Hi ladies. I'm so sorry for each of your diagnosis! I am sick to my stomach with worry and am just dreading the worst.
Last year i went to my gyn complaining something was just not right. Dull constant aches in my left side, extreme tiredness, loss of weight, terrible pain during I-C. He did a pelvic MRI ( I am allergic to ct dye) and all was normal. He ran a bunch if blood work, c125, hcg, he4 and a few more. All was normal. This was dec 2011. Was told to have colonoscopy- all was normal. The pains and aches were chalked up to IBS.
Oct 2012, just 2 months ago I had a pelvic MRI by a different dr for a different reason. Had a cyst on my hairline and they wanted to make sure it was filled with that cheesy substance. This was done by my reg intern. All was good- I was told. I went to see a Gyn Onc this week to get her opinion in this chronic ache and extreme tiredness and I confessed my worry for peritoneal cancer and ovarian. She said it is "so" rare! Don't even go there! Ovarian cancer is rare but peritoneal cancer is just really really rare. I am 42. She said she will send me for a tv ultrasound. I went yesterday and the tech said there was a moderate amount of pelvic free fluid. Is that the same as ascites? I then looked at the MRI that I had done in October for the cheesy cyst and I saw a notation on there that said " small to moderate amount of pelvic free fluid". My dr never mentioned it to me. then again, I never mentioned that pain since it was for the cyst.
The Gyn Onc has not gotten the u/ s report yet but I am soooo scared!! What could all this be? How much pelvic free fluid is normal?
I can't find anything on the Internet that suggests anything other than ovarian/ peritoneal ca or cirrhosis.
I am soooooo sad. I need to raise my children and I just know this is bad!!
I can't hold myself together!
I called my gastointergist in the meantime and although he is sending me for an abdominal ct without dye since I'm allergic - he said that if I had this last year, I would've been dead by now. So much going thru my mind.
Please, please!!! Can you tell me how you were diagnosed? They did not see any abnormality on my pelvic MRI except for minimal to moderate pelvic fluid. Would lymph nodes or masses been present??
On Myyyy I just can't catch my breath! I'm too young to leave my children.