Jan 01, 2013 - 11:30 am
It sounds like we will start the new year with a blood transfusion. David was very washed out yesterday and didn't even get out of bed until 5 pm. When they drew his blood (while asleep) his hemoglobin was 7.4. They give blood at UK whenever it goes below 8.0 so we are waiting for a call to come in for a transfustion (well I am he is asleep LOL). A little more on David's plasma cell leukemia. I had the opportunity to read some of the discharge report from UK. David's bone marrow biopsy revealed 98% plasma cells in the bone marrow. The typical amount for an adult is less than 5%. That is why the doctor's told us that his condition was worse than what they were expecting. To be diagnosed with plasma cell leukemia you have to have 20% circulating plasma cells in your peripheral blood. David started at 31% and was over 40% before they could start the chemo. We have our first doctor's appointment since leaving the hospital on Thursday. I am not exactly sure what they are going to do or say that day. I am a little hesitant to say the least. I know the chemo really should have started Thursday after Christmas, but they delayed it for the holidays. David's platelet count has rebounded to 105 and WBC was 1.9. So at this point we are at risk that the leukemia is gaining ground again. It really is such a scary thing. Last night David actually wanted to kiss me at midnight, but we opted not to because of fear of me giving him something. This really really sucks. It has been 159 days since the last time I was kissed. I miss that more than I can say. I try to act like it is a little thing, but I married him so that I could have a more physical connection. Since he was a youth minister, we opted not to be intimate before the wedding. It was very hard, but a sacrific worth making to be an example for our urban youth. So many of them get pregnant or get someone pregnant before they graduate high school. We wanted them to see that you could truly love someone, be commited to them and still save yourself for the day you would become one. OK so I have digressed. I just remember my sexy man and the wonderful dream of our future together. I pray that we get back to that, but it is so hard with doctor's telling us his days are numbered. Then add the hip injury, PEG tube and PICC line and it kind of ruins the romantic mood LOL. Again happy new years. My goal is to be back here at the beginning of 2014 touting the miracle of another year with David. Also I expect each and every one of you will be here to share it with me.