Dec 27, 2012 - 12:59 pm
I am looking forward to gaining lots of information from everyone on this disease as well as how to handle everything associated with the diagnosis/treatment/recovery proccess. I DO plan to recover!
A little background...I am a 55 yr old married female (obviously...lol). I have had UTI's my entire life and foolishly thought that some of the spotting I have had over the past year was from the UTI! Then I had a full blown period for the first time in 5 yrs this past August as well as a discharge that began to get progressively heavier. However, it took me 3 months to get up the courage to go in for an endometrial biopsy. I put if off b/c I have always had an all-consuming fear of PAP smears or anything to do with 'down there' due to sexual abuse as a child. Also, I had experienced very heavy perimenopausal bleeding 10 yrs ago and they biopsied me then a few times so I knew it would not be a pleasant experience.
I seem to be having a different (or little reaction) to my diagnosis. I don't know if I am in denial or if I just expected this diagnosis after the symptoms began to appear and knowing I fit the profile. My GYN called me at work and gave me the results over the phone that my endometrial lining cells indicated cancer was present and I needed to have a transvaginal ultrasound done before seeing a gyno-oncologist. I felt a strange calm come over me after this phone call that everything would be okay, and this was weird given I am suseptible to anxiety attacks!
Both the gyno and the gyno oncologist told me I would need a radical hysterectomy which I will have on 1/7/13.
I have cried a few times since the diagnosis especially when having to tell my disabled husband and 3 adult duaghters who were all very upset. But overall I just feel so calm! I don't get it.
Anyhow, I was also told it appears to be grade 1 and stage 1, but the stage cannot be determined until after the uterus, ovaries, lymph nodes, etc. are removed at surgery. It seems many of you were able to get more definite information about this from your endometrial biopsies or if you had a D&C diagnosis...am I not asking enough questions or are my docs not volunteering enough info?
The only real concern I have is the surgery itself...I am 100 pounds overweight, am 55, and sedentary so I worry about making it through given I amnot very active or in great 'fighting' shape. I only have high blood pressure and obesity and have not had any surgeries since my tonsils and a knee surgery as a kid. Can anyone tell me how long the DaVinci hysterectomy takes? (I forgot to ask!)
Any other feedback or advice would be appreciated.
Thanks to all for any help. I do not have any close friends...my husband is my best friend and my daughters are my support system to a point so I think this board will be my main source of getting through this.