Jan 07, 2013 - 2:53 pm
I haven't posted in a while and it's time to share how things are going for my husband. He entered the IMA901/Sunitinib vaccine trial in October - sadly got in the control group and didn't receive the vaccine. He's been only on Sutent for the last 4 months. After the first CT - 3 months after starting Sutent the results were very optimistic - he had 30% reduction on both meths.( Mets are on the abdominal wall and close to the liver - at both surgical ports post radical nephrectomy 2010).
He started another session of Sutent on max dose for 28 days/session with 2 weeks breaks. Side effects are as expected – nausea, upset stomach heartburn, change of taste. He had high blood pressure from the Sutent, but now is under control with medication. His skin turns yellow for 2-3 weeks and his facial hair turned white after first few months. The side effects are pretty bad in the last two weeks of each 28 day sessions. His taste doesn't returns to normal in between. His oncologist explained that it takes a long time for the taste buds to return to normal and two weeks are not enough. He has another scan in 2 months and will keep you updated on how things are going.