Dec 16, 2012 - 11:14 pm
I love coming to this site because people are truly my friends, but lately I have felt out of place. Yes David has head and neck cancer, but the plasma cell leukemia is ruling our lives right now. The doctor came in today with a new chemo regimine for after Christmas and it doesn't include Cisplatin any more so none of the chemo agents will be targeting squamous cells. I asked the doctor and he said David only has a 10% chance of dying from the head and neck cancer in a year, but will most certainly die from the leukemia if we don't focus on that. I read everyone's posts and I am finding I am having a harder time replying since everything went off course. Yes he had stage IV BOT cancer, had the davinci robotic surgery to remove it. Didn't have a neck dissection, but had a lymph node removed. Only had 14 radiation treatments. So I often don't feel I can give advice, because our experience has been so atypical. Everyone has been so helpful and supportive to me and I don't feel like I'm doing my part on this site. I just wish things were different.