Jan 13, 2013 - 8:52 pm
Hi, I was diagnosized with muscinious type carcinoma ovarian cancer when I was 25 in 2009. I have recurrence every yr as well as debulk abdominal surgery. I just had a debulk surgery in Oct 2012 and in Dec, it came back metastasis to the lung(small nodules). Now, I am having oxilaplatin and if it doesn't work, will be on Avastin and Taxol. I was tested HER2 positive but not Estrogen and Progestrone. I wonder why I was put on Avastin+Taxol as it was used to treat Triple-negative(HER2+Estrogen+Progestrone) breast cancer. Anyone with this rare type of Ovarian Cancer-muscinious(19-9 mainly for indicator) and what's your regimen and survival/hope strategy? I was only 29 and I got so bit up and need inspriation and boost to live the rest of my life.