to about 6 inches below his knee.  The had to stop treatment immediately. Keep an eye on the side effects. All this happened this happened less than a month ago. Now he is taking temodar & etoposide for five straight days and off for 28 and back again for 5 more. Plus lovenox injections to disolve that blood clot twice a day. Once again, please keep an eye on the side effects.
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