CSN Login
Members Online: 8

1St PET scan after treatment

cnewtrn
Posts: 28
Joined: Nov 2012

Hello everyone.  My dad is having his first PET scan after 4 cycles of R- CHOP for stage 3 B cell lymphoma.  does anyone know tthe statistics of how well the treatment works?  I know this sounds like a dumb question but I need to prepare myself as I am afraid that if he is not responding, then he will not continue the treatment.  I have tried to research the statistics, which seem fairly high for a remission rate but thought I would put it out on the table as you are all so very educated on this topic.  The waiting 6 days to review results is killing me

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 996
Joined: May 2012

Cnewtrn,

How many cycles is your dad  scheduled for ? Was he planned for only four cycles, or several more ? Some people take as many as 8, 10, or 12 cycles of various chemos, depending on what the doctor feels is necessary.  If he is scheduled for numerous more cycles, the doc may be checking at this point just to verify the sort of progress he expects. On the pther hand, if he was initially scheduled for just these four, then he may be hoping for full remission at this point, if the clinical objective was  full remission.  One more question: Is he scheduled for any radiation ? Some people on chemo get some radiation, and some do not.   Review his treatment plan and you will have a better expectation of what to look for when you go for the results. I hope all is great for the both of you !

max

cnewtrn
Posts: 28
Joined: Nov 2012

He is scheduled for 6 cycles of RCHOP with no radiation.   Then oncologist said it is her protocol to do a PET after cycle 4

cnewtrn
Posts: 28
Joined: Nov 2012

He is scheduled for 6 cycles of RCHOP with no radiation.   Then oncologist said it is her protocol to do a PET after cycle 4

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 996
Joined: May 2012

In a best-case scenario, then, the doc most likely expects the cancer to be eradicated, or close to it, at this point, since they usually give an infusion or two after eradication to lesson the liklihood of recurrence. Either way, recall that almost all forms of lymphoma are very treatable.  Lack of full remission at this point would NOT be a diaster.

Increasing fatigue as chemo goes on is the norm. I was sleeping 17 hours a day by the time I finished my 12th infusion.

Max

allmost60's picture
allmost60
Posts: 3147
Joined: Jul 2010

Hi,

 I had 6 rounds of CVP-R chemo for my Follicular NHL. I did very well and so far after 2 1/2 years of treatment and maint Rituxan, no new problems have developed. What is your dad's sub type? It would help to know, as others here may have the same sub type and will have first hand info to share with you. Waiting for scan results is very hard on all of us and we can relate 100% with how you are feeling. My prayers are with your dad that the chemo is doing it's job. Please share back with the results of his scan. Best wishes...Love, Sue

(FNHL-stage3-grade2-typeA-Dx 6/10-age62) 

cnewtrn
Posts: 28
Joined: Nov 2012

Congrats on your results. I am not sure what subtype he is.  my dad has done very well with he chemo except for the worsening fatigue. May he have the same results as you

po18guy
Posts: 237
Joined: Nov 2011

Welcome to the forums! All cancer treatment has side effects, and some of them can be quite noticeable. Fatigue is very common and can range from mild to severe. As he continues on treatment, various other side effects will arrive, most likely. These can be quite concerning, but are a natural product of the serious work that is being done in his body. As long as these effects are pointed out to doctor, some steps might be taken to help minimize them, or help him to live with them. They are a fact of all cancer treatment, which is poisonous by its very nature. As you see these effects appear, it is helpful to realize that they are normal, and to try to keep the larger picture in mind. There is a war be waged against a deadly disease, and all patients are wounded to some degree in this war. The point is to make progress against this enemy, and to preserve as much life, and as much quality of life as possible. Watching someone else go through treatment can be even harder, in some respects, than receiving the treatment as a patient. We do not know the outcome yet, so the best advice I can give is to simply enjoy being with him each and every moment. All the best to you.

Folks24
Posts: 95
Joined: Feb 2007

I had my first scan after 3 treatments.  I assume they do that to see how you are coming along. I had a PET after I finished 6 chemo rounds of R-Chop. The oncologist told me 6 was the "normal" treatment number but I know many who had 8.

As to symptoms, everyone is different.  My symptoms seemed to hit me 6 days after the chemo (I had 5 days of prednisone after each chemo treatment) and lasted a week or a little more.  Honestly I never really knew how I would feel from one day to the next which was very irritating.

As to him not responding, he will probably feel and maybe look like heck. You can't go on appearance alone. I got a blood panel taken everytime I went in for chemo to monitor me. I think from the blood test the oncologist decides the amt, etc of the chemo to use at that time?  The oncologist should have given him a list of symptoms and those things to watch for so if needed he would call or come in.  After awhile, you learn to listen to your body, know how you feel and what is unusual.  

Good Luck! 

jimwins's picture
jimwins
Posts: 1970
Joined: Aug 2011

Hi cnewtrn.  I pretty much agree with everyone else here.  I think I had my first pet scan after cycle 4 and the results were good but we stayed on the 6 cycle track (R-EPOCH, similar to RHOP).  I hope things go well and yes, the waiting for results is a real bummer. 

Jim

cnewtrn
Posts: 28
Joined: Nov 2012

Well he got his results which showed " no signs of lymphoma"

he is thrilled, like a new man who has a different outlook.  He has 2 more cycles oof chemo aand then I am not 

sure what the plan is.  Thank you all again for your words of wisdom.  I am sure that I will still have mmany more questions

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Way to go !!! So glad to hear those results. John

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

CNEWTRN

That is great news. All the best to you and your dad. 

 

Emily

 

jimwins's picture
jimwins
Posts: 1970
Joined: Aug 2011

Super great news!  We love to hear it.

illead's picture
illead
Posts: 474
Joined: Aug 2012

Congrats to your dad.  Lymphoma usually responds so well to treatment and so glad that is the case for him.  Now you all can get on with your life, one less bump in the road.  Do the dance of joy.  Bill and Becky

 

Bill: Mantle Cell, stage 4 dx 7/11.  9 cycles Bendamustine/Rit, 1 yr remission 

allmost60's picture
allmost60
Posts: 3147
Joined: Jul 2010

Hi,

  Oh, that is great news! How relieved you all must be feeling! Onward and upward from here on, so keep the faith and blessings to your dad from me! Let us know how things go for him when you find out whats next on his agenda.

Love...Sue (FNHL-2-3A-6/10) age 62

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network