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Latest CA 125

kikz's picture
kikz
Posts: 1270
Joined: Jun 2010

Received results in mail yesterday. Rose again from 31 to 40. Onc says we will do the January test and a petscan to see what is going on. I wish I would've thought to wait until after Christmas to open the letter. Last month I got the bad news the day after Thanksgiving. I must admit it is harder to keep upbeat. I am tired of thinking about this all the time.

I have Christmas Eve and Christmas Day at my house and I am kind of out of the mood for all the planning and cooking. I love to stay home but feel overwhelmed by the preparations. I don't want to be mopey and bring the party down.

I know I will pull it together because I have to keep reminding myself that this is still golden time for me. I feel great. I don't want to waste any of this precious time because at some point I know I will look back and wonder what my problem was. I still have options before I get to the chemo phase. It just all seems hopeless and pointless at times.

I feel better just venting to you. I decided I wasn't going to tell others about my results anymore unless they ask. My cousin called this morning and she knew something was wrong the minute she heard my voice. We are very close.

Thank you ladies and I always feel I have to apologize for moaning and groaning when many of you are in a much more difficult part of the journey. As always I wish you all the best and think of you all the time.

Karen

lovesanimals's picture
lovesanimals
Posts: 1251
Joined: Sep 2011

I'm so sorry to hear that your CA 125 rose again. Whether the number goes up by nine or ninety or more, any rise is stressful and scary for us. However, your doctor sounds very good and I know will present to you a good game plan after the pet scan and test next month. You really do have a lot of good options for beating cancer's butt. It's a bummer for you though, finding out about this before Christmas, but I agree that you'll find the strength to be able to pull it together. This journey is a rollercoaster ride of emotions, as we all know all too well, but I am so glad you feel free in sharing your feelings with us. We're here for you!

Big hugs,
Kelly

MJensen
Posts: 93
Joined: Oct 2012

Karen,
I am so sorry you didn't get the news you were hoping for. I know how tough it is around the holidays. I see how you take challenges and do really well. I am sure you will get into the Holiday spirit and pull together a great party. It will be a good distraction while you wait to see what the DR has in mind. It seems to me the number is moving slowly which is good. My Dr always gauges how I am doing by how I am feeling rather than my CA125 number. I think it is awesome that you feel great. Hope you find the Holiday spirit soon and have a very Merry Christmas and a good plan for continued good health in 2013 <3 Michele.

2timothy1 7's picture
2timothy1 7
Posts: 336
Joined: Jan 2012

Hi Karen
Sorry you have gotten these results. You are not alone in your battle. Mine rose from 20 to 49. Possibly looking at chemo again in jan:(. Hate this disease!

Alexandra's picture
Alexandra
Posts: 1221
Joined: Jul 2012

I hope you continue to feel great and don't let the numbers ruin your holiday. Christmas time is stressful and emotional enough.
2013 will be a very good year for you and for everyone on this board, I can feel it.

Hugs,
Alexandra

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