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Inlyta Information

KJones1969
Posts: 158
Joined: Mar 2012

Okay so after being back at the doctor this week my husband is now going to try Inlyta. He isn't to happy about it and said if the side effects were like Afinitor he wouldn't stay on it. His latest scan showed his cancer that had spread to his lungs has grown quite a bit since October. Everyone please keep him in your thoughts and prayers.

I have read a lot on different sites about Inlyta but was wondering if anyone has and first hand information on it. Thanks for the information in advance.

ksaldivar1
Posts: 10
Joined: Jan 2012

My Husband has been on Inlyta since April 2012.  He had a met to his adrenal gland which has shrunk as a results.  His biggest complaint is lack of energy and being tired all the time.  Nausa has not been too bad other complaints include his mouth and nose being raw from the meds.  Good luck, I hope if works for him.

KJones1969
Posts: 158
Joined: Mar 2012

Thanks for the information. My husband had a terrible time with Afinitor and I hear of lots of other patients that have seen good results with it so I am hoping Inlyta is good to him. He started it Inlyta last week and just is tired as usual.

 

Sound slike your husband has done well on it. Good luck to you in the future.

Gordon Charles's picture
Gordon Charles
Posts: 91
Joined: Jun 2012

Greetings:

 

I was on Inlyta for a short time but my BP shot up and so off I came.  My oncologist was very disappointed because he had seen good success with Inlyta.

 

Good Luck !!!!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Hi Gordon.  That seems a shame.  May I ask what BP med(s) you were on and why your onc didn't try to get better BP control rather than take you off a drug that was benefiting you? I do appreciate that it's a difficult cost/benefit analysis.  Is the move temporary, such that re-challenge with axitinib is envisaged as an option?

Gordon Charles's picture
Gordon Charles
Posts: 91
Joined: Jun 2012

Greetings T Wedge:

At the time I was dancing through various drugs and my hypertension has been a chronic thing.  A little Lisinipril 20 then raise to 40 as a base then Doxazosin 4 for my prostate with the benefit of a bit of bp control.  Fish Oil thins things out and Norvasc added it's two cents but it brought swelling as well.  I suppose my 50 extra pounds might not help much either.  And with all that, the first look after starting Inlyta didn't show significant results.  I imagine I could always swing back to Inlyta when my Afinitor gets tired of working, they seem to love to test various combinations and sequences.  I may sound a bit flippant, but I am realistic about the outcome of things and have the benefit of glorious insurance from my employer.  While there is always the hope for a significant advance in treatment, either a cure or at least a consistent chronic state, the results will ultimately be the same in the end.  I find it most comforting to know that I have a pretty good idea of what's going to kill me and have come to the conclusion that I'll simply take great joy in the fight and grin outrageously in the face of death.  As I always say.... Take No Prisoners!!!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Well Agent P, you sure have had dealings with a lot of other agents and I like your style!

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