CSN Login
Members Online: 6

My new Acronym

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I just received the results of my every six week CT of my neck and chest. Instead of being NED, I am now being called NEMD. No evidence of Metastatic Disease. I am set to have my last treatment of my clinical trial on 1-28 of Carboplatin and Erbitux, and the continue on Erbitux every Monday for as long as it works.I guess since I am only considered treatable or palliative care is why they call me NEMD vs NED??

Hell, I will take anything that starts with "no evidence of" 

Here is to riding the wagon until the wheels fall off!!

Mike

jim and i's picture
jim and i
Posts: 1666
Joined: May 2011

NED sounds good to me, especially if you can handle the side effects of the erbitux. Jim refused further treatment with Erbitux but he is a lot older than you are so it was harder on him. I pray you find a solution for the craked feet and remain NEMD.

Debbie

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

Mike,

My  4'8" 83 year old mom would stilL bop me in the back of the head for name calling ... But ...NEMD....nananaaaa... NEMD ...yes!!!!! Congrats !!!!!

linda

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

i use a product by CND for dry feet and heels; it's a cucumber cream I get it from the place where I get mani/ pedis.

 

linda

 

 

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Errr.... I mean NEMD, LOL...

Congrats brother..., I'm with you, if it starts with NED, it can't all be bad.

Prayers for many many years Captain NEMD.

John

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

Mike,

Sounds like you got the best news you could expect.  I am glad treatments are working and I hope they do for many years to come. 

katenorwood
Posts: 1853
Joined: May 2012

Mike,

Fantstic news !  NEMB.....love it.  It's amazing the names the medical proffession comes up for us hunh !  But I'm in total agreement anything that starts with no evidence of....we'll embrace with joy !  Way to kick butt Mike !   Katie

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Hey Mike

CONGRATS.....finally some great news !!   So glad to hear the "NO" part for sure.

It's about time we had some good news on this site. 

I think we all needed to hear that, so way to go !

And now it's Happy Dance time.

Laralyn's picture
Laralyn
Posts: 454
Joined: Apr 2012

Here's hoping many more NEMDs to come!

fishmanpa's picture
fishmanpa
Posts: 1127
Joined: Jan 2013

That's Great News Mike!

Based on what you're saying, you're still being treated for the primary and they're making sure they have it contained. Sounds to me they're saying it hasn't spread past the primary site and that's good news! Keep on keeping on..it's encouraging to read a positive report!

"T"

PS... I used to push that kind of weight :) With that bald head from behind we could pass as twins! ~lol~

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

My primary was head and neck and after 22 months of NED, it metastasized into my lung and lymph nodes in my mediastinum. I now have 12 weeks of no visible tumors in my chest. You look like you throw around some weight in the gym, like me, did the heavy stuff come to an end after cancer treatment? 

Best

Mike

phrannie51's picture
phrannie51
Posts: 3822
Joined: Mar 2012

Wonderful on the lastest scan, Mike!!!.....I'm like everybody else..."No Evidence........" is the perfect start of any acronym around here, and I'm delighted to hear they have given you that label.

p

fisrpotpe's picture
fisrpotpe
Posts: 1343
Joined: Aug 2010

i love the choice of accepting NEMD..... that is wonderful news 

 

keep fighting the fight and we will continue to be here for you and say our prayers as the evidece has proven prayers are making the difference. 

i know you may not feel like dancing, so maybe you can do a tap dance for NEMD 

john 

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Great news bro’!!!!!

(And John, he can dance.  He says he lifts weights, but I’ve seen him – he gets all his exercise from Zumba and Jazzercise classes.)

Time to hook up for a cup-a-joe, Mike!  Keep those wheels a-rolling

Greg

 

 

 

donfoo's picture
donfoo
Posts: 1316
Joined: Dec 2012

Either way it sounds like news. Hang in there and keep striving for more NExD reports! Don

CivilMatt's picture
CivilMatt
Posts: 3069
Joined: May 2012

Mike,

 

Great news!  Glad to hear good results from treatments.  Keep improving.

 

Best,

 

Matt

patricke's picture
patricke
Posts: 488
Joined: Aug 2006

Hey Mike, congratulations on the great news; you go guy, and ride that wagon, ride it like the wind!  HERE'S WISHING YOU CONTINUOUS FINDINGS OF NEMD!!

PATRICK

hwt's picture
hwt
Posts: 1991
Joined: Jun 2012

Sounds good! You are so deserving of the positive news. I am happy for you and your family. Do something fun to celebrate.

 

Candi

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

Such amazing news! I am so happy for you!!
Are you taking anything to combat the erbitux side effects?
Billie

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I am taking Minocyclene to try to dry out my acne, but I have gotten staph twice now. I have also been prescribed 5% Benzyole Peroxide body wash, both of which do not work to my satisfaction. The most painfull side effects are the skin cracks and ingrown nail type issues that really hurt, and keep me from going to the gym when they are really bad. I go to see my Oncologist  on Monday and plan to pin him down for some solutions to these issues as having to accept these obstacles will not be acceptable for me going forward. 

Mike 

ausrebel53's picture
ausrebel53
Posts: 74
Joined: Dec 2012

Hi Mike (love4lacrosse), my chemo doc told me last night that when on erbitux the worse the acne the better the treatment is working against the cancer. He said that while the side effects can be bad they also indicate effectiveness of treatment. Perhaps it may sound strange but I was encouraged by this, he also said the side effects would disappear almost immediately once treatment finished. Hope this helps

regards Michael

 

 

AirForce Vet's picture
AirForce Vet
Posts: 25
Joined: Feb 2012

Super, super news!!!! keep fighting the good fight.  You are a real fighters!

Joe

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Great to hear this, Mike. Don't post as much as I used to, but check in daily to get updates, and this was great to read.

Had a Dr a long time ago who had an MD in front of his name, and kinda think he shoulda had NEMD:  Never Earned Medical Degree!

kcass 

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

I'm sooo happy for you! This is just wonderful!!! No evidence of... Wonderful start of a sentence!! Just keep on keeping on!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network