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Starting out to destroy this anal cancer!!

SisterPretty
Posts: 32
Joined: Jan 2013

Hi everyone! I am a newly diagnosised anal cancer patient. My family doctor diagnosised me with hemorrhoids due to a small amount of rectal bleeding. She prescribed hemorrhoid cream. I used the cream even though I saw nor felt any evidence of hemorrhoids, the bleeding continued and I told my husband I wanted to go to a new doctor to check this bleeding out. We saw a walk in clinic doctor who diagnosised me with a fissure and refered me to a surgeon. He told me not to worry as this type of bleeding usually does not indicated cancer, occult blood would.(he was wrong!) I cancelled my appointment with the surgeon twice due to work conflicts! When I did go to see the surgeon he did a rectal exam (the first doctor to perform this test!!) he told me he felt a tumor. I asked him a benign tumor and he said no I think it's cancer. He booked for a colonoscopy which confirmed the diagnosis of anal cancer. Also my MRI showed some spots on liver, I had another MRI and results were inconclusive. I have started on chemo and radiation treatments two days ago.I love this blog as I find all the information very helpful and everyone very supportive!!

eihtak
Posts: 868
Joined: Oct 2011

So sorry that you have had to join us, but also glad you were persistant about getting a diagnoses. As you may have read, although this treatment is often described as brutal and barbaric, something (maybe each other), keeps us going to the end. It is short in comparrison to many other treatments, and recovery comes soon after radiation ends. You will learn things about yourself and others in your life, an education only acheived through experience. Please continue to post often, we are here for venting, advice, or just to occupy your mind. No question is off limits.

I will have you in my thoughts and prayers for problem free treatment/recovery!

Marynb
Posts: 1134
Joined: Aug 2012

Hi. I am sorry about your diagnosis. Many of us, including myself, were misdiagnosed for quite awhile. Take heart. This cancer is very treatable and has high potential for cure. Unlike, Eihtak, i did not find the treatment all that difficult. Yes, there was some pain and burning for a short time, but so doable. Compared to the treatments for most cancers, it is very short term and the healing is quick.

It will be important for you to take good care of yourself during this treatment. We have all been where you are at right now, so as treatment progresses, there will be many here who can give you good tips for self care.

Hang in there. You are in my prayers.

eihtak
Posts: 868
Joined: Oct 2011

Although it is someimes "described as brutal and barbaric" this was also NOT the case for me. I did have some compications that arose from my ostomy surgery made worse by radiation, but was spared any painful bowel issues that so many suffer such horrific pain from.

Thats whats soooo great about this site: a variety of experiences and paths all with the same goal!

Praying that the terms brutal and barbaric don't apply!

LisaMMiles
Posts: 38
Joined: Mar 2013

I hate to say it, but brutal and barbaric is how I would describe my side effects. It has been horrible for me :( I just finished my 6 weeks of treatment and still in lots of pain! Need to talk to someone about how long I will have to live with these side effects :(

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mp327
Posts: 3017
Joined: Jan 2010

I think most people on this board will agree with me that most side effects diminish rather quickly after treatment ends.  I felt much better in about 10 days.  Some side effects do linger and occasionally some can be long-term, but most of us have learned to cope with any such issues and live pretty normal lives.  This is my hope for you.  Just give yourself some time to heal, as your body has been through a lot in the last few weeks.  No one can tell you how long it will be before things improve, as everyone is different, but in most cases, healing happens fairly quickly.  Don't get discouraged and just be patient.  Stay well-hydrated and eat lots of good protein to promote healing.  A little light exercise every day will also help to boost your energy.  I wish you all the best and hope you'll keep us posted on how things are going. 

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mp327
Posts: 3017
Joined: Jan 2010

I'm sorry for your diagnosis but I'm glad you have found us.  We help each other here and we will help you get through this!  I wish you the very best.

SisterPretty
Posts: 32
Joined: Jan 2013

Thanks, everyone for welcoming me to the group! Just returned home from radiation treatment my third one, and I feel a little bit of burning, discomfort but very bearable. I woul love to hear your tips regarding self care I am trying to eat healthy and drinking lots of water, I am very lucky we have a bidet which I am sure will be getting a lot of usage. I meet with my radiologist tomorrow

Dog Girl
Posts: 100
Joined: Sep 2010

SisterPretty:

I echo the others in that I am sorry you are here, but glad that you found us.  I don't know how much you've been able to read the various posts, but here are a few quick tips:  Ask your radiologist if you should go into rad with a full bladder.  Many, but not all doctors recommend this to lift the bladder out of the field of radiation. Very important: if you are using any creams at all, make sure you remove them thoroughly before rad tx.  It can exacerbate the burns when or if they come if you leave on creams/lotions, etc...  Make sure you get lots of protein.  Eat while you can and if later on you don't feel like it, drink Ensure type products or eat Greek yogurt as it is generally high in protein.  Consider taking stool softeners if needed and blot, do not rub after having a BM.  A bidet will probably be good, but you may want to use a sitz bath as well.   Also a hand held shower attachment can come in handy as well.  Take any anti-nausea meds at first sign of upset stomach.  You want to stay ahead of the wave.  There are gobs of other useful info on various posts, so scan through them and ask any questions.  We've all been there; done that, so there are lots of different advice on things that may work for you.  And remember, hardly anyone gets ALL of the side effects, so you will learn to deal with your most onerous ones.  Good luck in you tx and may you be cancer free within two months!

SisterPretty
Posts: 32
Joined: Jan 2013

Thank-you Dog Girl for all your good advice. They did tell me to go to radiation with a full bladder.
I have finished my first week of radiation and chemo. I was very tired and had a lot of diarrhea on Friday and the weekend. I am experiencing a lot of gas, yeech. My mouth is very sore, I called my oncologist and I am waiting to hear from him. Mouth is sore and gums are bleeding. Otherwise, I feel fine,
annoying side effects, but nothing too bad.
Sister Pretty Exhausted

NYinTX's picture
NYinTX
Posts: 64
Joined: Feb 2013

I gargled with baking soda - 2 tsp in 4oz water - and then swallowed.....I brush with dry toothbrush dipped in baking soda and also brush my tongue....all my sores cleared up in several days. For those nasty sores on the inside of my lips which persisted, I used a lot of carmex and/or HerpecinL lip balm and kept the area moist....all sores, incl in back of tongue, cleared up as soon as chemo was complete in 4 days. Worked wonders. I also lived on Organic Kefir from Whole Foods (liquid yoghurt with lots of live cultures). Baby Oragel also numbs the area for short time if needed.

I'm doing the second round of chemo right now, along with daily radiation, and am proactively gargling with the baking soda every couple of hours...baking soda provides an alkaline environment and prevents the little buggers from infesting your mucosal membranes in your mouth...        good luck

SisterPretty
Posts: 32
Joined: Jan 2013

Thank-you Dog Girl for all your good advice. They did tell me to go to radiation with a full bladder.
I have finished my first week of radiation and chemo. I was very tired and had a lot of diarrhea on Friday and the weekend. I am experiencing a lot of gas, yeech. My mouth is very sore, I called my oncologist and I am waiting to hear from him. Mouth is sore and gums are bleeding. Otherwise, I feel fine,
annoying side effects, but nothing too bad.
Sister Pretty Exhausted

Angela_K
Posts: 374
Joined: Jan 2011

Congratulations on the completion of your first week!  I believe you will find the absence of that chemo pack thing to be liberating!  Sorry about the mouth sores.  I found that a wash of distilled water, sea salt and baking soda helped keep those pesky mouth sores and bleeding gums at bay. I probably gargled that stuff 10x a day.  Your doctor may want to prescribe some stronger cocktail for you as well.

Get some good r&r and take one day at a time and very soon you will be signing out of your posts as Sister Pretty Healed!

Blessings,

Angela

 

 

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Feeling Grouchy and sorry for myself today! I have been doing well so far staying positive but today my mouth is very sore although I do have a great mouthwash my oncologist prescribed for me feels like I went to the dentist and mouth is frozen after I use it! I can only eat soft foods anything else feels like chewing ground glass. I have a cold sore on my lip, my skin especially my heels are dry,dry, dry. My husband who is wonderful is getting on my nerves. My Pic line is bleeding have to go to hospital at 3pm to have it check out. I have gas and diarrhea. Hope I feel better tomorrow, really not as bad as it sounds I am just miserable!!

sephie's picture
sephie
Posts: 541
Joined: Apr 2009

the ONLY thing that helped me for sores in mouth was CAPHOSOL.... need prescription....it helped... i got it too late for the first round of chemo...suffered terribly... anyone with sores needs this....   i had rinsed with salt water ,, soda water,  etc.... nothing helped but this....  good luck   ......   sephie

Marynb
Posts: 1134
Joined: Aug 2012

I am sorry that you are having a bad day! Hang in there. I hope tomorrow is better.

Hugs!

Mary

SisterPretty
Posts: 32
Joined: Jan 2013

Hi everyone,
I am feeling a lot better today!! I had a prescription for Nystatin with Xylocaine for my mouth sores and they are improving!! Still only eating soft foods but mouth not as sore!! Also have a prescription for Zovirax for cold sores and they have pretty well cleared up never developing into the painful phase thank goodness also have Nexium for heartburn, did anyone else suffer from heartburn not sure if it is caused by chemo or it's just me. Going to body shop today to buy some oils and cream for dry skin. Tomorrow I have appt with chiropractor, did anyone else use herbal treatments along with chemo and radiation?
Thanks for all the support and kind words! Feeling a lot more like myself today,taking Joel's advice waking up each morning and saying to myself " something good is going to happen to me today".

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mp327
Posts: 3017
Joined: Jan 2010

I'm so glad you are feeling better!  I don't remember having heartburn, so I really can't comment on that.  I'm glad you are waking up on the sunny side each morning.  I think a good attitude helps us get through this.  Take care!

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Everyone, Just returned from my radiation treatment, it is an hours drive to hospital and my husband insisted we go,he has Big Truck. We made there and back safely although we saw many Transport Trucks in the ditch.Week Two of treatment is completed!! Went by quickly. Feeling well today, mouth sores are gone and cold sores are gone. Eating solid food again, looking forward to a nice weekend. Saw my husbands chiropractor and he wants me to do a biofeedback session, has anyone else expienced this? I hope everyone has a safe and cosy weekend!!

Marynb
Posts: 1134
Joined: Aug 2012

Glad you made it to treatment! Are you in New England? I hope you have a nice restful weekend. Sounds like you are doing as well as you could be. Hang in there.

SisterPretty
Posts: 32
Joined: Jan 2013

No, I am in Niagara Falls. My husband is wishing for the power to go out as he just installed a new generator last year and wants to see how it works. Silly man!

islandgirlculebra's picture
islandgirlculebra
Posts: 136
Joined: Dec 2012

Big Boy with a new toy. I find that part of men sort of endearing.... lol

eihtak
Posts: 868
Joined: Oct 2011

What exactly is a biofeedback session?

Glad you made it safely to your treatment! Enjoy eating again and stay warm this weekend!

Marynb
Posts: 1134
Joined: Aug 2012

I love Niagra Falls. I took my daughter there when she was a little girl and we went on the Maid of the Mist. We laughed so hard. It is a wonderful place and I have happy memories from our visit there. Is it snowing hard there?

SisterPretty
Posts: 32
Joined: Jan 2013

Hi,
How did you weather the storm, much to my husbands disappointment we did not lose our power. Although, we received a ton of blowing snow, almost two feet of snow. I hope you are safe and warm.
Today, is a beautiful day, sunny.
Have a great weekend!

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Everyone,
Feeling good, tire very easily in bed now and it's only 7pm, my kids are taking good care of me as my husband is out of town on business. I did the biofeedback with my husbands chiropractor. I really don't understand what it is all about as I understand it, the chiropactor hooked me up to a machine which gave him in formation regarding the status of my body, it also produced energy waves which helped energize my cells so I can fight this cancer as well as the damage to my cells from radiation and cancer. He is going to email my report to me with recommendations which will make me stronger and healthier. He already told me I have to cut back on my caffine intake, eat fresh veggies and fruit, exercise twenty minutes a day and he gave me a recipe for energizing my cells - flaxseed oil, flax seed and cottage cheese or yogurt.
Hopefully, this will energize me as well!

eihtak
Posts: 868
Joined: Oct 2011

Glad you are feeling well! I also rememberi being sooo tired and in bed early, your body will kind of dictate when it needs rest so be sure to listen. I have not heard bio-feedback discussed here before but sounds very interesting. I hope it is another positive addition to this treatment and recovery process! Please keep us posted. I have this picture of "7 of 9" on Startrek in her energizing booth. (maybe you know of it, if not just a Startrek way of re-charging instead of sleep) and no I'm not a big fan, just thought of it and smiled!

Its easy to add flax to your diet. It comes in oil,seed, powder, and can use with baking, sprinkle on cereals, etc.

Will have you in my thoughts and prayers!

Phoebesnow
Posts: 450
Joined: Apr 2011

Did u run the biofeedback by your oncologists?

 

im asking because normally I drink kangen water.  During tx theywould not let me drink this.  It alters your cells in some way.  They would not allow me to take vitamins or medications unless deemed necessary.

SisterPretty
Posts: 32
Joined: Jan 2013

LOL. I will have to tell my husband about the Star Trek Poster, he is the one who wanted me to perform the biofeedback, because it is probably exactly what I looked like!!! The chiropactor kept talking about energy and energy flow, we have to see if I have more energy today because I sure did not, yesterday.
I am thinking my oncologist won't have an option regarding biofeedback back because when I first saw my oncologist I had to fill out a questioaire and one of the questions was do you drink green tea well I drink 8 to 10 cups of tea a day, but switch to green tea after my diagnosis because they claim there are a lot of antitoxins in green tea which fight cancer, but I also read online that theses antitoxins would weaken chemo treatments because they would also fight the chemo, so I asked my oncologist if I should keep drinking green tea and he said there is no evidence based medicine for either claim and to do as I wished. Don't know why they asked me about green tea if he wasn't going to advise me about it !

Marynb
Posts: 1134
Joined: Aug 2012

Hi . I hope you are doing ok. I had power restored on Sunday, thank God. It was so cold. It made me feel like a pioneer woman and was one of the few times it would have been great to have a man around the house again....for body heat, if nothing else! The sun came out on Sunday and reminded me that after every storm, come better days! Hang in there. You are in my thoughts and prayers!

SisterPretty
Posts: 32
Joined: Jan 2013

Hi,
Glad, you made it through the storm safely! My husband will be jealous that your power went out, but I am glad it wasn't for long. Slept great last night almost ten hours!!!
I did not tell my oncologist about taking biofeedback. Actually, I havent seen him since I had my chemo treatment. I should call to schedule an apptointment because I don't have another chemo treatment date yet and my chemo doctor did a breast ultrasound before I started treatment but has not told me the results yet,I am assuming no news is good news.
Thanks everyone for your support and feedback.
God Bless.

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Sister Supports,

I have made it to the half way point - 3 weeks down and 3 more to go.

I am feeling well,not as fatigued and have been walking to Tim Hortons every morning 15 mins there and 15 mins back. Appetite is great - gained one pound.

I am starting to feel the effects of the radiation, having some burning in the anal areas as well as the vagina, also experiencing some itching. I am soaking in sitz bath with Baking Soda. Can you advise me about any creams or treatments used to combat these problems.

Hope everyone had a nice Valentines Day,it was my daughters birthday and my anniversary( I even managed to fool around with my husband, but I imagine it will be a while before that happens again!!)

Thanks again for all your support and advice.

 

 

 

 

Marynb
Posts: 1134
Joined: Aug 2012

Hi! Congratulations on being half way! It sounds like you are doing pretty well. Keep up that walking in the fresh air. I think it is what helped me so much. As far as creams and lotions, the cream that the hospital recommended was Aquaphor. I want to caution you, however. I did not use it except on weekends and when the radiation was complete because any residue of lotion not removed by washing will really make the radiation burns much, much worse. I was told from the beginning that those who use the lotions sometimes exoerience severe burning. Based on what I read here, that seems to be true. Be careful. The problem is, you won't want to scrub the burned area before radiation sessions, which you would pretty much have to do to get all the lotion or cream off.

I used the hand held shower a lot, which helped to soothe and slough off burned skin cells.

Hang in there! You are doing great! Half way to being cured!

SisterPretty
Posts: 32
Joined: Jan 2013

Thanks Mary for your advice, I won't use any lotion on my radiation days.

Went for my walk today it was a beautiful sunny day, I agree with you the fresh air is wonderful.

 

SisterPretty
Posts: 32
Joined: Jan 2013

When I was out on my walk my neighbor stopped to ask me how I was and told me her mother who had bladder cancer was just diagnosised with cancer in her liver. Our neighbor had colon cancer which also went to his liver. My first MRI showed something on my liver but the second MRI tests were inconclusive. I am a bit worried now about my liver. The oncologist doesn't think it is cancer as he says this type of cancer typically does not go to the liver (didnt Farrah Facetts go to her liver)

After my treatments are completed I will have another MRI to check on liver, should I be worried - don't trust doctors too much as walk in doctor told me that since I was having frank blood and not occult blood he didn't think my rectal bleeding was from cancer - he was wrong.

 

pamela_preib's picture
pamela_preib
Posts: 51
Joined: Nov 2012

I was tested and diagnosed with hemochromotosis.  Totally non cancer related thank God.  I finished my treatment three weeks ago.  Seems like yesterday.  I used the Aquophor constantly, but always took a bath before treatments and didn't have a problem.  No scrubbing involved as that definately would not have been comfortable.  I don't know if I was or was not burned more than your average patient.  Just glad it's over and wish you well with our treatment and hope your pain is kept at a minimum.  This too shall pass. 

mp327's picture
mp327
Posts: 3017
Joined: Jan 2010

I have had a small spot on my liver that has shown up on the numerous scans I've had, which my doctors have kept close watch on.  However, it does not appear to be a tumor, as it remains unchanged, even decreasing in size on the my most recent scan about 3 weeks ago.  There are cysts that are common on the liver, which is probably what I have, and hopefully what you have--they are benign.  However, I have a real problem with your oncologist telling you that this type of cancer, anal, typically does not go to the liver.  That is an erroneous statement and I'm not sure what he based that comment on.  It is true that the majority of anal cancers are caught at earlier stages and do not metastasize to distant organs, but when they do, typically they will be found in the lungs or liver.  I quote here from the National Comprehensive Cancer Network Guidelines, page MS-9:  "It has been reported that the most common sites of anal cancer metastasis outside of the pelvis are the liver, lung, and extrapelvic lymph nodes."  It goes on to say that anal carcinoma is a rare cancer and "only 10 to 20% of patients with anal carcinoma present with extrapelvic metastatic disease."

Unfortunately, I think some doctors do not have a lot of knowledge about this disease.  It frightens me to think that such information as I've quoted above is available to the general public, but yet some doctors do not seem to be knowledgeable about this.  I do not have M.D. after my name, I have just done lots of homework, which any doctor worth his salt would do.  If I were you, I'd register on the NCCN.org website and print out those quidelines and show them to your doctor just so he understands that, yes, sometimes this cancer does go to the liver, just as Farrah Fawcett's did.  As you can tell, I get wriled up when I read that a doctor is not exactly up to speed.  Bringing this up with him just might help you and someone else in the future who seeks treatment from him.

When you have the next MRI, I hope it will be at the same facility where the previous ones were done.  Comparison between all three scans will be key to note for changes in whatever was seen on your liver.  If it's not at the same facility, make sure the previous films are requested for comparison.  I hope this turns out to be nothing of concern and totally benign. 

eihtak
Posts: 868
Joined: Oct 2011

Thanks once again for pointing out the NCCN guidelines. I registered there a long time ago after taking your advice and have found it so useful to consult with questions over time. Fortunately my doctors seem to follow also!

mp327's picture
mp327
Posts: 3017
Joined: Jan 2010

You are very welcome!  I believe that is the best source of information we have concerning staging, treatment and follow-up for anal cancer.  I'm glad your doctors are in step with the guidelines.

Looniest123456
Posts: 6
Joined: Feb 2013

I Hope and feel I've finally found a forum for my personal experience, and hopefully, as I go through this process, I'll he able to help others....  This Thursday (Feb 21) I will at last have the doctors' meeting to discuss my diagnosed (recurrent) anal cancer.  I already know they will be advising chemoradiation therapy, and natural concerns come up.  I'm not ashamed to say I have a low pain threshold, and when I had my first bout the this, and they opted for a local resection (surgery) the pain was pretty excruciating.  Liquid morphine didn't help except by distracting me.  I understand that chemo is not as bad pain-wise as the radiation will be (because of the location of the cancer) but also, the many other side effects mentioned are pretty daunting.  I know I'm jumping the gun by asking about this before the full programme of my treatment is discussed, but...I'm an anxious person by nature!  I'm hoping to have a LIST of questions for the initial doctor(s) prepared, and the first one will be how far or how big the tumor/cancer has progressed (if at all).  Anyway, I'll keep you guys posted.  Wonder if you know wny special questions I should have for the doctors for this first meeting (I almost want to ask, what if I I didn't do ANY of the treatments??

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Everybody,

Thank-you for all the advice regarding the spots on my liver. I can't believe how fast time is flying by!!

I have not been on this site for weeks. I will update. I have been doing well until last week when I received my last chemo 5-Fluorouracil and Mitomycin. It was given Monday and by Wednesday the side effects kicked in big time unbearable pains in my stomach from heartburn, nauseated, thrush and terrible diarrhea. Still experiencing diarrhea and thrush today. I have one week left of radiation, hurray. Pretty red and sunburned in all my private areas, dread having a bowel movement,cried the other day. I also have a million freckles on my stomached is this common the end is near. Not very pleasant treatments but manageable, my heart goes out to all the older people I see undergoing treatment. I have prayer every day throughout this journey and am blessed that so far although unpleasant as Mary as said very doable. I was also blessed finding this site as all the advice and recommendations I received have been a great help. THANKS

mp327's picture
mp327
Posts: 3017
Joined: Jan 2010

It's good to hear from you.  I'm sorry things are getting a little rough at this point, but that is so typical with this treatment.  I got really miserable at the start of week 5.  But the finish line is in sight for you, so just hang in there!  Once you are done, you will begin healing and soon will be feeling so much better!

Marynb
Posts: 1134
Joined: Aug 2012

Hi. I am so glad that you are getting to the end and are hanging in there! You will be in my prayers! I hear you may get a lot of snow tomorrow! Hopefully, you won't lose power! Did they check yourmwhite blood count? When I started to get really bad pains in the stomach, my white blood counts had gotten so low, I needed Neuprogen shots to get them back up. This delayed treatments a bit. Don't forget to mention the pains to the docs.
Hang in there, you are almost done!

RoseC's picture
RoseC
Posts: 505
Joined: Jun 2011

You're almost there - hope things resolve quickly! Are the freckles only on your stomach or all over? I don't remember having anything like that but it was quite a while ago and I might have forgotten. My heart went out to all the older people too - and to those going to treatment alone. Going alone is certainly something that can be done, but I was so glad to have a family member with me. Best wishes to you. It's almost over.

NYinTX's picture
NYinTX
Posts: 64
Joined: Feb 2013

I am in week 5 of radiation with second bout ofchemo - I have no redness or pain on any part of my radiation field -- after I started using A&D ointment by the bucket and organic(low protein)nonfat yoghurt in vaginal area and anus to stop burning and itching.....MDs are amazed as I should have at least a stage 2 skin breakdown at this pt in treatment.....MDAndeson pushed aquaphor as a cream but if you read the ingredients you will note that it is 43%petrolatum.....at$20/lb jar.  A&D is 15%lanolin and 53%petrolatum at $10/lb jar. You can also go 100%petrolatum (in baby section) for $3/ lb jar.....works for me and I have no pain or redness at wk5

Angela_K
Posts: 374
Joined: Jan 2011

A&D (the zinc-free) was my preference over Aquaphor as well. The lanolin stinks a little . . .but there was a notable difference.

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Everyone,
Thank-you for your kind words and please keep me in your prayers. My heartburn has gone, thank goodness I did have blood work done and it was good. Feeling better except for the burns, very fatiqued but could be due to pain medication and I have no appetite or any interest in food right now.
I will try A&D ointment and yogurt as it is even painful taking dog for walk!
My Radiation will be completed on Monday!
I love your picture of your cats! We have a beautiful cat and dog. I will ask my husband how to post a picture. Before I do, you need to know my story of how I became Sister Pretty. My aunt would always tell me that my mother was the smart sister and she was the "Pretty One" I have four very close girlfriends and one day Sharon said "we are just like sisters!" and I replayed well then I am the pretty one.That day we all named each other Sharon is Sister Smart, Colleen is Sister Sexy, Cathy is Sister Sophisicated and Sharon D is Sister Posh.
I don't feel like a Sister Pretty right now, Sister Strenght is more fitting.

mp327's picture
mp327
Posts: 3017
Joined: Jan 2010

I'm so glad you are over the heartburn and your labs were good.  Now on to Monday for that last radiation zap!

If you use A&D, please remember that it has zinc oxide in it and may intensify the radiation burns if any remains on your skin when you have treatment.  Of course, once you are done on Monday, it should be fine--you can use any lotions, creams, etc. after that, even ones containing traces of metal.

Thanks for the explanation of how you became known as "Sister Pretty."  You must have some very special friends!

Best wishes for all to go smoothly as you finish up your treatment!

Marynb
Posts: 1134
Joined: Aug 2012

I am so glad you are coming to the end! You certainly are showing great strength! Hang in there!

SisterPretty
Posts: 32
Joined: Jan 2013

Hi Sister Survivors !
Yesterday was my last radiation treatment!! I can't believe how fast the time flew by!
I came home yesterday from my treatment and went straight to bed, didn't wake up until 6pm.
Even though the treatments are done now the hard work of returning to normal and getting this body back into a healthy state begins. Made a big mistake yesterday after radiation treatment went to lunch and had a beautiful fruit salad and woke up with terrible stomach pains. No more fruit for me! My appetite is terrible nothing appeals to me and I usually only eat half of what is on my plate. I usually drink 6-10 cups of tea a day but recently only have two,just don't fancy it, which is very unlike me. I do have a lot to be thankful for as I have no burning when I urinate(hooray,one thing I prayed not to have) although bowel movements are extremely uncomfortable. My burns are healing nicely and Tylenol #3 very effective with the pain. Although,the itching at night is very annoying. I have appointments for CAT scan and MRI in April, as well as a follow up with the oncologist. I believe we can overcome any obstacle especially if we have faith, family and friends. I believe I am cured. I wil prayer for everyone who is on this site since my journey was a lot easier and positive with you, my friends who are all on the same journey, may all your goals come to pass.

mp327's picture
mp327
Posts: 3017
Joined: Jan 2010

Congratulations on having treatment all behind you!  Now you can focus on healing and strengthening your body.  I'm sorry you had the bad experience with the fruit salad, but your intestines are probably going to be "finicky" for awhile.  Your appetite will bounce back, but I suggest adding things back into your diet in small amounts in the beginning, particularly fresh fruits and veggies.  I found that cooking fruits, such as apples, pears and peaches in the microwave made them easier to tolerate.  I still prepare them that way frequently.  Add a little cinnamon and they are quite tasty!  I'm glad you have not suffered the urinary burning like I did--it was miserable.  BM's may continue to be uncomfortable for awhile, but things will gradually improve.  Patience is key with this recovery.  Hang in there, you have done great!  I hope the scans in April will give you all good news!

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