Dec 18, 2012 - 4:13 pm
I'm new to the discussion board forum world but I've been reading different boards and there is a lot of helpful and inspiring stories. My dad was diagnosed with Stage IV Colon Cancer about 2 1/2 years ago. They also found two spots on his liver. He immediately had surgery on his colon. It was very successful. Once he was able, he began receiving chemo every other week. He is now about to start his fourth combination of chemo (not sure what its called) as his doctor says the other is not working anymore. She says there are only 5 and once he becomes immune then that's it. He has been taking Chemo every week for the last year or so.
About a year and half ago, I asked him to go for a second opinion at MD Anderson and they wanted to do surgery on the liver. His doctor in San Antonio said she didn't agree with the surgery because there was nothing there, that the cancer in the liver was "dead". After going through a major surgery already she had made up his mind and he opted not to have surgery. Reading this board it seems like people have had multiple surgeries and it has helped.
His current doctor relies heavily on CEA counts and continue to do scans every once in awhile and they come back clear. In the last couple of months his CEA counts have increased from 7-ish to 21.3 on the most recent test.
I'll admit I have not been as involved with his appointments as I should have because he felt comfortable with his doctors and their decisions. I'm at a point where I'm not going to just sit around and let his doc tell him what to do. I'm in the process of making an appointment for a third opinion.
Anyone have an opinion on the situation or suggestions?
I guess my biggest question is (probably bc of my lack of knowledge) is the fact that his current doc relies so heavily on CEA counts when his PET and CTs dont show anything. I just want him to have as much time as possible.
Your opinions and suggestions are greatly appreciated!