I am new to this network and am looking to connect with others with similar situations, experiences and history. As I read through the posts under Roll Call, I didn't see any LMP/Borderline diagnosis listed, and feel uncertain whether to introduce myself there. I feel very blessed and fortunate my cancer turned out to be non-invasive and treatable via surgery and no chemo. From all my research and talking with my gyn/onc it seems there are mixed reviews whether LMP Tumors should be classified as cancer, borderline cancer, precancerous, or benign. I understand also it depends on the pathology testing of the cells and there are various levels within. My oncologist told my husband and me, my tumor was not benign, and if I had been 10 years older, there's a good chance I would have been late stage aggressive cancer. He explained to me the Low Malignant Potential Cancer is fortunately very slow growing and treatable through surgical removal with excellent Prognosis. He explained recurrence chances are low -about 5%, but will want to monitor things closely through ultrasounds and CA125 tests.
Location: Milwaukee, WI
General Health: Overall good, but about 40 lbs overweight. I try to eat well most of the time and am a regular walker/jogger - 3 miles, 3 times per week. Has a LEEP and Electrcauderization for cervical displaysia (precancerous cells) at age 19.
Symptoms that led me to see Dr : Bloating and gassy, severe diarrhea spells for 6-9 months
CA125 Pre-surgery: 105 (have not yet had a post-op test)
Diagnosis: Stage II Low Malignant Potential Tumor
Family History: Mom had Cervical cancer at 30 and uterin pollips. No info for fathers side.
Nov 6 I went to a new MD for a general physical, no gyno stuff. I shared what I suspected we're GI problems. the Dr ultimated did an exam of my lower abdomen, she originally though my uterus was enlarged. She set me up with a pelvic ultrasound on the 9th. I could see the tech concentrating on a specific area and taking lots if measurements, but assumed I might have had pollips worst case.
Fri, Nov 10 my doctor's office called me at work to inform me the Ultrasound showed a 14cm complex cyst on my ovary. The doctor contacted my ob gyn who in turn after review referred me to a gyn/oncologist. She also ordered a CA125 test.
My CA125 came back at 105, and I met with the gyn/onc the following Wed. He was great! Has a wonderful calm demeanor and allowed me all the time I needed. Becausevof the solid mass visible inthe ultrasound and my CA125, he put my cancer risk at 30%. His plan was to remove the cyst, ovary and tube via laparoscopy. He explained the laparotomy and staging process if he suspected cancer. I was confident with him when I left his office.
Surgery was Dec 6. Once my GO got in with the scope, he saw the concern and changed my surgery. He informed my husband and parents who were there so they would know the surgery would be longer, and staging would be done. He removed the tumor, right ovary and tube, omentum, 30 lymph nodes and pelvic tissue. I have a incision from about one inch above my naval down to the pubic bone plus 3 tiny incisions -one just below my left ribcage, one at each side above my hips. Final pathology showed the solid mass inthe tumor as borderline cancer, plus borderline cells in one of the pelvic tissue samples. All other test came back neg.
Forward plan: I see the GO on Jan 14. After that, I will see him every 3 months plus have a CA125 test and ultrasound. If good, will stretch to biannual tests, and of good from there to annual tests.
So, I'm 4 1/2 weeks post op and feeling more and more normal everyday. I have overdone it resulting in some setbacks, but doing well.
Going forward, I want to make serious changes to my lifestyle to prevent recurrence, and other health issues.
I also want to do everything I can to help bring awareness to ovarian and other gynecological cancers. I knew nothing about risks and symptoms before this experience, and feel strongly there needs to be more awareness.
I'm looking forward to learning more people's stories, and making friendships here.