Dec 29, 2012 - 2:59 pm
I was diagnosed with T-Cell LGL (Large Granular Lymphocytic) Leukemia in May 2012. I soon realized that the disease being so rare as it is, there doesn't seem to be a consistent, reliable and easily accessible online place for support that is for and by the LGL patients themselves. I have taken an initiative to help change this situation and to try to make us LGLers' lives a bit easier. There is now a Facebook group on the LGL topics (similar to several other subtypes of Leukemia groups) that is actively "recruiting" relevant members.
If you are directly or indirectly related to T-Cell LGL leukemia, would you please consider joining the group to help advocate and raise awareness of this rare leukemia type? The group is of "closed" category to respect and protect members' privacy per Facebook policies.
A short link to the group: http://goo.gl/Ekzl8
A QR Image for your smartphone: <*** src="/sites/default/files/u192584/LGL_Ekzl8.qr_.png" alt="Scan this QR Code to directly visit the LGL group on Facebook" title="LGL Group QR Code - Scan using your smartphone" width="150" height="150" style="vertical-align: middle;" />
Please see the brochure image below for more info.
<*** src="/sites/default/files/u192584/LGL%20Group%20Flyer_122912.jpg" alt="T-Cell LGL Support Group brochure" title="T-Cell LGL Support Group brochure" width="464" height="600" style="float: left;" />