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Got the results on line for MRI 12/27

camul's picture
camul
Posts: 2062
Joined: Dec 2010

Unfortunately, what I was expecting.  There is increased metabolic activity in L3/4, 4/5, L5/S1, as well as in the T/ spine.  Term used is 'worsening'.  It is what was expected, but I was still hoping for arthritis instead:))  So I will still go fishing next week with my family at Lake Mead, it is warmer than here.  My mobility is lessening so my doctor has said to do whatever I feel I can handle and I enjoy spending the time with them.  I will stay at the hotel while they all go fishing, and then we will be together the rest of the day.  Works for me, and if the drive is too hard I will fly home with one of my boys.  My ex will be going with us too.

Doris, you are so right!  I have been able to gauge the progress by the pain and symptoms.  I will say though that I am feeling so much better not on the chemo, and unfortunately for me, the cancer continued to grow while I was on it.  At this point it is not quite palliative as I am still on herceptin and Evista, but chemo is no longer an option, and I have not been able to bring myself to go on hospice.  I keep hoping that the herceptin and Evista is slowing the progression some, but pain levels and MRI tell me otherwise.  So now it is quality over quantity!  I am not giving up on living, my body is just wearing out! 

Had MRI to check the spine from the neck to the tailbone to find out what the beast has been doing.  Got results from liver function tests and heart echo last week, both were good!  However, we are not expecting the same results from the MRI, but it will at least let us know how much more damage this little beast has caused for sure, as the pain and mobility in my back and hips is worse.   Now if they don't have to stop the test too many times....  very claustraphobic even with valium! 

 

 

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Carol,  I will be praying for the best results!

mommaellen's picture
mommaellen
Posts: 188
Joined: Nov 2012

Sending prayers to you.

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

Good luck with your MRI. Your in my prayers sweetheart.  Praying for good news when will you know the results?

aisling8's picture
aisling8
Posts: 1271
Joined: Feb 2010

all crossed for you, Carol.

 

 

camul's picture
camul
Posts: 2062
Joined: Dec 2010

Get this, what are the chances of 2 power outages while I am in the tube. 45 minute MRI took over 2 1/2 hours. Thank God for Valium! After the first outage they had to reset the.machine so I was out of the tube for 10 minutes, after the second one, the generators kicked in and they didnt have to reset so they used the down time to access the port so it was ready when they got to the contrast. Had to laugh with his one. Now I dont see the doctor til 2 weeks from Friday....
Which is okay with me, as we already have the diagnosis, just glad I was able to get these tests done b4 the new co-pays kick in.
Thanks everyone. Victoria keep em crossed.

JanPat
Posts: 25
Joined: Nov 2012

Praying for you and your family.

laughs_a_lot's picture
laughs_a_lot
Posts: 1368
Joined: Mar 2011

in the day I will be praying nonetheless.

CypressCynthia's picture
CypressCynthia
Posts: 3973
Joined: Oct 2009

Praying for you and sending big, big hugs!!  Hoping for all good news Smile.

VickiSam's picture
VickiSam
Posts: 8271
Joined: Aug 2009

Results!   Kiss

Prayers and positive thoughts for you dear Sister.

 

Vicki Sam

 

 

SIROD's picture
SIROD
Posts: 2161
Joined: Jun 2010

Hoping that the news will be better than your pain is indicating.  Though for me, I have always been able to tell what the outcome of the scan would show by the symptoms I was experiencing.  Every now and then, I had a surprise.  I hope it will be that for you too.

 

Wishing you the best, Carol,

 

Doris

 

 

debi.18's picture
debi.18
Posts: 849
Joined: Jun 2011

Carol, keeping you in my prayers and sending lots of hugs and positive thoughts.

hugs, Debi

Bella Luna's picture
Bella Luna
Posts: 1572
Joined: Aug 2009

You will be in my thoughts and prayers as you undergo an MRI.  Big hugs to you.

Ines

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

I'm really glad you made it!  But 2.5 hours sounds torturous..

I had and MRI when I was in the hospital with shingles.  I was so doped up I don't remember any of it!  Not the ride there, or all the noises...nothing.

Let us know what the results are when you get them.

 

Hugs,

Linda

SIROD's picture
SIROD
Posts: 2161
Joined: Jun 2010

Carol,

I am so sorry.   I really hoped.   I know when we are really in tune with our bodies, we do know.  Your doctor's statement is correct, do whatever makes you happy.

Understand how you feel about hospice.  Palliative care program can help you with the adjustment and you can take medication on that program.  Why not check it out at your cancer center or hospital?  I plan on this step when I need it.  Please call them for information.

I copied the following for my parents when they wanted to know more.  They are in assisted care now so it's a mute point for them.  I kept what I found for me later:

Comparing palliative care and hospice care

Although you may hear these terms used in similar ways, they are slightly different. Palliative care is given at every step of the treatment process and at all stages, whereas hospice care is a form of palliative care given to people with cancer who are expected to live six months or less, regardless of their age or type of cancer. If a person needs to make the transition to hospice care, palliative care specialists will help with the transition to hospice care and address the physical and emotional issues that come with that choice.

Wishing you a nice time at Lake Mead and a lot of joy sharing time with your sons.

Best,

Doris

 

 

 

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Lake Mead and time with the family sounds fabulous.  I hope you thouroughly enjoy it!!  I agree with Doris, pallative care might be just right for you.  

Hugs,

Linda

camul's picture
camul
Posts: 2062
Joined: Dec 2010

with the patches.  It is the hospice that they suggested that I am having trouble with.  I volunteered with hospice for a year, and if I do tht I would have to stop the herceptin and the hormonal treatment (Evista), and if there is any way at all that these are slowing the progression I want to stay on them.  I was worried about the tumors in the liver, but my onco is not concerned about those.  His concern is the bone tumors. When I become 100% reliant on my wheelchair, then I risk pneumonia. 

Amazing what this disease can take from you, but also amazing (although I wish I would not have learned this firsthand), is how it opens your eyes to life around you and how much we have to be thankful for. 

Hugs to all of you,

Carol

 

garam
Posts: 1
Joined: Dec 2012

I hope u okay!

 

Sending prayers to you.

sea60's picture
sea60
Posts: 2601
Joined: May 2010

Sending my hugs. Enjoy your time with your precious family.

 

Sylvia

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