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DNA testing in England for 1000's

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

SteveD I was watching BBC news tonight and saw a story about England being the first country to start DNA testing for thousands of patients....the docs that I saw seemed to think it had great implications for cancer patients. They said they hoped to be able to target cancer with more specific chemo among other benefits....

are you following this story Steve???/

will you have a chance to take part???

mags

Lovekitties's picture
Lovekitties
Posts: 2989
Joined: Jan 2010

Here is a link from today regarding the subject:

http://www.number10.gov.uk/news/dna-tests-to-fight-cancer/

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

thanks for posting this, i don't feel quiet as foolish and crazy as many here have made out.

to think our genetics would have something to do with our illness, how foolish were all those oncologists who have fought these test and therapies for years.

"i just don't know what o do with this" quote from my onc a year ago about the genetic tumour test, so we just sat back and grew my peritoneal disease. goto love conventional medicine! hey ?

don't think how many lives and friends have been lost, its just to heart breaking.

its a little more of the iceberg being uncovered, maybe the therapies i am having in germany will be available at home, one day. ( but one day in the next century, i pray i am alive to see it, now that a good long term goal )

the science has always been compelling but government action and the medical establishment take so long to follow.

"doing nothing in the face of science is like peeing in the wind. you get wet if you don't aim wisely".

you can quote the above, its original and i like it!

hugs,
Pete

steved
Posts: 836
Joined: Apr 2004

Stragnely hadn't seen that here but been reading of it. Is a huge project to map whole genomes of thousands of pele with cancer to learn more about the genetics of the disease. It is a 3-5 year project so results and benefits from it are a long way off but willk undoubtably find colon cancer is genetically more than one illness (hard to believe my tumour that took seven year to recur and still hasn't spread beyond the pelvis is the same as another's whole spreads through out the body in months) and target treatments more.

Pete I don't agree with your criticism of your onc as the reality is at present so little is known for sure about the genetics of bowle cancer and stuff that is around has minimal clinical use yet except I guiding research more. Hopefully this kind of project will mean our docs can make sense when genetics tests come back that do guide treatment as at present we are a long ways off.

Thanks for highlighting this mags,

Steve

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

I believe this study will be government supported???? isn't that great? what wonderful commitment to cancer research and care

it will be very interesting as time passes to see who is chosen for this new testing. Are they interested in (old) survivors like us or do they want fresh blood :) so to speak. If the results take 3 to 5 years this is a question for us for sure...

mags

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

sorry but wrong kind of, come to germany, get a tumour and or genetics test and have targeted treatments.

so its "a long ways off" but only in the distance to germany from the rest of the world. but yes a long long long ways off in the mindsets and focus of doctors. ie personalised versus group stats based.

the results of genetics tests drive adjuvant off label drug use to tweak the immune system.
these tests are here today, i paid for them, still waiting on another set of genetic results. mate every patient should have these tests, they could further reduce recurrence rates. all of the western cancer models have missed the boat, i suspect its scientific and medical arrogance. to admit they got it wrong would put way to much guilt on many doctors hands, but thats where the responsibility lies I think.

my onc should have taken a copy of the report and read it and applied it dilagently , its not my fault we live with dysfunctional medical systems that let down so many, and cost so many lives. read the reports yourself. i made them public, many have. no one here in a year has done one of these tests that I have heard of. its others loss , not mine.

sorry steve, but i insisted on being treated as a molecularly separate individual, my onc could not cope the different mix of chemo recommended. ultimately its my choice not hers. i would have fired on the spot, if I knew then what i know now. the science of genetics and cancer is solid. if patients don't push like hell for the best care, well we just have to wait for our caring goverment and hospitals to deliver. we will be waiting along long time and way to many lives will be lost. this is just my opinion and nothing to get to fussed about, I am a peaceful meditator who has to keep his newly injected cancer vaccine functional and I won't get stressed over anything.

hugs,
Pete

YoVita's picture
YoVita
Posts: 562
Joined: Mar 2010

http://www.pbs.org/newshour/video/ - 9:48 minutes into the broadcast. Great to see government support for cancer research.

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