Dec 14, 2012 - 9:55 am
I read the posts with the idea of offering some personal experience information as a caregiver, but I am overwhelmed. There are so many new Stage IVs or Stage IIIs with complications. Some are not getting the protocol I understand to be the latest approach, and I don't understand why. Sometimes I think I read that the doctors indicate the condition is at an operable stage but prior medical history says the surgery would be risky and don't let the patient "go for it." I'm not there. I don't know their thinking. I'm certainly no medical professional. My husband's medical history included a previous quadruple by-pass, Type II diabetes, and dealing with two torn rotator cuffs while undergoing the treatment. He was in his early 70's at the time. It was rough; however, nearly 3 years later, he is enjoying living.
I feel inadequate to respond. I encourage those just diagnosed or in the initial treatment phase to go to a clinic--private or university--that specializes in cancer care so that a team approach can be utilized. I understand that a "team approach" involves doctors from several treatment areas who will be involved in the actual treatment plan -- a unified approach. I believe a "board approach" is where a group of highly specialized cancer specialists review the medical records of the patient and set in place a treatment plan but these doctors may not necessarily be the treating doctors.
I've read where major cancer centers have wrought miracles and I've read where they have, to me, screwed up. Likewise, I've read where unranked but highly qualified cancer clinics have done superb treatment (as in my husband's instance). I think the key is a clinic dedicated to the treatment of cancer.
There is no excuse for rudeness on the part of any medical staff, particularly the physicians and nurses. They are busy; however, it is their responsibility to care for each patient to the fullest extent of their knowledge and abilities.
So, I have little offer nowadays. But, I do hope that the posts that go unanswered or little response understand that as for myself, there is just uncertainty in what to say.
I do see some posts that are from very knowledgeable people, and I'm so glad they continue to post. Paul61, Donna70, Amajosmom, and others are instrumental in assisting our fellow travelers.