CSN Login
Members Online: 15

Roll Call

debrajo's picture
debrajo
Posts: 790
Joined: Sep 2011

They are doing a roll call over on the Ovarian board....maybe we could do the same? Take a look at their board and see what you think. Best, Debrajo

icare46nu
Posts: 7
Joined: Jan 2013

sorry for repeat. poor connection

debrajo's picture
debrajo
Posts: 790
Joined: Sep 2011

If you are at peace, you are way ahead of the game.  I am still not at peace with things and probably never will be.  There are so many "what if's".  I still beat myself up for missing what little signs I had, then had to wait from July 26,09 to Dec. 3, '09 for the surgery.  Was not a happy camper at all.  I didn't really take time to research treatment centers or doctors since I am blessed to live about 90 minutes from M.D. Anderson in Houston, Texas.  I was able to drive myself on treatment days there and back alone.  Had very few side affects from chemo and radiation.  Lost the hair(no big deal) aches and pains(typical),moodyness(I'm moody anyway)Irritable (I am married and have six kids and nine grands),fatigue(I'm 61 and fat) so all in all not too different than everyday.  Anxizity and fear of the unknown(I don't like surprises either) and Houston traffic were the worst for me.  Oh, and my level of patiences with stupid REALLY went down!  The things at home were hard.  Read "Stupid" and "Husband" in the same light.  Had lots of issues with him...but that's been going on for 45 years.  You will get soooo tired of hearing "everyone is different" with the physical things, but it is true.  I had no bowel or bladder issues.  No stomach problems, no nausia, but the steroids put thirty pounds on me I DID NOT need, which I STILL haven't been able to take off.  I'm not sure about how positive I am, I resent the HELL out of this cancer, but so many of the ladies here have been able to talk me back from the dark side!  Please check back in with us and let us know what is going on.  There will ALWAYS be someone here that has been through what you are going through to help, guide and encourage.   Be at peace, breath deep, and smile...we've got your back!   Best, Debrajo

icare46nu
Posts: 7
Joined: Jan 2013

thank you!   Smile  I am very glad that strange circumstances led to an early diagnosis. Sugery is the 21st. oncologist was warm and comforting; smiled and answered every question and didn't seem to think any of them were frivilous/silly. He spoke with respect and treated me as intelligent. I too am fat but, he didn't make me feel negatively. I am a very blessed person and truely appreciate that. I am married 32 years this year to a man who has grown with me through the years. We have been pregnant 6 times with 4 wonderful adult children who all have terrific mates and our 3+ grandbabies. We also, have a foster daughter who has continued contact with us and she has 2 children who think of me as their grandmother. It is amazing that you HAVE patience with stupid; me...I never developed that (lol); it seems that common sense isn't really common and I just avoid those at every turn. lol We will see where this journey goes after the surgery but the dr seems optimistic at the moment so, I chose to hold that feeling. is this the correct thread for me on these boards? I will check back after I have more information/the surgery. Thank you for your blessing of peace, I will accept it and hold it dear to this process. I wish you peace of mind and spirit to continue your journey. 

icare46nu
Posts: 7
Joined: Jan 2013

Surgery done;took it all: uterus, tubes, ovaries, cervix. He saw nothing particularly suspicious so only took lympths around the uterus.

follow up att. today: Endometrian cancer grade 1 stage 1; no evidence in tubes, ovaries and cervix. NO evidence in lympths! Yeah!!

There will be no additional treatments (chemo or readiation) at this time. But....check ups every 3 months for 2 years befor clean bill of

health.  I am happy! My family and friends are happy! Time will go fast and I am positive in my long term health. sending strength and

peace to each of you!! Will check back here often and hope to see new positive updates often. Thank you for being here and open to helping

me on my journey!Smile 

ConnieSW's picture
ConnieSW
Posts: 611
Joined: Jun 2012

So  delighted for you.  May you live happily ever after.

NorahS
Posts: 93
Joined: Dec 2012

I am so happy that you have such good news!

Please go to your 3 month checkups faithfully so that you can get the good news all over again! Smile

icare46nu
Posts: 7
Joined: Jan 2013

oops, sent twice

debrajo's picture
debrajo
Posts: 790
Joined: Sep 2011

Hi Icare, sorry you are here, but we try to take care of each other.  A lot depends on the KIND of cancer,the stage and grade(after surgery). I was 1a, but grade c(aggressive)and poorly differentiated(not good).  I wasn't really given a choice of treatment for my UPSC.  It was either everything or goodbye.  I had a total, radical hysterectomy,full belly open and everthing but nodes taken out.  Six rounds of Taxol/Carboplatin and five rounds of internal radiation.  Not easy, but doable.  I am 32 months out of treatment and doing well,thank God.  You are getting ahead of yourself.  Wait til after surgery when all the results are in then make your choise.  There will be plenty of time after surgery to get your head wraped around everything.  Of course you are overwhelmed....just the diagnosis is like a sucker-punch!   Let us know what we can help you with, ask all the questions you want...we talk about EVERYTHING here!  Best, debrajo

soromer
Posts: 130
Joined: Mar 2011

Symptoms and Diagnosis:

In the spring of 2010, at the age of 52, I thought I was close to menopause, not having had a period for eleven months. But in June, it started up again. After two months of more or less steady vaginal bleeding, plus a watery discharge, I thought I’d better get it checked out. Unfortunately, the first gyno I found I didn’t like much, and I decided not to take him up on his offer to do an endometrial biopsy in his office--mostly since it was the day before my wedding (July 2010). To quell the bleeding during my honeymoon, the doc prescribed some Estradiol. Probably not a good plan, now that I know what I know.

I saw a gyno I liked better in September, 2010 but she wasn’t too concerned; my transvaginal ultrasound didn’t look bad. We scheduled a D&C for January, since I’d also started a new job and didn’t want to take time off right away. But by November I was really ill, and by late December I was hemorrhaging more than bleeding.

The D & C I had in January, 2011, confirmed grade 2 endometrial adenocarcinoma; my husband and I went back to the gyno for the official news on my older daughter’s 26th birthday.

I had surgery—DaVinci TVH & BSO—in February, 2011. Pathology showed LVSI plus some cervical involvement; also, several lymph nodes in pelvis and para-aortic region came back positive for cancer, including one node that could only be partly resected. That produced the Stage IIIC2 diagnosis.

Treatment:

I started doxorubicin (Adriamycin) and cisplatin three weeks post-surgery. I completed 6 rounds despite having serious neutropenia after the first round, which landed me in the hospital and indirectly cost me my job. Neulasta took care of the neutropenia on later rounds.

Upon completion of the chemo in August 2011, I was supposed to have external pelvic radiation, but my chest CT came back with eight small nodes, which meant radiation was moot. I started Megace at that point, since my tumor cells were strongly ER and PR +, and obtained a second opinion. That consult confirmed that I was probably in the best place for oncology treatment already.

I also began several alternative/complementary treatments, some of which I continue today. Reiki helped me eliminate my fear. Meditation and visualization helped with that, too. Yoga and qi gong were therapeutic and reassuring, especially in early recovery. Deep breathing, singing, and walking in natural beauty made a difference as well.

For a while I was completely vegan, and I consumed a LOT of wheatgrass. I need to get back into a more healthy diet than what I’ve pursued in the past few months. I like the Anti-Cancer approach very much. I still take very large quantities of Vitamin D3, since my levels were 12 when I was diagnosed; they’ve rebounded well.

My most important complementary treatments have been Ayurveda and acupuncture. Acupuncture eliminated my neuropathy completely and now supports my immune system. Ayurveda has helped  promote an integration of body, mind, and spirit in this fight for my life.

Current status:

Each CT scan since the bad one in September, 2011 showed continuous improvement until I reached NED officially in June, 2012. My latest onco consult, yesterday, confirmed that I’m doing well. My CA-125 levels have always been low, even with the lung mets, but now they’re down to between 6 & 10. My next CT is in April. My oncologist has had some patients on Megace alone for many years without disease progression, and I am hopeful I'll be in that group. The worst side-effects are night sweats, but I'll take them gladly if the other choice is getting sicker or needing chemo.

Current activities:

I qualified for SSDI shortly after losing my job, but that benefit doesn’t make up for the loss of income from work plus health insurance, which I carried for my family. The financial impact on us of my cancer has been sudden and severe, especially since many of my treatments are not covered by insurance anyway. I’m hoping to do some freelance editing for students in this big university town where we live (SE Michigan) to help us catch up.

My husband has been valiant through all of our challenges. My daughters have had some tough times, especially my now 16-year-old, but she is more stable too now that I am better. The almost 28-year-old is a rock, though I still try not to burden her to excess.

I’m planning a big party, which may also be a fundraiser, for my birthday early next month: “Fifty-five and Stayin’ Alive.” Has some potential, no?

It’s great to have the online supports like this board & the others I frequent, including one that I started in a different venue. I couldn’t have made it this far without the encouragement and love of dozens, if not hundreds, of people, including some I may never meet in person. My prayers for healing go out to all the women here.

 

soromer
Posts: 130
Joined: Mar 2011

Sorry, forgot that small detail!

HappyHen
Posts: 1
Joined: Dec 2012

Happy Hen, aka, Coleen

 

Diagnosed with Endometrial Cancer, Stage 2, Grade 3

Pre-cancer medical history includes Polycystic Ovarian Syndrome, Infertility (despite fertility treatments and years of trying), High Blood Pressure, Type II Diabetes, and High Functioning Autism (aka, Asperger's Syndrome)

Total Abdominal Hysterectomy to remove a cantaloupe sized uterus full of tumor, October of 2012

3 internal radiation treatments (I go for my post treatment check up with the radiologist later today)

Am taking arimidex, an aromatase inhibitor, to help keep estrogen that remains even after ovaries were removed from feeding any cancer cells that still remain.   Also metformin for my type II diabetes, and diovan for high blood pressure.

My GYN ONC would like me to do 6 rounds of carboplatin/taxol, but I am unable to do that at this time (long, complicated story, but it's NOT because I'm afraid of chemo)

I'm fighting this thing with careful diet and supplements.  I have lost 39 pounds since my diagnosis in September (slow, controlled weight loss, about 1 to 1 and a half pounds per week, every week).   My A1c (measure of one's average blood sugar) is down to 5.2, and my blood pressure and chloesterol are also improving significantly as I loose weight.

Supplements I take include curcumin, CO-Q-10, quercetin, maitake mushroom (d fraction) in tablet form, milk thistle (for the liver), chlorella (for general detoxification), raw calcium with magnesium, vitamin D, and vitamin K (to help keep the arimidex from causing loss of bone density), resveratrol, probiotics (both a general probiotic, and also one that is especially formulated for vaginal health), green tea supplement, and a whole food based multi-vitamin.

And I'm blessed to have one of the best GYN ONCs on this planet, IMHO !

I'm currently N.E.D., almost six months after my hysterectomy.

susangr
Posts: 63
Joined: Oct 2010

Diagnosed August 2010 

UPSC Stage 1A Grade 3

Total hysterectomy/omentum removed/22 lymph nodes negative but positive lymph vascular space invasion.

Treated MD Anderson  Taxol weekly x 5 weeks with radiation. Da Vinci approach. Last week of treatment added 3 brachytherapy. Then followed by 3 treatments Taxol every 21 days.  Because of neuropathy changed to Taxotere for last 2 treatments. 

2 years out now depending on how you count. NED

From Corpus Christi, Texas. 

Just living each day to fullest

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network