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LOOKING for advise and encouragement

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

I suppose that I need to take one day a time, and not focus on all the negative reactions that my loving Papi- “T”, he will suffer.

How I'll be ready without over panic before he starts his treatment. I wonder if I’ll be ready to support him and give to him the right loving care.

I wonder if I’ll have the time to be ready for him, I’m with all my love and heart, but will be enough.

How be firm with him and loving in the same time, where are the suggestions to handle all the waves of this storm that don’t start yet.

I need all the recommendations to manage this ship and go on in this storm with the help of you and the hand of God sure we’ll do.

I’ll be glad to hear from you because we are together in this battle with same enemy.

Feel free to replay; hoping you understand my English, my mother language is Spanish I’m from the middle of world Ecuador.

Artist in heart and hands with my love to give as my dreams to my loving Papi, take almost half of my life to find him, and now we are together living this challenge situations where the faith, is in my heart as a rock that we’ll do it.

"Life is whisper of melodies where anxious wait for magical events".

ditto1
Posts: 634
Joined: Mar 2012

Sorry you had to find this site but it will be a God Send to get you and Papi thru this.   You may wish to give more information as to what he was diagnoised with so folks that have the same or similiar cancer can offer there thoughts.  I had Base of Tongue cancer from March of 2012.  I had 33 radiations treatments and 2 cisplatin chemos as well a 9 erbitux chemos.  Made it thru ok, it was tough at times but I made it and Im supposedly cancer free for now.  I did not need a Peg or Port but many likely most going thru this did.  So we will be here for you.  You may also get lots of information from the Super Thread which is the first post its for information purpose only not to post on.  So after reviewing it if you have questions please present them and trust me you will get answers or clarification.

fishmanpa's picture
fishmanpa
Posts: 1131
Joined: Jan 2013

Hi Ditto,

June is my Chiquita, Marcia. I posted a thread the other day concerning her welfare and well being as my caregiver. I encouraged her to reach out as everyone here has been awesome. 

Thanks for reaching back!

"T"

Tx N2b MO Stg IV - Surgery to remove tumor, excise left BOT lesion/biopsy, and laryngoscopy (again) Feb 7th. Goal is to find primary. Treatment to start 4-6 weeks afterwards. 6-7 weeks rads with possible weekly chemo (Cisplatin). 

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi ditto, we are waiting for his surgery and results after that, to continue with the specidic treatment, they need to take more example of tissu and

the doctor will removal the nodulo of his neck, after all that result we'll have the specific plan for him.

zaac23
Posts: 24
Joined: Dec 2010

ONE DAY AT A TIME

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Yes one day at time until we go trough,

blessings,

 

 

katenorwood
Posts: 1862
Joined: May 2012

Hello there !

Your post touched my heart deeply !  Welcome to our site. Keep asking questions, and continue to love your Papi "T".....he is a very lucky man to have you in his life !   Katie

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi Katy, so sweet to said that to me, you are a very nice women, 

we all are in a big storm now, but God will help us to swing in, he's

the only one that will help us, blessings for you!

june

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Welcome June...

With words as yours, I can very well see a possibility of putting lyrics to the T-Man's music....

Best ~ John

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

thanks to be welcoming T-Bone and with all here in this site.

My Papi, is ready the sinfony in my live, for now we are in the big silens of suspencce.

As we'll manage all will return with most armonious melody, as partners, lovers and 

friends that we are together.

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

June,

so glad you've joined us, hola!

i know how you feel, I have been there - don't worry, you'll know what to do and how to help him...

When we are faced with huge challenges, we learn how to get through it one day a time, one task at a time. You will do very well. And we will be here for both of you whenever you need us!

bienvenidos!

Kari

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi Kari,

thanks for your words, i been preocupay if I'll be anough for all and manage his

care, and do all right and perfect, be as you said is and will be a challenge and

I'll have all together day by day, and every task I'll be able to manage, with 

the help of yours I sure will be fine, Thanks...

June

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

Marcia??  You answered much of your question yourself.  One day at a time is the only way to go with this disease.  I know it's hard to stay in the day, but you'll have many days to practice this skill...sometimes it's one hour at a time....you will do fine, I just know it!!  T knows that you love and care for him, so when you have to get tough, he'll know it's all because you love him.

Stick close to this site, so you can ask questions....there is so much practical knowledge here!  You won't be led astray...everybody here has gone thru treatment either themselves or as a caregiver. 

Oh....and welcome!!  I'm so glad you decided to speak up!

p

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi P, 

thank you, yes I'll be a new student as caregiver, I really I care a lot my honey loving Papi,

and only think I don't want mistakes with him, but I'll have the support of all here, so my

approach of knowledge of the people from here, will be my tool to faith and care with his treatment.

Thanks again,

Blessing to you!

Marci

CivilMatt's picture
CivilMatt
Posts: 3090
Joined: May 2012

Hi Marcia,

 

So you were the lady holding Socrates, what a BIG beautiful cat.

 

You will do fine, your boy T has quizzed us to the point he is ready to be a very nice patient.  We opened up the floodgates of information to him and we would be happy to help you in any way we can.

 

Best,

 

Matt

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi Matt,

I been student in different situations, only this a little challege, but here with the support

I'll become brave to embraze and do my best, caring all true his treatments, besides

if I have questions, somebody here will reach my hand and will give me the right answer,

I'm very happy that i'm not alone in this battle.

 

blessings,

Marci

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

Welcome, sorry you have had to join us

my suggestions are

- there is nothing you can say.... just be there, smile, and be positive with all your words

- this is Papi's was and your with him to win his daily battles... when he wins his daily battles he will win the war

- encourge friends and family to send cards to Papi, they don't have to write anything just their name.... that will be enough as he will be thrilled that someone has taken the time just to send the card.

- for yourself.... Believe all will be fine and all will be fine. 

just by taking the time to come here show how much you care and love your Papi

john 

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Hello Marcia and WELCOME...

Glad you are there to support the T-Man.  He is very lucky to have you in his life.  Sounds like you both know the path you are about to walk down.  It will be a battle for sure, but it is very doable.  You will be a terrific caregiver.  We have given T-Man lots of advice, so when it is time to be tough on him, just do it.

If you haven't already done so, check out the Super Thread on the first page here.  It is full of helpful tips and tools to help you both get thru the next few months.  And know that you have a huge support network here whenever you need us.  Don't hesitate to ask questions...we are happy to help.

Good Luck to you both.

Ingrid

Stage III, tongue cancer. Surgery 1/3/11 to remove 70% of tongue and replaced with forearm freeflap, 30 days of radiation, no chemo. all clear since.

 

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi John,

Thanks for the advice, I like the idea of my Papi receive cards...I'll made an album

of good feels and positive thoughts for him, will help to keep moving forward 

one day at time...

best regards, 

Marci

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

my art work:

http://youtu.be/0x37Xo_6vOU

 

 

 

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

Marci,

i just viewed your YouTube video.. Your artwork is amazing, very nice!

And nice to hear "T"'s strings as well.. :)

thank you!

Kari

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

very nice work Marci

thanks for sharing. 

john 

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

My boyfriend has SCC Base of Tongue cancer since Oct of 2012.  He has 5 of 35 radiations treatments left and 3 cisplatin chemos as well a 3 erbitux chemos. He is doing well. No PEG-his dr wanted him to keep swallowing the whole timethe throat can get lazy if not used. But some people need it. He carries a water bottle around everywhere and takes sips all the time. His mouth is very dry and not hurts (on fire) Muguard is a great thing to help coat the mouth and thoart. Je does salt water and baking soda now. We just got a rc for magic mouthwash.  He eats tiny meals all day, a cup yogurt, some eggs, pudding, shakes made with ensure, protien powder, ice cream & banana's,mac/cheese/spanish rice(which is good a lot of flavor) With rads your taste buds get damaged -so no taste. that comes back in time.  He has lost about 17 pounds-which the Dr is happy with since they said in the beginning he might lose 40-45.

What I do is just be there, make foods that are soft and flavorful, make sure he takes pain meds before the pain gets to bad.

Keep visiting and keep in touch. This site is a godsend-many great people I would call my unmet friends and family

Sue

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

My boyfriend has SCC Base of Tongue cancer since Oct of 2012.  He has 5 of 35 radiations treatments left and 3 cisplatin chemos as well a 3 erbitux chemos. He is doing well. No PEG-his dr wanted him to keep swallowing the whole timethe throat can get lazy if not used. But some people need it. He carries a water bottle around everywhere and takes sips all the time. His mouth is very dry and not hurts (on fire) Muguard is a great thing to help coat the mouth and thoart. Je does salt water and baking soda now. We just got a rc for magic mouthwash.  He eats tiny meals all day, a cup yogurt, some eggs, pudding, shakes made with ensure, protien powder, ice cream & banana's,mac/cheese/spanish rice(which is good a lot of flavor) With rads your taste buds get damaged -so no taste. that comes back in time.  He has lost about 17 pounds-which the Dr is happy with since they said in the beginning he might lose 40-45.

What I do is just be there, make foods that are soft and flavorful, make sure he takes pain meds before the pain gets to bad.

Keep visiting and keep in touch. This site is a godsend-many great people I would call my unmet friends and family

Sue

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Thank you Sue,

I like this is an idea what will help me and get prepare, I love cook, and I could made very taste

Soft diet for him, hoping Papi doesn’t get tired of the same diet all time, that’s all.

Blessing for you and your partner, you are doing a good job keep it up… =)

 

Marci

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

about the things that helped me get thru treatment, aside from the Dr.'s and the moral support I got here....but the physical things i had around me...and came up with MILK.  Yes...moo juice.....I hadn't drank milk in 30 years, but once treatment hit about the 3rd week, I had milk in the refrigertor at all times.  I could taste it when I could taste nothing else....I could mix it with foods that otherwise would be too sticky or thick.....I used it to thin out the Boost that I poured down my tube.  I went thru about a gallon every two days.  It's the perfect partner it's got lots of calories, it mixes well...and for some reason it can be tasted long after other things have gone to the tasteless list.

p

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

I do love milk, is something I always have in my fridge 100% a gallon all time, and always advice to Papi, and,  as you said is been you friend in diet, I’ll go for it, beside I drink too.

Thanks, blessings.

Marci

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Happy that you found this message board. We do care about one another. Your English is fine, and your words do show your love for your father. As much as possible, try to keep him eating and drinking water. I found that food/drink at body temperature was less painful than either hot or cold foods/drinks. Not certain it will work for your Papi. However, warming food/drink (like you were giving it in a bottle to a baby) may be worth a try. But that's a little later. Take care. Rick.

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi Rick,

“T” is my loving partner, sweet heart, honey loving “Papi”. I said Papi, as expression of love and affection, he loves hear too. Over South America, wifes said to their husbands most the time, my mom said to my father as my grandmother to my grand Dad.

Thanks for your advice about liquids and the body temperature with all the food and drinks.

Blessing,

Marci

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Illustration for my Papi CDmy art work for my Papi CD"A Child of Lir"

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

I do a little art on the side now and again also...

Best ~ John

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

when you have time could you post some of you are work here or your web site...will be awesome

see what type the style you have..have a wonderful week.

 

Marci

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Here are a few... I mainly work in acrylics or prismacolor pencils;

Mayfaire Swan

Learning Tree

Shelley & Sweet Pea

Tommy Boy

First two are acyrlic, portraits are PrismaColor colored pencils...

JG

 

 

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

John

your work is amazing...I think you missed your calling as an artist.

You could have definitely made it a career.  Especially love the one with Shelley and her pup.

 

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

you are wonderful artist...as you i like paint acrylics and birds also...EagleBlue EronEgrets

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

I Love your work also ! Very Pretty !!!

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Very cool...

You must be coastal, Great Bblue Heron, and Egrets... I like the Snowy Egrets in their mating plummage with their long plumes and the yellow feet...

 

Thanks for all for the compliments, and Marci for sharing...

JG

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

Marci ... the bird on the branch is breathtakingly beautiful !  Every detail from feathers to branch seems so real that I would not be surprised to see this bird take flight if I move and startle it while looking at it. Thank you for sharing your talent with us.

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

Double Wow ! Your work is amazing John !!

donfoo's picture
donfoo
Posts: 1327
Joined: Dec 2012

Did you learn to paint you or pick this up to fill time found by the big C?

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

The birds are so perfect, they look like photographs and that portrait of the young boy is even nicer than the photo used as the model.  His parents must be very pleased with the framed results.  After seeing all your fishing photos and thinking of you as an avid outdoorsman, I am absolutely blown away by finding out that you also have this amazing artistic ability.  Now I find myself wondering if you have any artwork with fishing as the subject matter. 

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

AP, actually no..., LOL

And to answer Don, I have always had the gift, inherited from my mom and grandfather... Neither as advanced as mine has developed, but still yet they had the talent of working with their hands.

I've always been able to see something art, crafts, wood working and be fairly good at doing it or picking it up rather quickly. I haven't had any formal training, just involved with it.

My son JP has actually developed his abilitiy to make a very good living, went to school at University of North Texas for Commercial Art. He is now an art director for a company based in San Fran.. He has worked on projects with PriceLine, Columbia Sports Wear, Radio Shack, Mini-Cooper of North America..., met William Shatner, Lance Armstrong... he has done very well.

Though fishing is a passion, my art has never really moved in that direction.

I have always been good at portraits, so in times when my income was low for one reason or another, I would do portraits as a side.

The birds and wildlife came form my style which is very realistic, actually called Representational. I like the detail.... Anyways there was a pretty big popularity of stamp competitons, duck stamps, turkey, etc...and a huge print market back a few years ago, so that's when I started doing birds and such... Plus Florida has a pretty good population of birds and breeding grounds.

The swans are a symbol of the city I live in, Lakeland, Florida.. The swans here are actually descedants from gifts given by the Queen of England.

Swan Babies

 

 KW Cookie Company

 

JP & Taz

JG

 

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

John,  I can discern that the boy with a cat is a portrait and the baby swans must be a painting since your signature is on the lower left ... but I am left wondering if the building with Key West on the blue awning is a photo or a painting.  If it is a painting, it looks amazingly real ... like a photograph perfect enough to be used by the chamber of commerce on postcards. 

Your son inherited a wonderful talent.  I am always in awe of people like you who are able to create without formal training.  Being able to draw like that is like being able to play music by ear without being able to read music.  I can neither play music nor draw/paint on a canvas ... which may make me a better audience because I am so impressed with those of you who have those natural abilities. 

Just simply WOW.

 

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

TY..., it's a painting, you can barely see my name to the bottom right of the bench...

I like the Key West Theme also..., from a trip I took down there a while back;

Pub

Yellow Awning

I did this chipmunk as a miniture, it's only about 3" x 5";

Chip

JG

JUNE6764's picture
JUNE6764
Posts: 19
Joined: Jan 2013

Hi, all you are work is so awesomw...hoping you keep working doing some paintings again, is always nice 

admire so much talent, keep busy and share in the future you art wotk.

Thank you for share with us.

 

Marci

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Thanks, and you as well please....

Love seeing what other people have as talents and past times...

Best ~ John

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