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Had PET scan this afternoon.

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

I don't know why I was so stressed over this one.  It's my third one now so I should be used to it.  I really hate the 24 hours without carbs and the 6 hours without eating anything.  I also hate the IV to check the blood sugar and inject the radioactive glucose solution, the "relaxing" wait for it to travel wherever it needs to and then I hate the CT they do before the PET.  I stress too much over holding my breath when it says to.  I won't get the results until the 15th because I insisted on seeing the onc instead of the NP.  Hopefully it will say that I am in remission and I don't need chemo,  for awhile anyway.  I am soooooooooo tired of chemo!  I hope the rest of you are having a great start to the new year!

HUGS!!!

Jamie 

McMarty's picture
McMarty
Posts: 212
Joined: Nov 2012

Hey!  PET scans aren't my favoite thing either! YUK!  I am sending you all my best wishes and prayers for a good report from that thing!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Praying you get good news

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

I don't like them either, but get through them. Praying for good results for yours. Sorry for the stress it put you through. Good luck.

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Jamie, I hope your onco tells you are in remission too! 

Good luck, Angie

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

I got a call from the chemo nurse Tuesday telling me that she scheduled me for chemo on Thursday so I went in this morning.  The NP gave me my PET scan results and said I would not be getting chemo today because I have new cancer growths.  It looks like I have at least 4 new sites that weren't on previous scans and one of them has a maximum SUV of 10.3.  She told me to start back on the Xeloda pills I got back in July and August.  I will see the onc on the 15th.  In the meantime I will try not to think about it too much because when I do, I start to fall apart.

 

HUGS!!!

Jamie

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I hated hearing this, Jamie.  This was not what we wanted.  Hopefully, on the 15th your onc. will be able to better explain everything that is going on and will put you on a treatment that is kind and very effective.

 

Prayers and positive energy coming your way, sweetheart. 

 

Hugs, Renee

camul's picture
camul
Posts: 2202
Joined: Dec 2010

I was so hoping it would be good results.  Hang in there, as hard as the chemo is, we have to believe it helps!  I am assuming from your results that the sites are on your bones?  Will keep you in my prayers,

Carol

 

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Hoping for good results!

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Hoping for good results!

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

I am so very sorry to read about the new sites showing up.  Do everything to distract yourself until you see the oncologist and hear an explanation.  You just haven't hit the right drug to kick these invaders out.  

 

Sending positive thoughts your way.

 

Doris

MsGebby's picture
MsGebby
Posts: 659
Joined: Oct 2011

I am so sorry the news was not good.  OMG ... cancer sucks.  Please keep us update.  Positive thoughts and prayers going your way.

xoxo

Mary

New Flower
Posts: 4209
Joined: Aug 2009

Jamie

 I am very sorry, still please do not fall a part and hope until you talk to your oncologist. I really hope Xeloda will work for you. It has been working for me. It is a reasonable drug with manageble side effects. Please do not loose hope. excuse my spelling. I wish CSN along with ACS could fix this site, it is almost impossible to support each other. You are always in my thoughts

hugs

Olga

VickiSam's picture
VickiSam
Posts: 8631
Joined: Aug 2009

cancer is like the gift, that keeps on giving --- a gift, non of us WARRIORS wanted to receive.  My thoughts, and prayers are with you dear Sister in Pink.

Strength, Courage and HOPE for a Cure in 2013.

Vicki Sam

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

She wants me to take the Xeloda pills at least until my next PET scan in three months.  I'm not arguing with her because so far I'm not having any side effects and I was really tired of the side effects from the Ixempra.  I am not happy with the nerve damage the Ixempra caused in my feet but I started taking Lyrica just last night and I had a better day today than I have had in months.  I hope it turns out to be my "little miracle".  I know we are all different but I wouldn't recommend Ixempra to anyone just in case it might cause the same problems for them.  There were so many other drugs "we" could have started with so I wish we hadn't started with Ixempra but I guess there was no way of knowing this would happen.  If I can stay on the Xeloda, maybe my hair will get a chance to grow back. Thank you all for taking the time to read about my problems in the midst of what you are dealing with.

HUGS!!!

Jamie

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

Oh Jamie,

I can't  tell you how sorry I am to hear this news. My heart is breaking for you right now. I know how scared you must be. When My cancer came back in my lungs and spine I could not have been more scared. I was told that my lungs were so bad that I had 3 days to a week to live. I literally could not breath, on 6 to 8 litters oxygen per minute to keep me alive. That was back in Aug... I had at least 3 different Dr's tell me there was no hope. My new Dr, was the only one that said I can help. He put me back into chemo. It was a fight for awhile just to breath. But from that point to now 4 months later, My last scans showed there was no active cancer in lungs or spine.

So never give up..There is always Hope. I am with you - you are in my prayers every day. I'm holding your hand darlin HUGS

Sister in pink Kay,

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

I am so glad to hear that you are doing better.  I don't know what I would do if I was told I had three days to a week to live.  I have trouble every time I'm told that without treatment I would only have six months.  Part of me would like to test that theory but then part of me is terrified just hearing it spoken.  I'm so glad that doctor was able to help you when nobody else would.  You too are in my prayers and I thank you for sharing your HOPE with me.

 

HUGS!!!

Jamie

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Positive thoughts and prayers for you Jamie!

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