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How is everyone?

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Despite the fact that we seem to have been "Shanghaid" lol!,  I hope everyone is still hanging in there and that the new year is off to a good start for each and every one of you.  I was just thinking about some of our members who have not posted updates in awhile.  The guilty parties know who they are, I'm sure!  Please post a short update if possible and let us all know how things are going.

 

As for me, I'm not complaining!  However, my new year started out with a cold and some sort of intestinal bug.  "I'm sick as a dog, but havin' the time of my life!"--Gomer Pyle, Andy Griffith Show.  "This, too, shall pass!"--old Persian quote.

 

Everyone have a good weekend!

AZANNIE
Posts: 375
Joined: Mar 2011

Hope you feel better soon! The Persian quote is my Mom's favorite. 

 

Ann

 

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Thank you!  Whatever this crud is that has attacked me, it's hanging on and has moved into my chest.  Flu or cold, I don't know--I just wish it would leave me alone!  I hope you're doing well. 

Tyson
Posts: 5
Joined: Aug 2012

So sorry to see that your not feeling good. Take care. Be careful with letting that stuff settle in your chest. Don't want to end up in the Hospital. Guess that's coming from someone that has Asthma. Always worry about the lungs. Lots of rest and old movies .thats definitely what the doctor ordered. Get well soon. Chicken soup coming your way. Sandy.

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Thank you.  I agree, I may be at the doc in a box later today.  And I have a huge pot of chicken soup simmering right now!

AZANNIE
Posts: 375
Joined: Mar 2011

I'm doing well. Still have issues with "the chute" at times. It's the new normal. I'm sure it's from the radiation causing stenosis. (Actually I think I ate too much chocolate during the holidays). Some days I feel like the energizer bunny and need to slow down. Keep thinking I have to get things done before going back to work on Monday, but I'm retired! Lol! I'm 19 months post treatment and all tests have been fine. Next check up is in May. My 3 chickens keep me busy - lol!  Doesn't take much to entertain me - lol!
Hope you're feeling better by now. According to the news this is a bad flu season.  I got a flu shot and keeping my fingers crossed that I don't get the crud.
Hmm, maybe you need a hot toddy?
Feel better soon! 

Ann

 

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I'm glad you are doing well, despite a few "chute" problems, which I also experience, even after over 4 years.  I did get a flu shot, but I think the stuff may have gotten me before the shot kicked in.  I'm off to report for jury duty this morning.  I hope they think I'm Thyphoid Mary and dismiss me!

AZANNIE
Posts: 375
Joined: Mar 2011

Hope you get dismissed from jury duty. You don't need to be surrounded by more germs. I got my flu shot in August which I thought was kind of early, but it was convenient at the time. Hope it stays effective throughout flu season.

Ann

 

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I and the entire pool of potential jurors was discharged.  Only 3 case were scheduled to be heard this week and guilty pleas were entered in each case!  Woohoo!  Now I can focus on getting well.  I'm still feeling puny this morning and have never had anything hang on this long.  I hope your flu shot will see you through the flu season with no bugs!

AZANNIE
Posts: 375
Joined: Mar 2011

Glad you were dismissed from jury duty. Yes, I hope my flu shot lasts the season!
Feel better real soon!!!

Ann

 

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Thank you!  I am feeling better with only a little nagging cough and a raspy voice.

sephie's picture
sephie
Posts: 521
Joined: Apr 2009

hope your cough goes away.   you are being too brave.... if you have to do this again,  wear a mask and gloves....  hope you get back to 100 % soon.... sephie

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I think I am on the mend.  It's just taking much longer than I would like!

OMG 1012
Posts: 61
Joined: Dec 2012

Hope you are feeling better today.  XO

Chicken Soup is a GREAT idea :)

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

The chicken soup is simmering right now.

eihtak
Posts: 826
Joined: Oct 2011

Hi Martha,

Hoping you are back to feeling well soon, you are the one we all look to for answers on health/recovery so need you up and going. (I sometimes think we get a bug once in a while as a forced reason to rest though, so enjoy those old shows for a bit first!)

My guess is some people have not posted due to frustrations with getting on this site....got to just keep trying.

I for one, had a great Christmas with friends and family. Did some day trips, and a couple overnight. I have big plans for the New Year as I am going back to college. Although I went for a couple years 35yrs ago, I never graduated. I will plan to graduate with a degree in human services. I figure I have nothing to loose. I may or may not work in that field when done, but just want to finish what I started. I admit, I'm a little nervous, but think at this point I have done a few things MUCH tougher than school.

If it doesn't work out, at least I tried.

Happy New Year to all!

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Thank you for your kind words!  You may be right, perhaps this is my time for some rest.  The worst part is I've lost my voice and can't cheer for my Colts today!  :( 

 

I'm glad your holidays were wonderful and I admire you so much for going back to school, determined to get that degree!  I never finished college either, but so far, have had no desire to go back.  Maybe someday!  I wish you all the luck in the world with your goals--I know you can do it!

sandysp's picture
sandysp
Posts: 771
Joined: May 2011

Dear sweet Martha,

So sorry to hear about your fight with the flu bug. My husband has been sick even though he also got the shot. I have been taking Silvercillin Spray - looks like Silver is the new zinc. It seems to be working for me. Usually within a few days of his getting sick I get sick and much worse since I have asthma. He is having trouble getting the doctor to even return his calls even though he has been exposed to the Pertussis I had and should have been on antibiotics weeks ago, as was the health departments recommendation. What is wrong with this picture? He is on Medicaire. This never happened before he turned 66. I hope there isn't a connection.

I said OMG in the subject because it is so hard for me to believe you never finished college. Neither did I. I take classes but never worried about a degree program. I have received a few "certificates" in my time and may go for more. Anyway, back to OMG! I always thought you must be a health care professional since you are so intelligent in your responses to people and so analytical too. Your communication skills are far above and beyond a lot of lawyers and other highly educated people.

I agree this site gets aggravating. It is way too slow for me. But what would I have done or do without it and you????

Love,

Sandy

 

 

 

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I'm sorry your husband is sick!  I certainly hope you are not next, as it is no fun!  After 8 days, I'm happy to say I am starting to feel better.  The only thing ailing at this point is my voice, which is virtually non-existent.  I'm sure my husband is enjoying the temporary peace and quiet.  :(  I had to report for jury duty this morning and there were so many people in the room coughing and blowing their noses, so I hope while I was there, I didn't pick up another strain of something, as I'm quite tired of being sick!  The good news is, my service was not needed and I was discharged!

 

Your post made me chuckle.  I really don't consider myself all that intellectually polished, but I've been at the top of my class a few times in the School of Hard Knocks.  I think lots of us are better communicators than many professionals, judging from some of the issues people on this site have with their doctors.  Most of what I know about healthcare, I've learned in various jobs.  I worked for an internist for several years, in two hospitals and two physical therapy clinics.  Most of what I know about cancer is from my own cancer experience.  Believe me, I would have been more than happy not to have learned all that stuff!  But I believe in paying it forward, so sharing and caring is important to me.  It's obvious that a lot of other people on this site, including you, have that same belief.  It's what makes us strong--for ourselves and each other!  Love you!

z's picture
z
Posts: 1249
Joined: May 2009

Hi Martha,

I know this crud is going around.  It starts in the throat, I was fortunate to stop it before it reached the lungs.  

Update:  6-30-09 completed treatment for stage II anal cancer.

              9-23-10 had vats for lower right lobe lobectomy.

 

So far so good on both ends lol.

 

Now Suerelays you need to let us know how u are.

 

I hope this is the best year for everyone, sending out healing thoughts.

Lori

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I'm so glad you are doing well!  Keep doing whatever you're doing! 

 

Suerelays is doing well.  I hear from her on FB from time to time.

 

May 2013 be a great for you!

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Hi Martha! Hope you're feeling better soon. A nice warm tequila drink may help get rid of whatever bug's got a-hold of you. See here: http://www.yummly.com/recipes/hot-tequila-drinks.

 

Eihtak, I admire you so much for going back to college - best of luck!

 

I'm doing well - off and on issues with the runs, difficulty walking distances - but other than that, fine. Just had my four-year checkup in October and all is well.

 

Best wishes to all of you going through treatment and those who have finished. Happy New Year to all!

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Thanks for the get-well wishes.  I laughed when you mentioned tequila--I had a snifter of sipping tequila last night, but still woke up with the cough, etc.  I'm hoping the chicken soup will cure me!

 

I'm glad you are doing well!  I had a bout with cranky bowels last week, so I can sympathize with your occasional issues.  I'm so glad to hear your 4-year follow-up was all good news!  I wish you the best in 2013!

pializ
Posts: 258
Joined: Nov 2012

Sorry to hear you are not well Martha. Time to be kind to yourself again!! Take heed!

Got 16 more rads to go. Developed vaginal thrush due to either chemo or the prophylactic antibiotics I am on for duration of treatment, so I was very sore on Friday after being treated for thrush. Need to explore options for thrush treatment throughout protocol I guess. Neutraphils down to 1 last wednesday so hoping they pick up in readiness for next bout of chemo due 15th January. Feeling tired and the odd bout of diarrhoea depending on what I have eaten (dairy.....lesson learned). Although I haven't officially reached middle of treatment, I only have 3 weeks left, then some healing time!

Take care everyone.

Liz x

lil lady
Posts: 36
Joined: May 2009

I don't reply very often, but do come and read all that everybody has to say.  This site has always been very helpfull to me whenever I am having a problem I come on and find out I am not alone just my new normal.  

finished treatment july 2009  ans stil am NED   

wishing everybody a good2013

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

NED--that is so awesome!  I wish you all the best in 2013 too!

lil lady
Posts: 36
Joined: May 2009

I don't reply very often, but do come and read all that everybody has to say.  This site has always been very helpfull to me whenever I am having a problem I come on and find out I am not alone just my new normal.  

finished treatment july 2009  ans stil am NED   

wishing everybody a good2013

lil lady
Posts: 36
Joined: May 2009

I don't reply very often, but do come and read all that everybody has to say.  This site has always been very helpfull to me whenever I am having a problem I come on and find out I am not alone just my new normal.  

finished treatment july 2009  ans stil am NED   

wishing everybody a good2013

lil lady
Posts: 36
Joined: May 2009

I don't reply very often, but do come and read all that everybody has to say.  This site has always been very helpfull to me whenever I am having a problem I come on and find out I am not alone just my new normal.  

finished treatment july 2009  ans stil am NED   

wishing everybody a good2013

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Hang in there--you are halfway done!  I'm sorry you are dealing with the thrush and I hope it can be treated.  Good luck with the next round of chemo and keep us posted!

Angela_K
Posts: 374
Joined: Jan 2011

Good morning, Martha!  2013 is proving to be great with a NED report at the 2 year mark earlier this week. Resolutions for the year include learning the healing art of qi gong, consistent meditation and limiting myself to 13 minutes of Facebook time a day!  

I dreamed that I married Gregg Allman last night and became your Georgia neighbor!

Hope you get to feeling better and everyone has a beautiful new year!

 

Angela

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

How awesome to hear of your NED results--fantastic!  And congrats for passing the 2-year mark, which is a very important milestone!  I am so happy for you and it sounds like you are doing great.  Now, what did you eat for dinner last night to prompt that dream?  Georgia would be honored to have you as a resident!  As for me, I would prefer a dream in which I marry Jon Bon Jovi and he moves to Georgia to live with me, but that's just me!  lol!

 

Keep the roll going in 2013!  May it be a great year for all of us!  Hugs!

AZANNIE
Posts: 375
Joined: Mar 2011

Great news to start off the new year!  Congrats and may you continue to have many more NEDS!

 

Ann

 

OMG 1012
Posts: 61
Joined: Dec 2012

I completed my treatment yesterday and I am feeling GREAT! (sigh of relief) although I was stage 0 and they thought they got all the BAD off of me with me so called "hemmy" removal I did receive the standard protocol LESS lymph node/groin rad.  I do contribute this factor to my having been able to work part-time through out the treatment.

YOU were correct, this is DOABLE although there was 1 week that I really did wonder if I would make it through (the week of end of round 2 of chemo)

Thank You ALL for your support and informational posts, I dont know how I would have gotten through this with out all of your been there done that recommendations.  

I am scheduled for a CT scan the end of February.  

Thank YOU!

XO

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Congratulations on completing your treatment!  I'm so glad you have this behind you now and I hope that things continue to get better and better for you!  Please keep us posted on your recovery period and let us know how the CT scan comes out--I know you'll get great results!

AZANNIE
Posts: 375
Joined: Mar 2011

Congrats on completing treatment! Let the healing begin!

Ann

shirlann54
Posts: 161
Joined: Aug 2011

Glad your starting to feel better,I got a flu shot this year i Havn't had one in years .But last year my husband and i got so sick with the flu.Hope this helps.I haven't been on here for about a month.My sister lost her husband Nov 28,he was 53 it was his heart.So we have been trying to help her and plus there son is just 16 he is having a hard time . I got on here last night  Sandy had posted that we can vote  for a color for anal cancer and i voted  we have till 15th of this month.We need our on color.The 19th of this month i will be 2 years out of treatment and  i can't belive it.I'm doing good .I have my days .I over did it on the chocolate at Christmas LOL.So i had some bad days.Plus some  times i way over do it.And i pay for it .I have been taking it easy this week i'am feeing better.I go for my Pet Scan the 30th of this month...Shirley

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I hope you don't get the flu bug!  Hopefully, the shot will keep you from catching it--I have been down for 2 weeks.  I'm so sorry to hear about your sister's husband.  I hope she and her son will be okay, but I know what a devastating loss this is for both of them.  My father died suddenly when he was 58.  It's very hard.  I'm glad you are there for her.

 

Thank you for reminding us that you will be celebrating your 2-year anniversary on the 19th!  That's great--it's a very important milestone!  I hope you'll find something special to do on that day.  I'm sure your upcoming PET scan will come back all good, as it sounds like you are doing great!  Please let us know.  I wish for all good results for you!

shirlann54
Posts: 161
Joined: Aug 2011

Thank you .Were going to go out to eat.Texas Road house  we love there food. Thats treat for us .We helped my sister move they didn't want to stay becuse thats were he died . They were renting so we found them a really nice apt and there all moved in .It helped them.My Dad was 66 when he died of lung cancer .its very hard....shirley

shirlann54
Posts: 161
Joined: Aug 2011

It was Angela _k that posted that about voting for a color for anal cancer  SORRY .I said Sandy got that mixed up.  ...shirley

AZANNIE
Posts: 375
Joined: Mar 2011

I can relate to the chocolate overdose. I've cut back - lol! Actually, when I was going through treatment I thought I'd never eat chocolate again. I've made up for it now - lol!  Hope you hear good news on your PET scan!!!

 

Ann

 

torrance
Posts: 118
Joined: Jan 2012

Happy Holidays!

 

I am sure there are a lot of us that just couldn't get on this site for a long time, it seems things are better and a little bit faster now, YIPPEEE!

 

It has been great catching up with everyone on this thread.  I know when I left it was a little awkward with the talk about the passing of Joanne.  That is my name to and is was just a tad bit weird to read.

 

So if you have a minute and want to catch up, here goes!  Be ready for some chuckles, I sure did going through some of this.  Christmas was the two year anniversary of my diagnosis.  So far I am NED.  I am suffering with chronic radiation proctitis.  Did anyone have issues with this and did you Dr. recommend the wonderful enema that you are supposed to administer at bedtime and "hold" all night.  That was a so NOT gonna work!  Urgency is still an issue, however getting better.  Still pain associated with the proctitis.  When I go for my regualr anoscope the Dr. has finally committed to memory to ask the MA for the ped scope!  YEAH for that option, sad to think that there is a need for that though.

I am still going to pelvic PT once a week, one infection and several tears along the way and I am almost through.  Who was it that said they use there dilator everyday at shower time?  And how do you even manage that?  If you can imagine me sitting on the floor, leaned up against the wall to use my "inflatable dialtor", it really is kinda funny, especially since I have short arms.  I'd say it was a two man job, but that might sound kinky!

Prior to treatment I had issue with kneecap tracking issues.  They seem to have gotten worse since radiation, as has everything that stems from the hip region.  So I go to Orthopeadics for a consult.  He says that I am very "touch point" sensitive.  Not sure what that means, but when he manipulated my knee caps, boy did it hurt.  So a referral to the cast room to get knee braces and then start PT to strengthen knees.  Went to cast room and was issued my braces with instructions on how to wear etc.  He was in a hurry to leave for lunch so we didn't try them on, size lg.  (I've gained over 40 lbs since end of treatment as a side effect of anit-depressants and lack of ablility to do any cardio with the hip and knee issues, more on the depression later)  I've NEVER been this large before.  Ok, next morning I get up ready to get started on this new phase of PT.  I try and put the braces on....NO WAY!  It reminded my of when I was young and watching my mom struggle/wiggle into her girdle!  Guess they call them shapewear these days!  So no way were these pupples gonna fit over my thigh.  Great, now I have to go back and ask for a bigger size.  Well since I have to be at the hospital for pelvic PT at least if won't be incovenient.  I go back to the cast room and hand the boxes to the "fitter" and quietly request a larger size.  He replies he didn't think they had them any larger.  ( As I am shrinking in humiliation wondering, surely I am not the largest thighed person around, surely there are at least men larger than me.....) the fitter turns around and shouts back into the cast room, "do we have any extra large knee braces?"  I could have died on the spot!

Ok, time to try these new pups on.  Eureka, we have a fit.  Yep, just like my mom, wiggle, struggle and at last in place!  Mind you I have a pinched nerve in my left elbow that make gripping painful and I have no real strength.  I made it to the end of the day, time to take them off, they have now become one with my legs.  Remember the short arm syndrome and the pinched nerve, and oh yeah the incredibly tight hamstrings and calves, well I pulled a ligament in the back of my knee just trying to take them off!  Again, a "two man" job!  Another case where the treatment may be worse than the ailment!  So now when it is time to take them off,  I have to lay on floor and have my husband pull them off, really is quite a funny sight!  I hope he doesn't lose his grip pulling, not sure where he'd end up!

Now it's time for knee PT....Oh joy!  The first visit was assessment day.  The PT observed my walk, checked my strength etc etc.  Time to check the toneness of the muscles, she had me lay on my side and she touched the muscle/tendon/ligament, not sure what it was on the outside of my knee.  The pain was at least a 12+ so of course my reflex was to jerk my knee up.  She promptly states in a very matter of fact tone, "I'm not hurting you!"  I put my leg back down and she did it again and I jerked my leg again and she said it again.  I told her I know what you are doing is not "injuring" me, but it is "hurting" me and she thought I was crazy.  I think she thought I was anticipating pain or something.  Now I am a pretty cooperative patient, anxious to learn and to please, but this gal just rubs me the wrong way, figuratively and literally!  A couple visit later she informs me that she thinks that ultrasound therapy for the muscles may be helpful but thinks that it may be contraindicated for cancer patients.  Apparently the theory, never proven, but for precautionary reason they don't use on cancer patients in the region where they received treatment.  The thought is the "vibrations" could rattled lose a cancer cell that may be in the area.  I told her I would check with my rad onc to see what he thought, he is the expert.  I consult with him and he assures me it would be fine.  My knees were out of the zone and I was also NED, no problems.  I had his blessings.  I share the info with my PT and she says in her "tone" it didn't matter what he thought that it was up to her dept to make that decesion!  Geez, then get on the ball and lets find out lady.  I am trying to be compliant for the six weeks of therapy before I go back to the ortho doc.  Amazing how much I am learning about things I didn't even know existed!  Nor how many back rooms there are at my medical center!

Depression is getting much better.  Still dealing with some major upsetting issues with other things, seeing my counselor was a godsend.  Tapering off the anti-depressants now.  Down to 50mg every other day.  Nerve wracking worring about being off of them, but so far so good.  I would not hesitate going back on them if I felt the need.

Just got my flu shot this week.  My hubby has been sick going on two weeks.  Finally getting better and I am taking my coldeze regularly.  Oh, had my two year follow up with the med onc and have been excused to yearly visit now!  Yeah me.  Did my blood work prior to the visit with him and have developed an allergy to Alcohol Preps!  What the heck?

Anyway, so much for my nutshell wrap up!  Love you all and so good to hear about everyone and congratulations to all those finishing treatment and welcome to those who have found the need for this most wonderful selfless group of people.

Joanne

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

Thanks for the update!  Wow, you've been dealing with a lot of issues, and yes, I did chuckle a time or two in reading your post.  It is me who uses the dilator in the shower--and I still do.  I have the hard plastic kind and just hold it in with one hand while I shower with the other hand.  I've actually gotten quite good at it and can even shave my legs!  lol!  I don't know if I would call it talent or not, but anyway, it seems to work for me.

 

I have had knee tracking issues for years.  I'm sorry you have gotten assigned to a physical therapist who needs to learn some bedside manner (or I guess technically it would be "plinth-side manner" in physical therapy).  First of all, ask her if the McConnell taping technique would help you.  I used to work in a P.T. clinic and this type of taping was used on me when I was doing a century bike ride (100 miles).  It pulls your knee back into alignment and helped me a lot.  I still have achy knees due to osteoarthritis and since I still run, I was looking for something to help ease the pain.  I purchased 2 Tommie Copper knee sleeves and they have worked wonders for my knees.  They might not help with your issues, but I find the compression they put on my knees and calves to be very helpful.  They're not very expensive, so you might give them a try.

 

I highly recommend getting that flu shot!  I, like your husband, have been sick for 2 weeks now and it has not been a good time!  Thanks for updating us and I hope that the proctitis symptoms ease up for you, along with everything else! 

torrance
Posts: 118
Joined: Jan 2012

Ok, the therapist did try the tape on one knee.  The tape lasted about two and a half days.  I really couldn't tell the difference with.  Is it necessary to wear the tape for quite awhile while your knee is strengthened to keep in place with activity?  After the one try she asked if it made a difference and I told her I couldn't feel a difference, however it was far more comfortable and practical compared to the brace.  No tape again and why would she only tape the one knee and not both?  I have one more appt with her and then back to the ortho dr.  If he wants more therapy I am gonna ask for a different therapist!  I want to get moving...this weight is weighing on me!

 

Joanne

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I seem to remember getting immediate relief from my knee pain after the taping was done.  Yes, I would definitely ask for a different therapist.

Cheyenne's picture
Cheyenne
Posts: 72
Joined: Apr 2012

I am still doing great!  I finished treatment 6/11/12 and went on a week long vacation with the family on 6/22.  It was wonderful!  In October we went out to Arizona and California.  We did a lot of hiking in Sedona.  (The longest hike was 5 miles round trip.)  We are getting ready to go back to Florida in a couple of weeks.

I had my first post treatment CT scan on July 3 and it was clean.  I just had my second scan this past Thursday so I haven't heard about that one yet.  Anyway, I feel great and don't seem to be suffering from any negative aftermath.  I did have that "sense of urgency" early on after the treatment.  I found that I just needed to relax and take my time instead of getting into a panic state and running.  That only made it worse.

I'm glad to know that all of you are doing well too!

mp327's picture
mp327
Posts: 2875
Joined: Jan 2010

I'm so glad you are doing well!  I'm sure you will get all good news on your recent scan too.  The vacations sound wonderful and well-deserved.  Have a great trip to Florida!

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