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Just recently diagnosed with colon cancer

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

My name is Justin I am 24

I am in the Hospital as we speak, I have had a history of drug use for about 6 years. Started as pain in the back pain doc gave me narcotics well that went to being a bad junkie, I am now getting help from the methadone clinic. If not for them giving me blood test 4 diffrent times I would have never known I have cancer, My hemoglobin kept getting lower and lower, they finnaly said go get help or we will have to detox you, "we do not want you dieing". So I got help and will be starting chemo soon I am so scared my wife is scared. this is alot for us.

Sucks.. but gotta do what you gotta do.

thanks for reading :)

 

--UPDATE

I just found out through the grape vine the meds ill most likely be on is

Fluorouracil (5FU)

and Radiation, ill keep you guys updated if it changes

YoVita's picture
YoVita
Posts: 541
Joined: Mar 2010

Stay strong.  Use your support.  Ask questions.  We're all pulling for you.  It does get better.  

Sundanceh's picture
Sundanceh
Posts: 4298
Joined: Jun 2009

Celexa is on a warning list as a drug that causes health problems...there is a class action lawsuit out there with that drug.

I took that many years ago for several months....and it gets you very hot and moody...not a good drug...I discontinued it immediately after about 3-months...

I believe part of the lawsuit involves organ damage up to/and including death...it's all over the tv in the daytimes...I remember seeing it everyday when I was in treatment. 

ACTOS too....which is a drug to remove fat from the liver....actually causes weight gain and causes bladder cancer. 

Glad you discontinued Celexa...try switching to something else...perhaps a Paxil. 

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

hey everyone sorry I have not been on in awhile been sick nhave no net at home can afford it yet I got approved for disability and medicaid needs to fax over my application to the and I will have it by friday, YAY. I was goiong to the florida state strawberry festival this past weekend but I have had sooo much anxiety and depression and stress I just felt sick drove a little ways and had to turn around had my wife drive me home my heart was beating out of my chest started to cry, it was nuts. they finally prescribed me xanax. I have also gotten a prescription for nasea but it was $84.99 which at this time i do not have and they also gave me the prescripton cream for rad burns my bottom is hurtin so bad i cannot got number 2, but that was $95.99 so I am waiting until I get medicaid to help pay for it. any who thought I would update everyone on how I am

 

Later,

Justin

jen2012
Posts: 1207
Joined: Aug 2012

Justin - sorry you are having a tough time.  I hope things improve for you soon.  Have you explained your financial situation to the doctors? Many times they are able to get samples of drugs for you.

Trubrit's picture
Trubrit
Posts: 1482
Joined: Jan 2013

I have been thinking of you Justin. I am sad that you are having a hard time of it. 

I am also sorry that you have to put your health and healing on hold because of financed. Having been born and bred in England, I am 100% approving of a National Health System. I wish it were available over here, for people like yourself. 

All we can do is pray for you and let you know that you are in our thoughts always. 

I hope the anal pain eases. That is my biggist fear when I head into Radiation. 

I hope you can get to a compuet again, as we are here for you and wait for your updates. 

Bless you, Justin!

- SUE -

sailor_on_a_lee...
Posts: 51
Joined: Jun 2012

Right on Sue.  Given the US is supposedly a civilized nation one would think health care is available to all, but no.  We finally pass the Affordable Care Act and now that clown and VP loser Paul Ryam wants to repeal the ACA.  Luckily for me, I have excellent insurance as a retired serviceman.  However, I'm an advocate for health care for all. 

annalexandria's picture
annalexandria
Posts: 2254
Joined: Oct 2011

It sounds like things are pretty hard right now.  Please tell your doc about the issue of not being able to pay for the burn ointment.  There may be a state program that can help until you get set up with federal aid.  And for the nausea, talk to your doc about using the Xanax.  I have Ativan (also an anti-anxiety drug) that works really well for nausea, and it's much cheaper!  You have to take it at a higher dose than for anxiety (with mine it's 2mg 3x per day).  I don't know what the dosage would be for Xanax, but they should be able to tell you.  Don't hesitate to ask for help...having cancer is one of the hardest things you will ever go through, especially when you're young.  And if you put UPDATE in the title of this post, more people will be aware that you've jumped back in.  Someone might have a suggestion for an inexpensive ointment.  Many hugs~Ann Alexandria

Edited to add that I would go to the pharmacy and see if they can recommend an over the counter ointment.  They might know of something that would be cheaper.

hippiechicks's picture
hippiechicks
Posts: 326
Joined: Sep 2012

Hi Justin...sorry to hear you are having trouble getting the meds you need.  Have you checked with the pharmacy about any affordable med plan they may offer?  It may be worth checking into, even with the medicaid.  I wish you well as you go forward with your treatments.

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Justin, very glad to hear from you. I'm glad to hear you got your disability; hopefully the medicaid kicks in soon. Again, we are here for you.

Judy

sailor_on_a_lee...
Posts: 51
Joined: Jun 2012

Justin, sorry to have to meet you under these circumstances.  It seems so unfair that someone in his 20s has to suffer with colon cancer.  Know that we are here to support you and your young wife as you accompany one another on this journey.  We also wish you the best along the way. 

Fair winds and following seas. 

Rick

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

hey  everyone thank you all for the help and encouragement, I am sitting outside using neighbors net bit chilly with the wind blowing lol. I am waiting on DCF to call at 10am to let them know I have gotten diability and have them fax that app over. other then that the xanax acyually helps with my nasea along with anxiety so thats a plus. well I am going back inside so cold lol not used to it florida supposed to be hot haha. thanks again

 

Justin

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

Hey everyone everything is going ok, I have a blown hose on my car have to fix it I got the old one off but the new one is soo hard to get on I am so weak and cannot push the bottom part of the hose on the water pump. if you know anyone in the pasco county area in florida who can help. lol just kidding I will try again tomorrow I hurt my hand doin it gotta get a day of rest for it. how is everyone else doing?

 

if you have any questions for me or wanna say hi I am always on facebook

https://www.facebook.com/magikreaper

Trubrit's picture
Trubrit
Posts: 1482
Joined: Jan 2013

So glad to hear from you again. I've been thinking of you, and hoping things are starting to settle down. I hope you've gotten your medications, and that you treatmnets are going well. Not too many side effects. 

Don't be hurting yourself. No running with knives. We don't heal too well when we're on the chemo, you know. 

Hows the radiation? Its my worst fear now, as I get closer to getting it. 

I may very well friend you on FB if you post more about updates there. 

I have a soft spot for you young folk. My heart is always yearning for you and KayeKay. So young to be going through this trial of tears. 

I hope your lovely wife is thinking of quitting the smoking. Best for the both of you. 

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

lol no no I am not running with knives haha but I am still tryin to fix the car I am so weak from all of this I cant get a stupid hose on lol, Wed is my last day of radiation, I would say the worst side effect I have had from Raiation is the Rad Burns they suck. but the doc prescribed me meds and its helping.

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Don't ever hesitate to ask for help (whether it is for your car or you personally). I'm glad to hear you are on your way. Grab a notebook and keep notes in it when you go to your oncologist. Also, treatments I see on here I jot down in my notebook, just in case my tx does not work.

Keep going, my friend!!!

Judy

annalexandria's picture
annalexandria
Posts: 2254
Joined: Oct 2011

Chemo is often much harder on our bodies than we realize until we start trying to do something.  Is there a friend you can ask to help you with the car job?  I was the kind of person who hated to ask for any help, but during treatment I began to realize that sometimes I just couldn't do things myself.  How is the treatment going otherwise?  Do you have all your insurance stuff sorted out?  Hugs~AA

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

You have a great number of folks here that care for your well-being and will be by your side at each stage of your journey.

Cynthia

We're merely one tree with various types, shapes and sizes of leaves that all wave differently in the breeze.

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

well they messed up this week the chemo people pumped 96 hours of chemo into me in 46 their mistake, so I am not feeling that great they say its ok just drink lots n eat healthy.

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

sorry to hear that i know it sucks just keep fighting. im gonna say what i think everyone here feels "FCUK CANCER!!" sorry had to let thatout :)

Trubrit's picture
Trubrit
Posts: 1482
Joined: Jan 2013

That is quit the mistake. 

I hope the nurses have been reprimanded. 

I know mistakes are inevitable, but its hard going knowing that your regular dose of chemo is going to hit you hard, now you may get hit even harder. 

I wonder what I can do to not let this happen to me?  

I'm glad your back on here. You sound more upbeat (other than the chemo mistake), which I hope means that you are feeling better.

I know its hard for you to get onto the internet, but believe me, I am always looking out for your posts. 

 

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

they were short staffed that day, i remember very clearly cuz i heard them saying it so it was bound to happen. but i would have said something once i noticed it was pumping 2.00/ml instead of the useal 0.67, but the radiation did this BOOST thing so i figured the chemo was doing the same thing :| so in that case I feel like total trash hope I am not getting sick.sick. thats what it feels like ill let you guys and girls know more later

Trubrit's picture
Trubrit
Posts: 1482
Joined: Jan 2013

I hope that its just fatigue that you will suffer, and that, in my opinion is one of the worst side effects for me. 

How is the radiation? I am heading towards that now, and I've read so many bad things about it that I am now pretty darn scared. 

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

you can get on the internet please come back and let us know how you are doing.  Best -- Cynthia

annalexandria's picture
annalexandria
Posts: 2254
Joined: Oct 2011

I know you probably don't have the energy to deal with this right now, but you really should tell someone higher up than the nurses what happened.  Being busy is no excuse.  They could make someone really sick making an error like that.  Hope you start to feel better soon~AA

 

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

I am very thankful that the nurses at my cancer center always have two when doing any meds; one has the meds (IV meds), the other checks my bracelet, name, dob, numbers, then reads each med. The nurse with the meds checks each med while the other reads them off. I imagine most places do this. Now I appreciate it even more. But do let someone know about this, Justin. Keep us updated on how u r making out...

Judy

janderson1964's picture
janderson1964
Posts: 1617
Joined: Oct 2011

My hospital is the same way. They have 2 nurses confirm my name and DOB on my wrist band and then both read the prescription and IV BAG.

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

agreed. they are the same with me. i would definitely let someone know. some one in admin. or something. someone needs reprimanded. that can really hurt someone.

ellamenno's picture
ellamenno
Posts: 142
Joined: Aug 2010

How are things going? We'd all love to hear from ya!

 

Laurie

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

hey ladies and gentlemen

Sorry have not been on latley trying to get all this dealt with, I finished chemo/Rad about a month ago. and I got a PET scan a week ago. Got my results today and not good 2 lymph nodes are glowing near my groin area. Doc said its either 2 things 1. It spread, 2. its just after effects of rad TX and its nothing. I go tommorrow to schedule my appointment to get the surgery. SCARED SHI*Tless.

 

Thanks for listening

Justin

annalexandria's picture
annalexandria
Posts: 2254
Joined: Oct 2011

I know how scary it is to get those kind of scan results, having had several recurrences myself.  But I've also had many things show up on PET scans that were not cancer.  The PET is super-sensitive, and picks up all kinds of inflammation.  Do you know what the SUV was for each spot?  That's the number that shows how active the cells are.  Even a fairly high number can still be something other than cancer.  I know it's virtually impossible, but try not to worry.  Especially with such recent radiation treatment, it's quite possible that it will end up being nothing to worry about.  And if it does end up being more cancer, well...that's not uncommon.  The latest thinking on cancer spread is that everything is there from the start, just too small to see.  So as it grows, stuff will become visible and you have to deal with it.  But that process can end with your cancer being in remission or even cured (I've been NED for 16 months, so even with recurrence you can get there), so try not to be too scared about that either.  You are going to get through this, and we'll be here to help you.  Keep us posted (and maybe start a new thread, so people can quickly see what's going on with you).  Big hugs~AA

PS  If you have any Ativan, or medical mj (or non-medical mj, for that matter...ahem), now would be a good time to break it out and give your nerves a break!

magikproductions's picture
magikproductions
Posts: 25
Joined: Feb 2013

yeah you are right We will have to wait and see, they gave me xanax which helps a ton I take one 1mg tablet and i get the munchies lol so i can eat finally all the stress and stuff made me not eat or sleep so today I got at 2:30pm to schedule my surgery and while he is in there he may either take out the lymph nodes or biospy them I am just scared it could come back. and also the colostomy bag . I am not the cleanyness person in the world and afraid it will get infected or i will do something wrong and my guts will like fall out of my stomach oi vie I worrie tooooo much I just need to take it day by day think of it as in blocks, block 1 done chemo/rad block 2 get the tumor out and be cancer free. take it day by day.

Also I just went on See your chart .com and it says Probable stage III cancer with lymph node involvment so finally i know what stage it is

db8ne1's picture
db8ne1
Posts: 92
Joined: Feb 2013

Justin,

Easy to say...hard to do!  Just take things one day at a time.  Sounds like we are the same path.  I had 6 weeks of chemoradiation that ended February 13th then surgery to remove the colorectal tumor on April 11th.  Did you have a post chemoradiation endoscopic ultrasound or some other scan?  My GI guy said that these post scans were not too great - as there is still swelling from the radiation that keeps working long after they stop the radiation.  So, while the tumor shrunk - the "depth" of the cancer still appeared to be T3 after treatment.  Still, shrinking the tumor was great - as it makes surgery that much easier for the surgeon to remove.

When the surgeon opened me up - my uterus was in the way.  (At least you won't have to worry about THAT!).  I knew previously that I had many, large fibroid (non-cancerous) tumors - but the surgeon said my uterus looked 20 weeks pregnant.  That's the size of a large grapefruit.  So, he called in OB/GYN to remove that so he could have a clear field to get the tumor.  Fortunately, after that the surgery was "text book" and I didn't need a temporary colostomy (always a posibility - but surgeon said they never know until surgery if it will be needed).

The first day or two following surgery are usually the worst - but they give you great pain meds to alleviate pain - so that really helps.  They also get you up walking within 24 hours.  All I can say is walk as much as you can.  It helps with blood flow to your wound to help with healing - and gets your intestines moving, as well. I also think that it helped me with pain management. (More blood flow - less pain??).  As for infections - typically you receive antibiotics pre and post surgery.  They do everything that they can to try and eliminate any possiblity of infections.  So, be encouraged!

As for the lymph nodes, my surgeon told me that they take as many as is included in the portion of colon resected.  I had 10 inches of colon removed - it included 15 lymph nodes. 

Make sure you ask lots of questions.  In my experience, knowledge helps my anxiety levels.  I don't like to be surprised...

I'm praying for you!  Let us know when your surgery is scheduled.

Best wishes!

J

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