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"And Now For The Rest Of The Story"

wolfen's picture
wolfen
Posts: 1194
Joined: Apr 2009

Hello All,

I have been mostly silent for the last month. I have been swept up in another horrible tornado, just as I was back in 2008, when Johnnybegood uttered those words "Mom, I have colorectal cancer." At my hubby's insistence, we had not told her the news. She is feeling better, and her platelets are rising, and may be able to restart Avastin in the next few weeks. I would have done anything not to drop this one on her, but I could no longer "put on my happy face" during our long distance communications. Thanks to Winter and Craig, I have been able to retain a little of my sanity.

About six weeks ago my hubby was diagnosed with tongue cancer with mets to neck lymph nodes(right side) and left lung. Won't know if lung node is a met or other cancer until after lung biopsy. Treatment is Erbitux paired with 35 IMRT rads followed by surgery and reconstruction. This all preceded by extraction of at least 12 teeth by an oral surgeon in a hospital. Right now, we are on hold. He is now in A-fib and CHF. Can't get cardio to realize he is controlling the start of this process. Oral surgeon won't touch him in A-fib(who can blame him?) and cardio asst. says "Oh, it's okay for him to get a couple of teeth pulled while in A-fib. And, by the way, when was your last stress test?" He told her he was stressed enough, Thank You. So oral surgeon is sending cardio a letter outlining the procedure. The last time his A-fib required hospitalization, stopping his heart, and restarting it. Hopefully, cardio will realize how serious this is.

I have learned a lot from all you wonderful folks, one of the most important being to get a second opinion. Fortunately, we live near an MD Anderson and I have secured an appt. there for this Friday. Perhaps their treatment protocol won't be so harsh, who knows? I only know that the prognosis is not good, given his various medical problems.

So I come to you, my friends, just for hugs, words of comfort and wisdom, and perhaps a few prayers and good vibes to help us get through this.

Luv,

Wolfen

jen2012
Posts: 1195
Joined: Aug 2012

I'm sorry :(.....not fair how some families have to shoulder more than their fair share.

LivinginNH's picture
LivinginNH
Posts: 1290
Joined: Apr 2010

Oh my, I am so very very sorry to hear this news. I can offer little but a prayer...I am simply broken hearted for you. :'(

Wrapping my arms around you ((())).
Love to you and your family,
Cyn

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Wolfen,
I'm sorry you and your husband are going through this. Sending you hugs, prayers and good vibes. Hope MD And has a plan for your husband. You know we are here for you.
Ron

Lovekitties's picture
Lovekitties
Posts: 2933
Joined: Jan 2010

I am so very sorry for the news about your hubby. It seems that some families are destined to face this beast called cancer more than once.

While the treatments vary depending on the type of cancer, I am finding that there is also much simularity. My years here with all of you gave me a good foundation to help my sister in her fight with uterine cancer.

I hope that as you check out the specifics about your hubby's cancer, you will find the folks here to still be an excellent resource not only of information but also of love and caring and support.

My prayers for hubby and JBG that their fights are successful and for you dear Wolfen as you stand beside them and help them both.

Hugs and love,

Marie who loves kitties

Chelsea71
Posts: 1170
Joined: Sep 2012

I'm feeling sorry and ticked off that this has happened. Seems unfair. Pleased you're going to MD Anderson. I hope it goes well on Friday. Best of luck to you and your husband.

Chelsea

Brenda Bricco's picture
Brenda Bricco
Posts: 550
Joined: Aug 2011

So sorry WOlfen... you have been through so much.
GOD bless you!
Brenda

thxmiker's picture
thxmiker
Posts: 1214
Joined: Oct 2010

We are sending our good thought and prayers to help find the solutions for your family's health and strength.

Best Always, mike

Varmint5's picture
Varmint5
Posts: 371
Joined: Feb 2012

This is just too much. My heart just sank reading this. I know what you are going through with the worry about JBG - and now this. It's just too, too much. I am so sorry. It sounds like you have a plan and are on top of things - and your strength and spirit shines through in this post, as always. You can do this. And your friends here will be with you here throughout this ordeal - you can be sure of that. Wish I could give you a great big hug - will certainly send up some prayers and think positive for your husband's situation. Hang in there. And it's okay to cuss. I sure would be.

Sandy

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

I'm so very sorry to hear about your hubby. My uncle went through the same thing several years ago and he's in great shape today. I'm sure that with a caregiver like you that he'll come through this ordeal with a smile on his face. Please know that you have my prayers with you.

Doc

rogina2336's picture
rogina2336
Posts: 188
Joined: Apr 2011

So sorry Wolfen. Sending hugs and prayers. Kim

Sundanceh's picture
Sundanceh
Posts: 4282
Joined: Jun 2009

"Hugs, Mama"

Proud to serve beside you:)

Love/Craig

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

are coming your way. so sorry to hear about your hubby. let's pray that md anderson will have a positive plan.
hugs
judy

smokeyjoe
Posts: 1428
Joined: Feb 2011

(((HUGS)))

annalexandria's picture
annalexandria
Posts: 2200
Joined: Oct 2011

This is so upsetting to hear, Wolfen. Your poor family. I can relate, as I have three siblings who have had cancer. Having to tell my mom that I had crc (my sister had died just a few years before) was utterly horrible. This is just such a hard situation. I hope MD Anderson can provide your husband with some clear answers and a more hopeful path for treatment. Keeping all of you in my thoughts, and sending strength your way~Ann Alexandria

thingy45's picture
thingy45
Posts: 576
Joined: Apr 2011

Oh Mama Wolfen, What can I say. First the worry about JBG and now hubby. The saying goes God never gives you more then you can handle, but sometimes you wonder.......
You must be such a strong woman that it all comes back to your shoulders.
For you now it is to remember that we are standing with you here, shoulder to shoulder.
One day at a time, stress ofcourse is no good, so lets tackle one thing at a time.

Much love and hugs are being send together with many prayers for healing and strength
Love and Hugs Wolfen, Marjan

Kathleen808's picture
Kathleen808
Posts: 2301
Joined: Jan 2009

Oh Wolfen,

Ohhhhhhh. I feel for you so much. I am so sorry this has been added to your family's stress. We are here for you my friend. I will keep you, jbg, your husband all in my prayers. Please lean on us.

Aloha,
Kathleen

herdizziness's picture
herdizziness
Posts: 3397
Joined: Apr 2010

Here for you anytime girl.
Winter Marie

wolfen's picture
wolfen
Posts: 1194
Joined: Apr 2009

Thanks to all of you for your prayers and good wishes.

Had consult with MDA today. Doctor will be consulting with various specialits(cardio, pulmonary, etc.) to decide on treatment plan. Is also ordering new CT and labs before our next meeting. Was very impressed with staff and attitude.

One odd thing was lack of patients. I expected the place to be running over, but it is relatively new to this area and in competition with Mayo and CCoA. Hubby, of course, is not confident with success, given his medical problems, but at least feels they are trying.

So will just hang on for now. Right now the biggest problem is lack of appetite which I'm sure all of you can identify with. So I'm pushing breakfast drinks, milk, anything soft. He says everything tastes like $hit.

Luv,

Wolfen

mukamom's picture
mukamom
Posts: 357
Joined: Oct 2010

about your DH. I can't imagine having to care and support the two most closest to you.

I pray for you strength and a succesful treatment plan.

((Hugs))
Angela

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

I am so sorry you are faced with another challenge. Your family has been through so much. I will praying for you all.

Cathleen Mary
Posts: 560
Joined: May 2011

Oh, Wolfen, I'm so sorry that all of you have to deal with this yet another time. I am glad that you went to MD Anderson. Know that you are in my heart and prayer. I wish my help could be hands on. Please, somehow, take care of you in the midst of all of this. Hope, Hope, Hope!

Hugs,
Cathleen Mary

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