Jan 17, 2013 - 8:15 am
Remember that song by Ace?
A question I posed in my first thread post, I'm posing to the group.
Two part really. How long was it from the time you were first diagnosed until you began treatment? Also, from the time you got the mask and had the simulation done until the treatments started?
I had my visits with the radiation and chemo oncologists a week ago. They made the mask and ran the sim. I figured I'd hear something this week. I called yesterday and was told it probably would be a few weeks. A few weeks? I was under the impression from the way they were talking that I would be starting in less than two weeks which would mean having the schedule done this week and starting the week after. I was a little upset and unfortunately I let that show to the poor gal on the phone.
Meanwhile, since I was diagnosed, the tumor has grown from 3.1cm per the CAT scan Nov 14th to 5+cm (but under 6) as of last week. I'm not in any real discomfort but I feel it there. The only real symptom (which is worsening) is a clogged ear and sinuses on the left side of my face.
While I'm not looking forward to treatment, I'm chomping at the bit at the same time. I have this monster inside of me having a field day on my cells and body and I want it out!
Later yesterday afternoon, I got a call from the head of Medical Oncology at the hospital who got wind of my frustration. While I wasn't thrilled by everything he had to say, he explained to me the process and was quite the diplomat. We spoke about scheduling and times and he's supposed to give me a call today with some news and information. It just seems things are moving so slow. I had a heart attack in 2007 and was under the knife for bypass surgery in 5 days. Now I have a "Jack" in my neck and it's been 2 months!
What was it like for you? Did it seem as if the sense of urgency was missing? How did you deal with the waiting?
"The Waiting is the Hardest Part" Tom Petty