I'm sorry for posting so much, and being so needy. I don't know where to turn. My mom started her chemo yesterday - and is sooo very sick right now. She is in the hospital w/ IV fluids and zofran - unable to even swallow her saliva. Just prior to the chemo, she was nauseous, but was able to eat and drink small amounts (and voic). The nurses at the hospital, one in particular, upset me greatly tonight.
I had a talk w/ her outside my moms room and I broke down crying - saying how hard it was to see my mother sooo uncomfortable, and so nauseous. She told me they took an xray this am because they are keeping an eye on her bowels for a possible obstruction - (The initial x-ray 2 weeks ago did show some bowel involvement - I believe the surgeon used the word entanglement - but she has been able to eat and void). Then the nurse proceeded to sympathize w/ me and ask me if we had thought about hospice. WHAT??????? Nobody, not one md, has suggested this. The surgeon and med oncologist plan is to try the chemo to shrink things, then operate, then more chemo. Why, why, why did this nurse say this to me? Are the doctors not being straight w/ us? We have not yet talked prognosis or statistics w/ the doctors, we have only agreed to try the chemo regimen that they are recommending in hopes of shrinkage and some sort of remission.The nurse was insinuating that the way my mother felt today was due to advancement of her disease rather than the chemo. My mother was sick, and bloated, before she started her chemo, but no where near like this - so, to me, clearly - chemo has knocked her off her feet, so to speak - and we are expecting it to improve over the next few days. Evidently, this nurse has other ideas. She told me it was hard, and God would take my mom when he was ready. Gee, thanks.
I guess I just need to hear others who went into chemo in as rough of shape (very large belly, fluid, 20 cm tumor), and had a hard time w/ nauseous, and got through it all w/ eventual shrinkage of ascites and/or tumor. WAs chemo this hard on others?
Another nurse asked if my mother was going to have more chemo after this. Why would she ask that? Am I just reading way too much into everything?
I need to pull it together - mom just had chemo, feels horrible, but it will get better, right? Anybody? I am, once again, beside myself. Crying so hard today my eyes are almost swollen shut.