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prognosis

Rashmi sandeep
Posts: 1
Joined: Jan 2013

hi....my grandmom was recently diagnosed with cancer....she had stomach ascites that developed recently.....she also has shortness of breath and back ache ..when the ascitic fluid was tested it showed atypical cells.....but her organs like liver, kidney and her gastro intestinal tract and the intestines are found to be free of malignancy....doctors suspect it may be peritoneal cancer or ovarian cancer.....as there is still a debate on which is the primary site they have decided to go in for chemotherapy....they ll be starting next week....she is a 72 years old dynamic lady.....can anybody share the information abt ur experiences so that it throws some light on my grandmothers condition and the treatment prognosis....i pray and hope for the best....

thank you

 

 

seatown's picture
seatown
Posts: 217
Joined: Sep 2012

Hello --

Your grandmother's circumstances sound almost identical to mine last July.  I also had ascites with malignant cells but no involvement of most major organs. I was ultimately diagnosed with primary peritoneal carcinomatosis & began chemotherapy, to which I have responded well so far.  You can read the details of my progress to date at 

www.CaringBridge.org/visit/CaroleSeaton

Best of luck to your grandmother & all your family.

PatsieD
Posts: 100
Joined: Jun 2012

I'm sorry to hear about you and your grandmom .. and the family. It's hard isn't it? I'm sure Seatown's story will tell a lot of what you want to know. Mine's a similar story too. x

 

 

PatsieD
Posts: 100
Joined: Jun 2012

I'm sorry to hear about you and your grandmom .. and the family. It's hard isn't it? I'm sure Seatown's story will tell a lot of what you want to know. Mine's a similar story too. x

 

 

riverbend05
Posts: 2
Joined: Aug 2012

i was diagnosed with primary peritoneal cancer in August.  I am stage 3.  I had a regimen of carbonplatin and taxal.  taxal everyweek and carbonplatin with taxal every third week   This went on for 18 weeks.  I have just returned from having a port added to my belly as the dr wants to also hit the area directly.  After the first treatments i went in for surgery.  It was non-invasive and they are now reviewing a tissue sample to make sure i am cancer free.

it is a rare cancer.  Doctors treat same way as ovarian cancer.  My doctor still categorizes mine as ovarian since that's is where it was found...i dont have ovaries however.

Do you know if you grandmother has a brca 1 gene?  The gene seems to respond well to this cancer regimen.  The breakthroughs are amazing.  I thought when i first heard that it would be a real up hill battle but so far so good.  The best news is that the diease has not been found in any of your grandmother's organs.

 

The diease is hard to treat because it is not localized. Your grandmother should be going in for a cure and sounds like she will be ok. There are some great support groups out there including Gilda's Club.  kathleen

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