Jan 16, 2013 - 10:52 am
I had a PET Scan on Monday. If any of you had seen my previous posts under GOOD NEWS BUT.... you will know where I was in this process. In short, after my original diagnosis nothing showed up at all on my CT or MRI. They put my case in front of the tumor board last Thurs. They called me after the meeting that day and said they would like to go ahead and do a PET Scan although they did also all agree that the standard protocol for treatment is being recommended. So, I have the PET on Monday. The chemo Onc office calls me that afternoon and schedules me to meet with him again this Thursday. Now, this morning, the Rad Oncologist (really like him) calls me and gives me the results of the PET. I have a very small spot that lit up on the right Labia and a big area that lit up brightly in upper lymph area (not groin area, he says up more by pelvis waistband area). He said he couldn't believe it since MRI was clear. Good thing they decided to do the PET. They are having me see a Gyn Oncologist and he is requesting that they do a biopsy (I guess both spots?under anesthesia). He doesn't feel that this is the area that anal cancer nornally travels to (not saying it's not). He wants to find out if I have a second kind of cancer before starting treatment. He said they want to stop and take a step back to re-evaluate. He said it could change both his and the chemo Onc treatment plans if not same kind of cancer etc... Has anyone had this type of situation? And has anyone dealt with Labia cancer? I really just want to get started with treatment. I'm frustrated now. I went from not sure what they were doing to do, to okay we're going with the protocol. I was ready to do and fight this crap and now I'm at a stand still again. Probably for a couple more weeks. The GYN Onc office just called me while I was typing this. (they do move very timely at my medical facility) they made the appointment for next Wed. with this Dr. UUGGH, another week of waiting. Then after my regular appt with him I know I'm going to have to be scheduled for the surgical part. More waiting. Also, has anyone seen an Oncology Psychologist? I'm a wreck!! Anxiety through the roof. Have an appointment for a massage this week hoping that will help too. Thanks for any help.