Dec 26, 2012 - 10:25 am
Unfortunately, what I was expecting. There is increased metabolic activity in L3/4, 4/5, L5/S1, as well as in the T/ spine. Term used is 'worsening'. It is what was expected, but I was still hoping for arthritis instead:)) So I will still go fishing next week with my family at Lake Mead, it is warmer than here. My mobility is lessening so my doctor has said to do whatever I feel I can handle and I enjoy spending the time with them. I will stay at the hotel while they all go fishing, and then we will be together the rest of the day. Works for me, and if the drive is too hard I will fly home with one of my boys. My ex will be going with us too.
Doris, you are so right! I have been able to gauge the progress by the pain and symptoms. I will say though that I am feeling so much better not on the chemo, and unfortunately for me, the cancer continued to grow while I was on it. At this point it is not quite palliative as I am still on herceptin and Evista, but chemo is no longer an option, and I have not been able to bring myself to go on hospice. I keep hoping that the herceptin and Evista is slowing the progression some, but pain levels and MRI tell me otherwise. So now it is quality over quantity! I am not giving up on living, my body is just wearing out!
Had MRI to check the spine from the neck to the tailbone to find out what the beast has been doing. Got results from liver function tests and heart echo last week, both were good! However, we are not expecting the same results from the MRI, but it will at least let us know how much more damage this little beast has caused for sure, as the pain and mobility in my back and hips is worse. Now if they don't have to stop the test too many times.... very claustraphobic even with valium!