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base of tongue/node Rad & thyroid?

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

With radiation on the back of tongue and one the lyphnode has anyone had any damage to their thyroid gland? I just was worrying about it.
thanks for any feedback
Sue

cureitall66's picture
cureitall66
Posts: 867
Joined: Aug 2012

Loved one was BOT and just finished tx a few weeks ago. We have not had that issue at this time. I have read others on this forum have had thyroid issues after tx. I'm sure someone will chime in to help with that question. Good luck to you.

~C

phrannie51's picture
phrannie51
Posts: 3783
Joined: Mar 2012

but they keep checking on my thyroid, as any radiation to the head and neck can cause problems with the thyroid down the road. Don't worry about it, it's an easy fix...

p

D Lewis's picture
D Lewis
Posts: 1533
Joined: Jan 2010

I was also told that I could expect my thyroid to stop working at some point. I had base of tongue and several lymph nodes, on both sides of my neck, so I got a lot of radiation. So far so good. 2 1/2 years out from end of treatment, and my bloodwork last weeks showed my thyroid to be normal. Yay.

Deb

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Been a number of people who have had issues to varying degrees about the Thyroid, including me. Thyroid damage/changes are often evidenced by feeling cold. My rad Dr ordered a regular blood test when I told her about it, and there's a certain level of something that they use as a marker for the need, or not, to get a certain pill to take. I have never reached that level, but know others have over the years.

The flip side is that the summer heat is not nearly as bad as it was pre-C. We had a very hot summer in the humid north midwest, and on a day when the high was 102* what did I do? Went golfing, like I had on a few other 100*+ days! On that particular day I shot an 81 on the par-70 Duck Creek golf course, which is the best I've ever done! Drank water like a Mississippi River fish (not like one of them there Florida flounder pseudo-fish!!!), and there was a little breeze...the gift of rads that keeps giving does give some side-effect good.

kcass

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

Hi Sue,

A high percentage of people that have went through rads will develope thyroid issues, not all but many.

Unfortunately, it's one of the possible long term effects from rads.

The good news is that it's usually very treatable with synthetic meds, Synthroid for one.

The main indicators for thyroid damage are in the blood tests...

TSH and Free T-4, if at some point it isn't mentioned, or not being monitored, you can always ask about it and request the tests added to your regular blood tests.

Best,
John

CivilMatt's picture
CivilMatt
Posts: 3012
Joined: May 2012

Hi Sue,

Guinea Pig Matt here, base of tongue 1 lymph node, rads and Erbitux. I am currently “borderline” on the thyroid front. Waiting for the next blood test (soon). Don’t know who to point my lazy finger at, but I am tired more than I use to be, but I love to sleep and I do sleep well.

Stay tuned for coming attractions.

Best,

Matt

longtermsurvivor's picture
longtermsurvivor
Posts: 1820
Joined: Mar 2010

before rads were even completed. So I went on replaccement. Through the first handful of years after treatment, the amount of thyroid replacement required gradually increased, eventually becoming stable. This is not uncommon.

Pat

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

Just have your doc check for hypothyroidism every once in awhile through a blood test. One tiny, inexpensive pill a day takes care of the damaged thyroid.

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