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UPDATE

PADANAG
Posts: 20
Joined: May 2012

Pathology reports are in,bad news is there is a regrowth in my brain. Good news is it is still only one spot. The rest of me still looks good, blood work is all good. the spot that is being treated is right next to the tumor that was removed in June. The original tumor site is clear, so the docs don't feel like it is traveling, we just need to treat a bigger area. They are not concerned about the discomfort in my rib areas, just scar tissue and post reconstruction surgery side effects. I will be starting whole brain radiation with hippacampus sparing on Monday. 10 treatments.

This puts a damper on the holidays. The hospital is over 100 miles round trip and trying to keep up with 5 kids is hard enough with out trying to juggle treatments and travel and the holidays. I am so tired, trying to recover from 2nd brain surgery in 5 months and now this.

After treatment I will get an MRI every 6 weeks. And they want to do CAT scans every few months on my chest, pelvis and abdomen. Part of me likes the idea of being watched closer, but I also have to deal with scan-xiety more often too.

I keep reminding myself of the positives-I did achieve PCR to the chemo, and since chemo doesn't cross the blood brain barrier, it is possible that this little bugger just got up there before the chemo did it's job. Disease tends to travel from the body to the brain, not the brain to the body--if we can get this under control, I have a good chance of "disease free survival".

So I guess my only choice is to keep praying and keep fighting.

Dana

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

you got this bad news so close to the holidays. The good thing is that your dr. is right on top of things. Starting treatment just before the holidays will be hard with 5 kids but I am sure you can do it! I will keep you in my thoughts. Just keep up the fight!

Hugs,
Georgia

VickiSam's picture
VickiSam
Posts: 8479
Joined: Aug 2009

Continued prayers ... as well as positive thoughts for you!

I wish you had someone to help you -- 100 miles to get treatment -- How you had
the opportunity to contact, or speak with the social worker at your Oncology center
to see if there are any groups, that assist with child care or traveling expenses?
ACS here has a link "rides to treatments" ..

You are so very STRONG, never forget that.

Strength, Courage and HOPE for a Cure.

Vicki Sam

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I am so sorry. Sending hugs and prayers!

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

I'm praying for you Dana and yes, you keep fighting! You've got all of us pinkies as your cheerleaders!

Sue :)

disneyfan2008
Posts: 5504
Joined: Oct 2010

Try to not stress over the HOlidays..just do what you can and dont' push it...

Take care of yourself...

Denise

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Praying and sending lots of support, strength and encouragement.

Big hugs, Diane

Eleanor1's picture
Eleanor1
Posts: 68
Joined: Sep 2012

I will definitely include you in my prayers.

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Thank you for letting us know your results. Praying..

roseann4
Posts: 994
Joined: Sep 2009

Wishing you good news next visit.

Roseann

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Big hugs to you today!

Praying, Debby

survivorbc09
Posts: 4378
Joined: Jun 2009

I am adding more prayers for you Dana.

Hugs, Jan

Pink Rose
Posts: 495
Joined: Nov 2012

I will put you on our prayer list at church.

nanniebgood
Posts: 42
Joined: Oct 2012

I'm so sorry about your scan but what a warrior you are!! I hope you can find help for the travel for tx, that sound vicious to do by yourself. Let the holidays take care of themselves, which is hard to do, and tkae good care of yourself, sending ((((big hugs)))) jan

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Very sorry of the news on your scan. Don't worry about the holidays, like everyone said. Focus on you and just take care of yourself.

Hugs, Noel

survivorbc09
Posts: 4378
Joined: Jun 2009

Thinking of you Dana. How are you?

Jan

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

There's never a good time to get this news and I am so sorry. Please keep posting to us so we know how you're doing.

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

I'm very sorry and send you the biggest hug that I can!

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