Jan 18, 2013 - 8:00 pm
I am new to this site and I am so happy to find other women who understand what I am going through. In May 2011, at the age of 35, I had what I thought was a blister that turned out to be vulvar cancer. I had never even heard of that type of cancer and wish now I never had. A week after being diagnosed I had my first of 11 surgeries. It started with a vulvectomy on the left side, a week in the hospital and a scar down my leg. When I went in for my four week check up the cancer was now on the right side so the next day had a vulvectomy on the right side. I really hoped then that would be the last of everything but boy was I wrong. A few days after I got home all the stitches busted and had a giant hole in my leg. They put a wound vac on to help my heal quicker and I must say that was a nightmare. Once the wound vac came off the doctor found some new spots that had appeared in the four weeks I was down on the wound vac. That was the first of 9 laser surgeries. Everytime I go for a follow-up there are new spots and go in for an outpatient laser. I actaully have been okay with this process because I feel like my doctor is catching it early and anything is better than those vulvectomys. But last Friday I had a laser and my doctor called me this week and said that the biopsy from the laser showed the spots were no longer pre-cancerous. I was so confused and sad....I actually to leave work. She said I have to have a hysterectomy immediately and start radiation soon after surgery. I feel so beat down. I thought after the year I had in 2011 things would get easier but now I am afraid I am facing more of the same. I try to stay positive and have a good outlook but its hard. I have been doing research on the radiation but I truley have no idea what I am walking into.
Anyone who has been through this and can offer advice or positive words I am in desperate need of it.