Jan 16, 2013 - 9:03 am
Good morning - Just a brief summary....my husband was diagnosed with Rectal Cancer on May 8, 2012 there were no signs of it in his lungs or liver although it was all the way thru the wall of the rectum, etc. He had radiation with Xeloda for 6 weeks and basically had no side effects...he got a little tired. End of August was his surgery to remove the remaining tumor and cancerous tissue. We had been told that the tumor was excessively low and they weren't sure they could save any of the rectum but my husband told his Dr that he wanted him to try everything possible to avoid a permanent colostomy. End result of the surgery was entire rectum removed and colon was attached to anal area. After 10 days we went home to Maine (surgery was at Memorial Sloan). His pain was incredible.....it never lessened up and finally after 3 wks someone listened to us and his Dr in Maine and his Dr in NY got together and ordered a CT scan to see what was happening. Long story short....a large pocket had formed down near where the colon was attached to the anal area. It was very infected. We went back to NY for supposedly 3 days and we were there 31...17 of which he was in the hospital. The only way to try and heal this pocket was with what they call an Endo-Sponge. They are used all over Europe and they are starting to gain popularity here. It worked and even though he still has the pocket it is much smaller and they will deal with completely closing it up after his chemo is finished. He was supposed to start chemo in Sept but because of the pocket issue he just started on Monday. We go in today to get it disconnected and do it all again in 2 wks. So after all of this here are my questions: 1) Has anyone else had Xeloda and then chemo infusions and found any correlation in the side effects? 2) We were really expecting an intolerance to cold and he has yet to experience it yet....it's been warm for Maine so far this week...around 30 during the day so it hasn't been excessively cold but he was outside yesterday and nothing. 3) Has anyone else on here had their entire rectum removed and been successful in not having to have a permanent colostomy.
Thanks everyone - I appreciate any comments, thoughts, etc!