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matestisized colon cancer in perotineal cavity/omentum, etc

gk-01
Posts: 6
Joined: Dec 2012

hello, seeking help/advice regarding colon cancer spread to omentum and perotineal cavity.
my sister had colon cancer-surgery-chemo, 6 months after it showed in uterus, surgery+chemo. after months of peace, it now showed in her perotenial cavity. We are seeking advice regarding HIPEC and also IP chemo. Has anyone experienced this similar problem.

abrub's picture
abrub
Posts: 1543
Joined: Mar 2010

My cancer (appendix cancer) had metastasized to my peritoneal cavity, ovary and omentum. After a very intense debulking of all visible cancer, a belly port was placed so that I could have a form of 5FU delivered directly into my peritoneum at 300+x the strength they can give you in IV. The chemo was done in a number of biweekly 3 day cycles, where they'd administer 2 liters of chemo on Day one, and then one liter each on days 2 and 3, for a total of 4 liters. It was left to resorb.

Memorial Sloan Kettering (NYC) does this kind of treatment.

I know of many people who have had the HIPEC - done during surgery, possibly with IP chemo in hospital in the days immediately after surgery, but not over several months, as mine was.

You need to find specialists with lots of experience in this type of treatment.

By the way, my stage 4 appendix cancer has been in remission for almost 5 years.

gk-01
Posts: 6
Joined: Dec 2012

thankyou for the quick reponse. we went to nyc presb 2 weeks ago, refered to a great surgeon but werent thrilled with the onc, they offered hipec, with 15 weeks follow up ip chemo, another good one in paramus, but only hipec. 2 others strongly say not enough data to prescribe ip chemo for met colon---yet. we are still in decision stage. will keep posting. thankyou very much!greg posting for my sister.. regina

tanstaafl's picture
tanstaafl
Posts: 1014
Joined: Oct 2010

can you tell us more about the chemicals in the intraperitoneal infusion, Alice?

abrub's picture
abrub
Posts: 1543
Joined: Mar 2010

I created a separate forum thread for this.

thxmiker's picture
thxmiker
Posts: 1278
Joined: Oct 2010

Dr. Lentz at USC Medical and Dr. Lowe at UCSD Moore's Cancer institute, for the west coast. I see Dr. Lentz next Monday. Similar DX for me.

Sending our thoughts and prayers for a Great Outcome.

Best Always, mike

gk-01
Posts: 6
Joined: Dec 2012

we still doing research here on east coast, nj-phl-nyc area. thankyou very much!!

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

I have mets to omentum and peritoneum as well, but my oncologist at Northwestern is not a big fan of IP chemo. I believe they do a de-bulking first (remove as much tumor as possible) followed by the IP chemo. I think there is a reasonably high risk of complications and possibly death from this procedure, based on my limited research. You will want to go to an expert in this procedure, like Lentz at USC.

Tedd

gk-01
Posts: 6
Joined: Dec 2012

tedd, thanks for your comments, i believe we found a great surgeon and onc at nyc pres hospital. my sister is scheduled for debulking/hipec this january followed by 15 weeks of ip. We feel very confident at this point that this is her best option here on east coast. thankyou very much, will check back asap, greg

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

firstly welcome and i hope you get some support and good information here, i am sure you will. I am sorry you had to find us.

i had a recurrence with mets to the peritonum, the liver and the lung found in August 2012 and lower anterior resection surgery October 2010.

I have not done conventional treatment, i have declined this for the moment, I am waitlisted on a HIPEC and IP surgery list with Australia's leading hipec surgeon. He said about 25% cure rate for my class of disease. Friend here who just passed away had hipec, dr sugarbaker a world leader advises 6 months stability of no other mets and no lung or liver activity as a precondition to surgery. otherwise you just loose months of good quality life, do the surgery and then have mets coming back. A net loss balancing quality and quantity of life.

I have tried alot of complementary and alternative therpaies in the last 2 1/2 years and I feel great and am really healthy. Its just the scans and blood tests meant my sydney oncologist wrote me a challenging prognosis which allowed the life insurance to be paid out.

so i immediately went travelling for fun, I tried being a vegan , it did not cure me, so i wanted some meat. German like meat. While I was here I spent 2 months at a well regarded clinic Hallwang and had removab, chemo embolisation, infusions, supplements. My CEA fell from 1700 to 39 in 7 weeks. I gained about 8 kilograms as well and i feel great.

then I went to a dendritic cell vaccine clinic in duderstadt where I have had ozone, hyperthermia, infusions and newcastle virus disease and a special vaccine made up for my tumour thats designed for colorectal. I am the first in the world to have this vaccine. it experimental and expensive. I get a pet and mri with contrast and ct scans on Friday and more chemo embolisation.

good luck with whatever treatment you decide, this is just my experience, something different from conventional medicine. I like to be different.

have faith and hope. you will find a way, so will I and so will my friends here. Its a hard road but only those up to the challenge get selected.

after I get cured I dream of climbing mount everest. I hope this reply helps, feel free to PM me if you want any advice about overseas clinics. The next few months will tell a key part of my story, I pray its a good story.

hugs,
Pete

gk-01
Posts: 6
Joined: Dec 2012

pete43, thats an amazing story of survival. I am extremely in awe of your ability to travel to find the help you need. I wish you much success and appreciate the info you were willing to share. My sister has decided( and we agree) to go ahead with debulking, hipec and ip chemo at NYC Presbeterian hospital. Surgeon has many (approx 200) surgeries/hipec and her ONC there is noted as being the person to see for IP. We feel this is best for her right now. Thankyou very much, God Bless you, and I wish you luck in your success from treatment and hope to see your picture from the top of the mountain-or close by at least ! lol Sincerely, Greg

Llms23
Posts: 2
Joined: Nov 2013

Hi Pete 

I've been reading up lately on cancer vaccine on this site and your posts kept coming up.  How are you? 

tanstaafl's picture
tanstaafl
Posts: 1014
Joined: Oct 2010

This is an old thread, several no longer here.  Pete disappeared from the CSN board and has his own blog, search "pete gcmaf ca199". 

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