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Hospitalized

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

Hi friends.  Just a quick note to let you know that I have been having some very severe abdominal pain the last 4 days accompanied with vomiting.  It got so bad last evening that I had my husband take me to the ER.  I was admitted and still don't know what caused this.  ER doc and my friend, Dr. Mac, thinks it may be either an infection or a blockage.  The CT scan really didn't give them a definitive diagnosis.  I am feeling much better now and waiting for my colorectal doctor to see me.  I'll try to update when I can.

eihtak
Posts: 856
Joined: Oct 2011

So sorry! I'll be thinking of you and pray all is well.

Marynb
Posts: 1134
Joined: Aug 2012

I am sorry to hear yu haven't been feeling well. I hope you are feeling better very soon. There is a horrible norovirus going around. Let's hope that is what it is!

LaCh
Posts: 514
Joined: Dec 2012

My thoughts are very much with you....   you've been very supportive to me these last six weeks and you are very much in my thoughts.

SisterPretty
Posts: 32
Joined: Jan 2013

So, sorry to here about your hospitalization. My prayers are with you for a speedy recovery.

sephie's picture
sephie
Posts: 536
Joined: Apr 2009

so sorry that you are having problem.... hugs and prayers  that it is something easy to fix.....  sephie

mxperry220
Posts: 361
Joined: Mar 2011

I heard on the news there is a nationwide "bug" going around where the person has severe diarrhea and vomiting for 24-36 hours. Hopefully this is what you had and are on the road to recovery.

OMG 1012
Posts: 61
Joined: Dec 2012

for a speedy recovery.  As others have said, that awful bug is going around so I am hoping that is all it is---

I hope you feel better soon XO

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Hope you're feeling better real soon, Martha

Kraut
Posts: 22
Joined: Nov 2012

Sending healing thoughts your way.  Hope it is just a bug that will disappear quickly.  We can't do without one of the key support people like you.

 

AZANNIE
Posts: 390
Joined: Mar 2011

I hope you feel better real soon!

 

Ann

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

Thanks for the well wishes, everyone!  I appreciate it so much and your concern warms my heart.  I am still in the hospital, unfortunately.  After spending hours in the ER early Wednesday morning and finally being admitted about 6 a.m. yesterday, my colorectal doctor STILL has not been in to see me.  She is the admitting doctor and I am getting very frustrated!  The good news is I am feeling better--no more pain and I'm not taking any pain meds.  I just want to go home!  Still no answers as to what caused this.  It could have been a blockage.  I have been on fluids only since the ER visit and am almost afraid to eat anything once I get the greem light to.  My doctor is probably doing surgeries right now, as she does them on Thursday mornings at this hospital, so I hope to see her soon.  The charge nurse is trying to track her down.  I am rambling.  Sorry!  No sleep, no food, no answers, only frustration!  I'll post an update when I find out anything.  I really hope I get discharged today.  Thanks again for your concerns.

Lorikat's picture
Lorikat
Posts: 561
Joined: Jul 2011

Martha.. Never thought I'd hope that someone has a stomach bug..... But I do! Sending prayers and good thoughts your way.. Lorie

Sundanceh's picture
Sundanceh
Posts: 4300
Joined: Jun 2009

I echo the sentiments of this entire group:)

Get well soon!

-Craig

wiveliscombe
Posts: 47
Joined: Feb 2010

Am thinking of you and hope all will be well soon

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

Hi Everyone--

 

Thank you again for your caring thoughts and well wishes!  I'm glad to say that I am home and feeling better.  My stomach is still a bit distended but a good bowel movement would probably help, as I haven't had one in about 2 1/2 days.  My colorectal doctor finally showed up a little past 9 a.m.  She didn't examine me or anything--said it sounded like some kind of stomach bug and I could go home the next day.  I told her I wanted to go home NOW, so she said okay and discharged me.  The diagnosis written on my discharge papers says "partial small bowel obstruction."  So, at this point, I guess that is the final diagnosis. 

 

One reason my colorectal doctor didn't show up until today is because, by her own admission, she totally spaced it yesterday that I had been admitted.  Huh?  I thought doctors always checked their patient rosters when they did rounds.  She was called at 3:30 Wednesday morning by the ER doctor to inform her of the admission, but said when she got to the hospital to do rounds, she had forgotten.  She has been such a great doctor throughout my cancer journey, so I am willing to give her a break on this one, even though it did cost me perhaps an additional day in the hospital. 

 

I was first taken up to a really nice room in the new wing of the hospital and spent most of the day there.  Early yesterday evening, I was asked if I minded moving to another room, as they had a surgery patient they wanted to put in the room I was in.  I said okay, but quickly found out I should have just said no.  The staff who took care of me after I moved were not on top of their game, which made me just want to go home.  So I am home now, advised to stay on a liquid or soft diet for a couple of days, so my husband is out buying groceries.  I was afraid to eat anything, but did eat some yogurt when I got home.  So far, so good with that.

 

Since they did a CT of my abdomen in the ER, I have put a call into my medical oncologist to find out if his orders for my 6-month scan, which is scheduled for this coming Monday, will need to be changed in any way.  To say he is a great doctor would be a gross understatement--he is the best.    The good news is that the scan just done shows no evidence of cancer in my abdominal area, just some messed up intestines.  I will see my oncologist on Wednesday and I suspect he will do a more extensive physical exam on me than in the past, given this episode.

 

My friend and next door neighbor, who just happened to be the radiologist on call the other night, just called me and he says I definitely had a small bowel obstruction.  He reassured me that going to the ER was the right decision and has given me the name of a great surgeon should this ever happen again and require surgery.  I certainly hope that doesn't happen!  I'll keep everyone posted.  For now, I am feeling much better and am happy to be home.  Thanks again to all of you for thinking of me and sending all the well wishes! 

jcruz
Posts: 242
Joined: Jan 2013

I just wanted to say that I am glad you're home and doing okay.  Best wishes as you do your follow-ups with the doctors.

islandgirlculebra's picture
islandgirlculebra
Posts: 135
Joined: Dec 2012

I'm glad you're home and feeling better...... You are my HERO, so you just HAVE to be OK. Hugs.

eihtak
Posts: 856
Joined: Oct 2011

Glad you are home! I hope you sleep comfortably in your own bed tonight. I really wish I had your neighbor, that would be such a help in explaining test results.

Will have you in my thoughts for a good appointment with your doc next week.

pializ
Posts: 275
Joined: Nov 2012

Glad you are home & feeling better! Good news with scan at least as far as no cancer! Day at a time!

Liz x

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I got a call from my oncologist's office yesterday and he is canceling the scan for Monday.  Apparently, both abdomen and pelvis were scanned in the ER the other night, which would only leave the chest unscanned.  He is still going to see me on Wednesday and decide whether anything else needs to be looked at.  I don't have the report from the scan, so don't know exactly what it says, but Dr. Mac will be bringing me a copy of it.  I do know, however, that there is nothinig on it to indicate a recurrence or metastasis.  All good news.

 

I am feeling okay this morning, but am very tired, most likely from lack of sleep.  Being awakened every 2 hours in the hospital for vitals, etc. makes it impossible to get any rest.  I ate some canned potato soup for dinner last evening (after I used the potato masher to mush up the chunks) and so far, so good with that.  I will eat some yogurt for breakfast, I guess.

 

Thank you to everyone for keeping me in your thoughts and prayers.

LaCh
Posts: 514
Joined: Dec 2012

Wishing you a speedy recovery and that, in hindsight, this will be nothing more than a blip on the radar.  Best wishes....

mxperry220
Posts: 361
Joined: Mar 2011

Get to feeling better Martha.  We all need you here on this site.  You are such an inspiration to all of us.

Mike

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Glad you're home and feeling better!

z's picture
z
Posts: 1258
Joined: May 2009

I hadn't been on since you went in and out of the hospital.  i am so glad your fine, and I know that must have been scary.  Those pain meds make you constipated, so be careful with that.  I know your probably not on them now.  When I had lung surgery and was on pain meds and no ducolox, I had no bm for 3 days, until I was home and that was not fun.  You have to eat, did the dr tell you what to eat?  I wish you well. Lori

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I am doing much better.  I only received pain meds in the ER--Dilaudid IV, something else to relax my intestines that I don't recall the name of, and Zofran for nausea.  I had an order for pain meds as needed once they admitted me, but did not want to take them.  By that time, my pain level was much lower anyway.  As for diet, I am to remain on a liquid/soft diet until I see my colorectal doctor next Thursday.  I'm eating lots of yogurt, creamed soups, cottage cheese, pudding and ice cream.  I am seriously missing my veggies!  Thanks for your concern and well wishes!

z810840b's picture
z810840b
Posts: 212
Joined: Jan 2010

Hi sweetheart!!! I haven't been on since our last conversation....I'm so sorry to hear you were ill.I am so thankful you are ok !!! Please take care and rest...!!! Hugs..alyse

 

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

Thank you so much!  I'm happy to say that I am feeling much better.  I am getting a little tired of eating soft foods though!  I see my colorectal doctor on Thursday and hope to get back on a normal diet then.  How are you doing?  I hope all is well.  Thanks for thinking of me, my twin sis!

sandysp's picture
sandysp
Posts: 830
Joined: May 2011

I just read all this agape! I do not like it at all that you have been ill. You are so loved by me and all of us. I don't know what I would have done without you. I haven't logged in for a while. In a way I am glad. I would have been so worried about you. But it is very good for us that you posted this journey you had. Do you have diviticulitis? I have that but have never had an obstruction. It is one of the most common reasons for hospital admissions.

Good luck. You are in my prayers.

Love,

Sandy

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

You are very sweet and I thank you for your concern.  I hope you are doing well.  As for me, I am feeling much better, but am still on a liquid/soft diet.  I am having to get pretty creative with my cooking to get some veggies!  I had to crawl way back in the cabinet to pull out my seldom-used blender!  I wanted everyone to know about this because with pelvic radiation, adhesions/scar tissue and potential blockage are always concerns.  Anyone who experiences excruciating abdominal pain with or without vomiting needs to get themselves to the ER ASAP.  I am very lucky that I did not have a ruptured intestine.  I would not wish this condition on anyone--very painful!  To answer your question, I have diverticulosis, which was found on a colonoscopy, but this is the first blockage I've had.  I will be seeing my med onc tomorrow and my colorectal surgeon on Thursday.  I hope they both give me an A+ on my report card!

 

Thanks again for your kind words and please do not worry about me.  I am doing well!

 

Love,

Martha

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sephie
Posts: 536
Joined: Apr 2009

martha,  as always,,,,  thanks for the info about pain and getting to ER....being as strong as we all are, we ususally wait and wait to see if things will go away.... i appreciate any hints as to how to handle things  since i made the mistake (that year before my correct diagnosis) of not going to ER due to embarrassment and causing more damage plus mis diagnosis for so long..... glad you are better....love and hugs   sephie

LaCh
Posts: 514
Joined: Dec 2012

Hi MP327,

Was a blockage definitively diagnosed?  Was the norovirus ruled out?  If it was a blackage, was it in your small or large bowel? (if you don't mind).  I'm just trying to make heads or tails about all possibilities for myself.  No need to caution me about thinking positively.  I am.  I don't believe that thinking positively and knowing the possibilities are mutually exclusive.  In any case, I'm glad that you're feeling better. I understand about the diet limitations; I've lived on toast, eggs and apple sauce for eight weeks and it's become absolutely revolting (I don't even like eggs and never have. The problem isn't with what goes in but with what comes out and those things give me the least pain, and "least" is a word of comparison; I'm still talking about screaming pain when I "go"). 

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I got a copy of my scan results today when I had my 6-month follow-up with my oncologist and the impression is as follows:

"Abnormal findings, most consistent with small bowel obstruction.  Numerous dilated fluid-filled loops are noted, which are decompressed distally.  A single discrete transition is not localized.  The stomach is distended.  The gastric antrum is decompressed with mild enhancement, which is probably due to its decompressed state.  No evidence of perforation or loculated collection.  Obstruction may be mechanical, possibly from adhesions, or secondary to an enteritis." 

Please don't ask me what all this means, as I don't know.  However, I am focusing on the part which states "most consistent with small bowel obstruction."  As for the possibility of the Noro virus, I never ran a fever and it was ruled out almost immediately, along with a heart attack.  This scan was read by my friend and next door neighbor who was the radiologist on duty that night.  I totally trust his opinion on this and the next time I see him, will ask him to decifer all of this.  My med onc has ordered another scan for me in 4 months and will see me a couple days later.  I was hoping to not have to see him for at least 6 months, but due to this latest issue, he insists on 4 months.

My radiation oncologist and my medical oncologist have both told me that this may never happen again.  Just to be safe, in the short term, I am going to be more careful about what I eat.  I am becoming a 5-star chef when it comes to making creamed soups!  Tonight's soup du jour is creamy potato/kale.

Hang in there.  The painful BM's should subside soon.

LaCh
Posts: 514
Joined: Dec 2012

Hey Mp

I'd love to hear some of your recipies....  Creamy potato kale sounds great.  Truth is, I'd love a list of foods that won't drive me to the edge when it comes time to go to the bathroom.  I never want to see another egg for the rest of my life, but think that I'm stuck with them for the time being. As for the painful bm's... I have no idea what the cause is. My gastroenterologist (a saint if ever there was one) thinks it's either a fissure, a tear or an exposed nerve.  I don't really care much what it is, I just need relief. I keep my "screaming towel" close at hand and have since the second week of treatment. I can't imagine how whatever it is can heal if I keep "going," whether it's watery or water...  and I can't imagine remaining like this for months on end.  The external burns are feeling somewhat better, with the aquaphor and oxycodone and the difference in my mood is greater than the actual improvments to the tissue might warrant.  That said, I don't care, having a lighter mood is a gift.  I actually sound human again.  It sounds like you dodged a bullet with the obstruction that resolved without surgical intervention. Hopefully it was a one-time thing.  Without going too crazy, can you give a brief overview of how you prepare your soups and what ingrediants you use?  If it's too much trouble, don't worry about it; I don't want to burden you.  Glad that you're doing well; may it always be so....

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I'm not really a cook who uses recipes, unless I'm preparing something I can't wing on my own.  The soups are easy to make if you have chicken stock (I used store-bought stock, not broth) and veggies.  You could also use vegetable stock if you prefer.  I start with a little olive oil and saute onion, carrot and celery (all finely chopped) with a bay leaf until the veggies are soft.  Then I add the cut up sweet potato, potato, kale or whatever I'm using and add the stock, along with some garlic.  Cook on medium until the potato is soft, remove bay leaf, then put in a blender a little at a time and blend on low until smooth and creamy.  You can add milk if it's too thick, but I have been trying not to add milk, as it tends to bloat me up.  Finish with just a tablespoon of butter.  The kale turned the soup a beautiful green color and it tasted really good--and healthy too.  Making these soups has allowed me to get plenty of veggies while I'm on this special diet.  I am a veggie lover.  I also eat a lot of protein, normally, but haven't had any meat in over a week for obvious reasons.  I have been drinking protein drinks to get at least some protein.

As for what you can eat to avoid painful BM's, I'm sure you already know that anything too fibrous is not good.  I have not had one painful BM since I have been on this soft/liquid diet, so perhaps that's a clue that food choices, such as yogurt, pudding, applesauce, creamy soups and protein drinks can help in that regard.  I would have expected a BM to be painful since I am not having them as regularly right now, but that has not been the case.  Of course, if you do have a fissure, tear or nerve damage, diet changes may not make a difference.  Have you tried applying Lidocaine to numb things up prior to a BM?  I never tried that, but many have with good results. 

I think your pain is quite normal after this treatment.  I had painful BM's for at least a couple of weeks after I finished.  Even after things improved, I would still have the occasional painful BM, sometimes even accompanied by bleeding.  Most times I connected it to a bout with constipation, which resulted in very hard stools when things did move again, causing tearing.  The skin in that area is very friable, both inside and outside and easily damaged, and healing may take some time.  The unfortunate part about all of this is that we are talking about a body part that is in constant use, unlike breast tissue after radiation that can be somewhat left alone to heal.

I hear your frustration and can sympathize.  Time can definitely heal, but sometimes it just doesn't pass quickly enough.  Hang in there and keep us posted. 

LaCh
Posts: 514
Joined: Dec 2012

Hey Mp327,

Thanks for the prep instructions.  This is helpful. I can modify it to conform to my "laziest cook on the planet" mentality and probably come up with something satisfactory (to me, at least.)  I'm also a big fan of vegetables and haven't had any since this whole thing began, being very cognizant of the fact that "what goes in, must come out." As for the question of friable tissues, yes, this tissue is extremely friable and more so after bening bombarded by radiation but I suspect that I have something like a tear or a fissure. Haven't tried lidocane but I have a suppository to try as soon as the external burns heal enough for me even think of inserting it (I'm still quite a ways off from that). And yes, the problem with healing has always seemed to me focused on the fact that the injured area is in constant use. If I tear off a healing scab several times a day, how is that going to heal?  As for breast tissue, yes, I suppose that's true, I guess it's not constantly reinjured. I never really thought about it.  I'm not sure if I would quantify what I feel as impatience since I've had this pain, getting progressively worse, since the second week of radiation and the time for impatience for a resolution came and went weeks ago.  Right now, all I want is relief. The internal pain is simply unbearable.  The external pain is now just a part of the new reality.  I'm not happy with living with background pain and finding it normal but then, I'm not very "ok" with a lot of things related to this experience.  That said (and I'm sure readers will be happy to know) I won't enumerate them here.  My major aspiration for today is to try to do a load of laundry which entails walking up and down 5 flights of stairs three times (load wash, back home, put into drier, back home, collect from drier, back home).  Not looking forward to it but it's got to be done. My energy reserves are extremely low, and I suspect that I'll feel good when its done and then be unconscious on the bed for the rest of the day. But on clean sheets. Thanks for the soup info.  Yours sounds undoubtedly better than anything I'd whip up but I can make it work enough to satisfy my unsophisticated taste buds. 

LaCh
Posts: 514
Joined: Dec 2012

Hey Mp327,

Don't know if you'll come across this post but I made the soup and it came out quite good.  One question: Do you find it binding because of all the starch from the potatoes?  

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I'm glad the soup was a winner!  As for the binding effect of the starch, I have not had that problem.  Fortunately, my BM's have returned to what is normal for me (which may not be normal for anyone who hasn't been through this treatment).  One thing I have done since having the obstruction is stop taking my calcium supplement, which can be constipating.  I will resume it once I begin eating a more regular diet and have no problems.

LaCh
Posts: 514
Joined: Dec 2012

Yeah, I think I might have understated how good the soup turned out.  It's delicious and even more so because I'm finally beginning to risk eating foods other than eggs (which I hate), toast and apple sauce. This is a great change and a great recipe: "MP327 potato "soupreme."  Since this whole adventure began, I've been consuming huge numbers of stool softeners so I'll just continue to do the same.  The last thing I need is to be constipated.  Going to the bathroom is painful enough and that's when I "go" water.  Whatever 's going on in there can't deal with anything more solid.  This is a recipe that I'd make even if I didn't need to watch what I eat. Hopefully (although I have my doubts) I'll return to some semblance of normalcy with eating, "going," energy and urgency (the latter needs to resolve before I can lead a normal life) and all such things.  If and when I can claim a return to "normal," this is a soup that I'd make just because it tastes so good. Like you, I love vegetables so this is something that I'd gravitate to anyway.  I used chicken stock this time but can see myself preparing it all vegetarian as well. Super soup MP.  Thanks.

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

Gee, your kind comments about this soup recipe have caused my head to swell a little!  lol!  Seriously, I'm glad it turned out so well for you and that you enjoyed it.  I hope you have some leftovers!

I hope that your painful BM's will not last much longer.  Been there, done that and it's no fun. 

 

 

LaCh
Posts: 514
Joined: Dec 2012

I made a huge pot of it and have a lot left over but had to consciously limit myself, one, because I want it to last, and two, because I wanted to excercise caution when introducing new foods, just to see what's what. Although my small gut and stomach weren't irradiated, I've found that certain foods give me a stomach ache (foods that didn't do that before) but I can say that this soup went down very easy with no problems whatsoever. As you may have figured out, I'm no cook, don't especially like to cook and only do it (in the laziest way possible) because if I want to eat, I have to cook, but this was easy and uncomplicated and the result made it wholly worthwhile.  Would I make it again?  Absolutely.  (btw, in addition to the fresh kale that you recommended, I dumped in a bag of frozen spinach that I had, and omitted the garlic even though I love garlic, because I didn't have any handy. I used two onions that I had, 7 white potatoes and one sweet).  You should  have a "swelled head" because if I can make this soup based on your recipe, anyone can.  Got any more ideas? (I ask because I suspect that your food preferences and mine are probably not very different, based on your comments about a fondness for vegetables).  I also hope that the medieval torture that I experience each time that I go to the bathroom doesn't last too much longer either; the pain exacts a huge toll, physically, mentally and with my mood and energy reserves. I dread going to the bathroom and am eager to return to a life when it's not an issue that I even have to think about.  I also have issues with urgency that keep me tethered to my apartment and bathroom; it comes on with no warning, from feeling nothing to having to go RIGHT NOW.  That's got to resolve as well, otherwise, I'll end up having to spend the rest of my life within a few feet of a bathroom.  Thanks again...  

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I'm glad you had leftovers, but you are wise to not go overboard on portions until you see how your innards respond.  I think leeks would be a great addition to the potato soup and I totally agree, spinach is a very good idea and will add even more nutrients.  Red peppers are also full of good things--more vitamin C than an orange, so I have added those when I have them.  If you get to the place where you can tolerate a little heat, poblano peppers could be added without being too much.  Bean soups, as tolerated, are chock full of nutrition and would be a good source of protein.  They are tasty, even whizzed in the blender.  The darker the bean, the better--black beans are my favorite.  If you like squash, the butternut variety would make a very good soup, IMO.  It's all about experimentation.  As I said before, I'm not much on following a recipe.  I love to watch "Chopped" on Food Network and am amazed how those chefs can make a dish in a short amount of time, given certain ingredients, which are sometimes very strange.  I guess it's rubbed off on me!  lol!  I am still going to make some cream of asparagus soup one of these days, which I've made before.  I checked out the fresh asparagus on my last grocery run and it didn't look too fresh, so I passed on it this time.  I'm sure frozen could be used though.  For anyone who is lactose intolerate and can't eat creamed soups that contain dairy, making soup this way is an option.  You never really miss the milk.  I eat canned soups only when I'm desperate, which I was a couple of days right after I got out of the hospital, since I wasn't up for a grocery run.  My husband, bless him, came home with lots of cans of soup, as he would have no idea what ingredients to buy to make homemade.  I find canned soup quite scary since I have no idea what is in it, except for lots of things I can't pronounce.  Homemade is clean and I know exactly what I'm eating.

As for the bowel issues, I know at this point it's hard to believe that things will ever be better than they are right now.  But things will be better!  I can't tell you when, but they will.  My experience was about 2 weeks of post-treatment misery, then one day I just seemed to turn a corner and things were so much improved.  I also found that steady improvement happened in the first 2 years.  Sure, I still had some urgency issues, but they became less frequent as time went on, and I found out by trial and error what foods triggered such episodes.  I never went anywhere without scoping out the bathrooms, but never hesitated to go out.  I did always try to time my outings in the afternoons, as I found mornings to be the time of the day when things were iffy.  I guess I lived on the edge, as I never took a change of clothes with me anywhere I went--never needed them, so perhaps I was just lucky.  As you probably know, it is possible to get into a rhythm where BM's happen mostly in the morning.  I have spent lots of morning potty time just waiting for things to happen and it usually works.  Warm liquids and a bit of exercise is helpful to get things moved out before venturing out of the house.

Believe me, I am notorious for being an impatient person and, like you, was very frustrated early in the healing phase.  We would all like to think that once finished with that last zap, things would instantly improve.  As we all learn, that isn't the way it works.  Even more frustrating is the fact that friends and family think that's the way it works.  One day I just told myself that I was going to celebrate each and every little improvement, no matter how small.  I felt like throwing a party the day I only had one BM!  Smile  You'll get there and soon that distance between you and the loo will be more than just a few steps!

   

LaCh
Posts: 514
Joined: Dec 2012

Yeah, the soup seems to have a binding effect so I'm just taking more magnesium (which I take for hypertension anyway).  I thought of red peppers too, I just didn't have any when I made the soup. As for adding heat, I'm one of those people who doesn't like spicy foods, and my heat-o-meter is set pretty low; what's barely spicy for someone else is firey hot for me.  Creme of asparagus sounds good, and while the chicken stock adds a great flavor to the soup (I made my own since I don't like the taste of store-bought) I'd like to move away from meat (I was a vegetarian for 22 years, then not, now thinking of doing it again). I'm with you about canned goods, and don't buy/eat any, partly for the chemicals added to the food, but also for the BHA in the cans themselves.  The only way that I have an idea about what I'm eating is to prepare it myself, but that said, do I really know what's in even fresh produce? Not really. As for excercise, as soon as  the external burns permit (when they're completely healed and I can walk normally) I plan to go to a gym that I have free access to through my health insurance, just to do some walking on the treadmill to start and see how that goes, then ramp it up when I can. I'm aware of the potential for exposure to flu/pertussis/headcold viruses and although I'm not happy about it, I'll take the risk, hopefully one I won't regret later.  As for being impatient for things to improve, I'm not sure I'd call it impatience, I'm just tired of being in pain all the time. It wears me out physically and mentally. I find it helpful to look back in time to a week ago, rather than to yesterday in order to see the improvments, and I do, in fact, see them.  The distance between "you and the loo" ...funny.  Yeah, it'd be nice to not have to think about such things.  Right now it's not such a big deal since I'm not a winter person and tend to hide from the winter as best I can even under the best of circumstances (when my health isn't an issue). But when the spring comes, if I can't get out as I like to, that'd be a hardship and one I couldn't impose on my dog, either, not in good conscience anyway.  I won't go looking for problems though; I'll just stand still and wait for them to come to me, if they do, I'll deal with them and if they don't, great!  I'll be in Central Park soaking up the spring. 

jcruz
Posts: 242
Joined: Jan 2013

Thanks for sharing your how your experience with bowel issues improved over time.  I'm spending a bit of time these days researching insoluble and soluble fiber, also trying to note changes in my digestion as I taper off the oxycontin.  I can now predict a few BMs in the first hours that I'm up in the morning and most times I don't have the "oh my!" rush to the bathroom like I did before.  I'm going back to work at the end of the month and have requested to work only in the afternoons for the first month.  I travel to work on a bus and worry about the time between leaving my house and getiing to my office - if I go back to work in the mornings I don't know if I'd make it to work without problems.  

I can say things are definitely getting better for me.  I'm sitting on the couch without my waffle cushion!  What a thrill - painless sitting!

pamela_preib's picture
pamela_preib
Posts: 51
Joined: Nov 2012

I just had to jump in here.  I finished treatment just a few days after LaCH.  I am still very stingy  and raw in the vaginal area, but also developed hemrhoids and a UTI infection so I get to deal with that along with the healing of the burns in the anal area.  I have been using the Lidocaine and it does make a difference so I would certainly give it a try LaCH.  I had one of my most painful movements yesterday, but then later in the evening had one of the most comfortable "normal" ones I've had in the long time.  It's such a back and forth thing.  I'm on Loritab every four hours right now and then I take two Iboprofen two hours after the Loritab.  My nurse said keeping the pain meds in you consistantly works best so be sure you are doing that.  I was kind of just taking it when I suspected a bowel movement which wasn't working for me.  I have been one of the "unlucky" ones I've read about who have been screaming and crying in the bathroom as well.  I'm so happy this will be behind me soon.   l'm a little better each day and can see the light at the end of the tunnel. 

LaCh
Posts: 514
Joined: Dec 2012

Pamela_preib,

Thanks very much for the info.  Are you using lidocaine internally or externally?  My problem is internal (yeah, I'm another one who, like you, is reduced to screaming when I "go," and although the external burns are healing, I'm making no headway with the internal problem.)  Is it a suppository that you're using? (I cant get past the external burns just yet to use one)  Is Loritab the name?  I've already discovered that staying ahead of the pain works better than trying to tough it out and wait to take it, so I try to stay on schedule with the oxycodone (but I sometimes forget to take it and am reminded that I've missed a dose when the pain returns.)  I'm also starting to feel better and can see a light at the end of the tunnel.  I have a ways to go but can see some small but gratifying improvements.  Thanks for the info. 

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

I think it's a good sign that you were able to have a comfortable BM.  Perhaps you are getting close to turning the corner.  I certainly hope so.  May you keep moving forward!

mp327's picture
mp327
Posts: 2972
Joined: Jan 2010

Friends, I am happy to say that my husband and I met a friend for dinner last evening at the old Golden Corral and so far, so good!  I didn't overeat (but I ate more than I've eaten in almost 2 weeks).  Small portions of carrots, green beans, mashed potatoes, mac & cheese, a small piece of fish and one bite of chicken.  Dessert was a little peach cobbler with frozen yogurt and a few bites of chocolate cake.  It all tasted so good to me!   

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

I've never been very good about knowing about foods, what to eat and what not to eat. Never had problems but never did too much research, just ate whatever I wanted to. This year (I'm four years post treatment) I've been having problems with the runs and finally bought a book written for folks with IBS. One very important thing the author stressed was to always eat soluble fiber on an emply stomach - and she gave lots of examples (bananas and potatoes are my favorite choices). Doing this has made an incredible difference. No more running for the bathroom, no more unexpected problems, much less urgency. What a difference it has made.

jcruz
Posts: 242
Joined: Jan 2013

I've been looking at information online about fiber and find myself gravitating to sites for people with IBS.  Would you mind sharing the title of the book you got?  It would be nice to have something in my hand instead of the bunch of links that I've been gathering.

Thanks

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Sure - I'd be happy to. The author is Heather Van Vorous. She has two or three books available - I bought 'The First Year IBS', description: 'a patient-expert walks you through everythiing you need to learn and do'.

Really easy to follow. She's got a website, too, and if you enter your email address she sends you a very nice chart showing trigger foods, foods to eat in moderation, and safe foods. I printed it out and put it on my refrigerator (I keep a copy at work too).

Amazon has the book available for $11.55 but you can probably get it elsewhere too. She also has a cookbook with lots of recipes - I bought that too but haven't needed to use it yet.

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