Jan 25, 2013 - 11:20 pm
Not much rest or sleep lately. Last night we were watching for low blood sugars, I don't do well if trying to wake up and at getting back to sleep before the next alarm goes off.
Then, after 7 liters of saline in 5 days home, and a additional loss of 6 more lbs in 3 days, the Dr has decided to start TPN feedings this coming Tuesday. Fortunately, Dan is asking for help.. So it's better that he gets how much he needs help. I am a bit nervous since I have read all the possible side effects.. Just hoping this is a positive experience.
So if we can manage without any major events this weekend we get to go back to Philly on Monday, but this time, for just one night. Last weekend his neck looked to be doing better, and then the entire thing got red and looked like he was going to melt.. This week, his mouth has done it twice in three days... We are back to barely eating again.
If anyone doesn't mind sharing, How long did it take others before the 'cooking' stopped flaring so severely?
appreciate your support as always!
Sleepless at the shore...