Jan 29, 2013 - 2:43 pm
Well Dan got his central line put in this morning, and the nurse will be here in an hour to teach me how to administer TPN! Nutrition is on the way!
while we were waiting this morning in the IR unit, Dan asked for a bottle of water. I gave it to him and he drank. Normally! Not the painstaking baby sips where it takes him a day to drink a 10 ounce bottle. No, this was 10 minutes and the bottle was empty! He's tried other liquids and foods and they are too painful to get down ( his mouth broke out in a new mucositis round last night) but I am thrilled that he can drink! No choking, no wrong pipe.. Straight drinking! So nice to see him succeed and smile!
it feels so good to share some good news, and not vent for just one day!