CSN Login
Members Online: 23

PET scan and AdCC

lts's picture
lts
Posts: 71
Joined: Nov 2012

Wanted to share my history of scans, not to scare, but to encourage you to ask if it does not feel right.
Prior to dx I had an ultra sound - showed an ill defined area in submandibular gland. That promted a CT which showed nothing, specificaly nothing in or around the gland. Several doctors later had a MRI, also neg, specifically around the galnd. A few doctors later had FNA ultrasound guided biopsy of ill defined area identified in ultrasound. Positive for AdCC. Heres the kicker. After they knew what and where it was, I had a PET scan and it didn't show up.
The only imaging technique that picked up on my 3.4cm tumor was a ultrasound.

Luke

longtermsurvivor's picture
longtermsurvivor
Posts: 1457
Joined: Mar 2010

but not impossible. None of the techniques available are perfect. All have a certain false negative, as well as false positive rate. Thankfully your clinician persisted and pressed on to definitive studies. Failing to do that would have left you in a pickle. Wishing you the best.

Pat

CivilMatt's picture
CivilMatt
Posts: 1623
Joined: May 2012

Luke,

Kudos to your medical team, some people are just darn smart.

I felt a lump, had a fine needle biopsy, they found cancer, had a PET scan and my rear end lit up, yikes! A peak in the rear door, nothi