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1st Taxol last Friday - Update

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

I had my first Taxol last Friday.  It went pretty well.  Friday was good, Saturday was OK then Sunday!  EEOUCH!  I couldn't move off the couch.  Lots of back and neck pain, like the flu i recon.  Today is about half better.  YIKES! 

Did I hear them right when they said these side effects ease some after the 2 treatment?  This is rough! 

 

 

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

I'm sorry Marty.  I sure hope it gets easier and better for you.

 

Sue :(

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Well,  I hope it was a loading dose.  Probably so.  That gives me some hope!  I'm supposed to do this for quite some time I SURE want it to be easier than this.  And yet, I know I'm whining.  It was so much harder for those who went before us. 

I'm trying to keep my chin up !

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Whine away!  You deserve to!  You are going thru chemo and that is not easy Marty!  You come here and vent or whatever you want to do whenever you want.

We're on this journey with you, to support and encourage you.

 

Feel better,

Noel

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Kiss  Thank you!  This is a great place!

 

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Hoping it was a loading dose too!  Keep your chin up!

burcu123
Posts: 70
Joined: Jan 2013

Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Thanks for updating us as we worry.  I'm sorry that you're having a rough time.  Be sure and let your onco know how you are doing.  Hopefully, he can prescribe something to help you to get thru this.

Hugs, Lex

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

My Dr finally prescribed the MetaNX yesterday!  I had a little neuropathy after just the 2nd round and I was bummed!  They gave me a generic, but I think my feet feel better already!  Thank you for the tip!!

jessiesmom1's picture
jessiesmom1
Posts: 711
Joined: Jun 2010

Hi Marty,

I am glad you posted an update about beginning your Taxol. I had 12 rounds of Taxotere which is in the same class of drugs (the taxanes) as Taxol. I don't know who told you that side effects "ease some after the 2nd treatment" but that was most definitely not my personal experience. Sorry. For me they only seemed to get worse. I hope your experience is different. On the positive side, I did not have any bone or muscle pain nor did I have any neuropathy or mouth sores. I had numerous other side effects though. I did, however, get through all 12 rounds of the Taxotere chemo without missing a single one. It was in no way an easy thing to do but I had so much to live for t hat I was determined to do everything I could.

You CAN do this.

IRENE

desertgirl947's picture
desertgirl947
Posts: 420
Joined: Oct 2012

My taxol days were Mondays.  I really didn't feel it in my joints/bones until Fridays, although I was told it was more likely the neulasta shots (which I had also taken while doing A/C).  By Sunday evening, the discomfort was gone.  About as much as I could do was take Ibuprofen.

Oddly, what makes me wonder if it actually was the neulasta shot, not the taxol, was that after my last taxol infusion, I did not have to return the next day for the neulasta shot.  (My numbers had been good throughout chemo.)  When Friday/Saturday/Sunday came, I did not have the bone/joint pain.  Weird, I know.

We all seem to react differently to our chemo drugs.  I think I already told you on an earlier posting, different board, what my issues were with taxol.

Hang in there.  Look ahead to being done.

 

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I wish no one ever had to do chemo.  Try to think positive and remember that the chemo is killing the cancer and there will be an end to it.  How many more treatments do you have?

Hugs and lots of positive thoughts,

 

Angie

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Hi Angie!

I have asked them several times how many rounds of Taxol and they keep telling me 'as long as it is working, we'll keep you on it.  Or until neuropathy gets too bad'  Thank you for your hugs and positive thoughts!  I am pushing forward :)  It will indeed have an end even if I don't know when that is !

Marty

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Hi Mary!  It's good to read you are doing better!  Praying for you!

Rague
Posts: 3305
Joined: Aug 2009

I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol.  For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol.  I had no pain or neuropathy - just complete and utter exhaustion the entire time.  The 'good' thing - I started rads a week after last Taxol and felt better daily.

Winyan - The Power Within

Susan

VickiSam's picture
VickiSam
Posts: 8255
Joined: Aug 2009

I describe my pain as being hit by a tractor trailer -- and left in the street as road kill.  What helped was taking claritan or benedrly that day I had my taxol chemo therapy infusion.  Please .. check with your Oncologist == to see what he/she recommends for you.

I am a huge advocate in getting help with side efforts from Chemo.  Please do just suffer  ...   this is the most difficult journey of you LIFE --- there is HELP.

Exhaustion, Insomnia, neuropathy in my hands and feet, watery eyes for months long after chemo treatments completed --- nose sores --.  I lost several toe nails, and finger nails -- which took forever to regrow after chemo (appx. 8 to 10 months).

Prayers and gentle hugs for you.

Vicki Sam

 

 

 

 

 

 

 

 

 

 

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Hit by a tractor and left for road kill is a perfect description!  And asking for help is not my specialty so thank you for reminding me!  I need to ask them about your Claritin/Benadryl idea before next time for sure! 

I'm feeling almost better today and holding hope for tomorrow!  Talking myself into going back for another dose on Friday will be a challenge - but you are right they can probably help if I just ask!

 

THANK YOU!

Marty

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Please ask for help Marty.  I am so sorry for the side effects but I am really hoping that your onco can prescribe something to help you.

Let us know,

Lex

Pink Rose
Posts: 495
Joined: Nov 2012

Always saying a prayer for you!

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

I'm so hoping that you start to feel better Marty.

 

Really gentle hugs,

 

Sue

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Thinking about you Marty and hoping you are doing well.  

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Thank you Angie2U for checking back in!  I have had 3 rounds now and so far it is getting better.  I had some neuropathy show up in my feet after just 2 rounds.  THAT was dissapointing.  Some of the people on here recommended MetaNX and I asked my Dr for some.  I just got it Friday, but I think it's helping already!  I sure hope so!  I'd hate to flunk Taxol!

 

Good to hear from you!

Marty

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I am so glad to know your chemo treatments are getting better for you Marty and very happy that the MetaNX is helping you.  3 down!  How many more do you have?

 

Hugs, Angie

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Hi Angie,

I don't know how many more.  The plan is to keep me on it as long as it is working or until I can't feel my hands and feet.  The longer the better I guess.  That's why it was so disappointing to have some tingly feet after just two rounds.  I need it to kill LOTS of cancer!  

Marty 

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Marty, thank you for updating all of us as you know we do worry about our pinkies.  Wishing you better and better days ahead!

 

Sue :)

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

Checking back in on you, So happy you are doing better. The claritin does help.  Please do ask your Dr, for something to help with the side effects. They can help. And they need to know what is happening. They don't want you in this pain. It was hard for me to ask too. I'm over that now...I do what ever I can to make this a easy as I can.

I wish you all the best

Take care

Kay,

I'll be back..

New Flower
Posts: 3991
Joined: Aug 2009

 

http://www.abraxane.com/

Hi Marty

ask your doctor about abraxane instead of Taxol.

it is similar drug with different delivery system ,

which  gives less side effects

than Taxol.

As you go through Chemo you has become more skilled

in managing side effects,

however any Chemo is cytotoxic and 

Side effects are cumulative, usually it is pretty tough by the end

Good luck

 

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

Hi Kay!

I am quickly learning to ask for and accept help!  I'm more of a tough it out kinda person, but that doesn't work out so well when there is no end in sight.  I am beginning to be a BIG FAN of taking the EASY way!  Anything that makes a day easier, makes me look forward to more days instead of dreading them and I think that's a big help!

I have really enjoyed hearing from you Kay and getting to know you a little.  Thank you for taking the time to talk to me :)

Marty

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Always ask for help Marty if you need it.  You are not in this fight alone, not at all.  Your doctors are there to help you, so, remember that.  Do take it easy as much as you can!

 

Hugs, Kylez

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

So pleased to read that you're having much better days! 

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

I also am glad to know that you are feeling and doing better on chemo.  You're good now?  Post an update when  you are feeling like it.

Hugs, Kristin

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