Dec 07, 2012 - 12:50 am
I had my first post-chemo and vaginal brachytherapy visit with my GYN oncologist, who is an amazing doctor and person who graduated from Harvard Medical School. I had stage 1 UPSC. I told her that I was concerned that my oncologist had told me that I would not be getting CAT scans because it seems like most of the UPSC posters on the boards were getting regular CAT scans and that even though recurrences were most common in the vaginal cuff, I was worried about remote recurrences. She told me that if I wanted a CAT scan, she would be happy to have one done but that she really liked to rely on CA 125 and examination. She said that CT scans showed things that look funny and cancer cells only when they get to a size where they have already presented symptoms. Also, it is pretty much a given that I will have something that looks funny on a CAT scan since I have benign hemangiomas on my liver and needed an MRI after my post-surgery CAT scan. Also, she says we already know I am at risk of cancer especially since I have other things going on like hypertension and MS so exposing me to radiation is not such a good thing. But she said, at the same time, if I feel stressed because I read the boards and everyone is having CAT scans and I am not, that stress is not good when it comes to cancer.
Anyway, I told her that I would like at least an annual scan and she said OK. I will be alternating visits with her and the oncologist so will be seeing oncologist in Feb. and her in Mar.
Just wondering what everyone has been told about regular CAT scans. Also my CA-125 which was 23 after my surgery is down to 18, completely normal.