Jan 06, 2013 - 4:42 am
On the Ovarian site they are doing a roll call of people with a description of how they were diagnosed, when, treatment, outcomes, etc etc. I suggest we do the same as often when I look up a postee's details there are none. This is such a rare cancer the more we can share information the more we can help each other.
My details are:
Diagnosed December 2011 with a collapsed lung and the surrounding fluid showing cells pointing to PPC. I immediately had a pleurodesis (attaching the lung to the outer wall to prevent further fluid to accumulate there and 7 rounds of carbo/taxol. After the fourth round I had debulking surgery involving the removal of the omentum, ovaries and other tissue. (I had a hysterectomy a number of years ago, also a total colectomy - removal of the large bowel - when I was 27 y o. My CA125 then had fallen to 21 (June 2012) from a high of 653 (December 2011). I was told I was in remission then but on returning from a wonderful overseas holiday 2 months later my CA125 had risen to 209 and 2 weeks later 360 and 1 week later 459! I then started on Doxil (Caelyx here in Australia). I had awful side effects with burning and blistering hands and feet and chemical burns to my back, arms and thighs and to top it off increasing CA125. My oncologist took me off it after 3 rounds and I have now started Gemcitabine - 1 round so far - and already a fall in my CA125 of one-third. My second round starts this week and I have high hopes for it to continue the good work!