Jan 04, 2013 - 8:36 pm
Just found this site. Need support and info. Newly diagnosed. My first Oncologist was Dr. Doom and Gloom.My second Oncologist is Dr. Sunshine. I am so confused and scared. I live alone. (I have a cat I adore).
The first oncologist was in a small town and had a non-USA medical degree. He told me one week that I had 6 months to live without chemo and 1 year to live with chemo and it was palliative only. He ordered a pet scan and it showed NO cancer in my lungs. He called me up and said that I was not stage 4 and chemo would put me into remission. The following week I get a call from him asking me why I hadn't told him I had had a lung biopsy in the hospital when he was the one that ordered it! He then told me I was stage 4 with 6 months to live without chemo/12 months with chemo Because I had "numerous nests of malignant cells confirming to the esophogeal cancer.
I was very confused and agitated by the you are going to die, you aren't going to die, you are going to die; I was an emotional wreck who could barely function by this time.
My family doctor told me to use my intellect, do research on the Internet. He said you WILL find a world class expert in an a major city about 40 miles away. I went home and found a surgeon affiliated with a major university that pioneered a surgical technique. I made an appointment and saw him in in a few days. He referred me for chemo to shrink the tumor before surgery can be done.
The first question I asked my new oncologist (who is also professor at the med school was how could I have cancer in the lungs that shows malignant in a biopsy but does not light up on a pet scan. He said lung cancer not active so there is a good chance it will be killed by the chemo and chemo will shrink espho and then it can be surgically removed.
Question #1: Who do I believe? Dr. Doom and Gloom did damage and created doubt;and so did the Internet. Grim statistics. OR do I believe Dr. Sunshine Professor?
Question #2: How do I stay positive and optimistic when I live alone? The doubt, the uncertainty caused by Doom and Gloom. Sometimes I just think D&G was blunt and Dr. Sunshine is blowing sunshine up a certain orifice. I am a big reader and some of the drugs preclude me from reading. So my lifestyle has changed for the worse.
Question #3. Has anyone else had cancer that biopsies malignant but did not show up on a pet scan?
Thanks, ISO Remission