Jan 14, 2013 - 8:56 pm
Lucky to get this cancer out fairly early but need the radiation to complete the treatments.. Looks like 7 weeks @ 5 daily treatments is fairly normal. However, I am only getting my right side treated with radiation. Expecting week 3 to be beginnings of the pain and sore throat but hoping not to need the PEG. and grand visions of being able to continue working for most/all of the treatments.
Yes, this is related to HPV+ so that seems to make full recovery a much brighter option.. Still nerveous as ever about the whole process and saw some great advice about garging with salt water-baking soda at least daily or as often as needed. Still have pain meds from surgery-Liquid Perqosets but wondering if the others mentioned here are better. Peqs make me sleepy and a bit loopy so another option wouldbe great.
Going to Lahey Clinic in Burlington, Mass for treatments and will need to check if they are using the latest IMRT radiation, that I suspect they have available. Never even heard of that before I found this site. Speaking of being a novice, I have never been in a hospital or had surgery until this treatment. I was told the surgery was more than a standard tonsil surgery due to the expected presence of cancer, which the pathology confirmed afterward. Still having trouble opening my mouth after 4 weeks post-surgery, but I'm eating regular foo, just slower.
The support looks like a really good idea and my wife here to help is going to be key.. There are some pretty scary descriptions of people's experiences here and all are incredible examples of strength and determination to succeed in beating this disease. I have lost a number of family and friends to cancer, so its a personal experience with a lot of bad outcomes. Each success brings more hope.
I will be checking in here as my treatments continue as I expect many others have done. Looking forward with hope to getting this behind me and getting fully recovered..