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Good news bad news

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

Ok so last night went better with the exception of his hiccups and constant staff being in the room. This morning we found out the cancer js responding to treatment. His absolute plasma cell count was .22 down from 2.58. The goal was 1.29 by the 10th day following the start of chemo so we have already made the treatment goal. The bad news is his red and white blood counts are low. WBC is 1.6 and hemoglobin is 7.4. We were told more transfusions on the way. Davids system is still very acidic and his glucose level is 138. All these are caused by the chemo, but concerning non the less. David tells me he feels like he has the flu, but he is happy to have another day here on Earth. Sometimes I think he is just going to be fine and I keep praying that way. The problem is so much is stacked against him. If he gets through to bone marrow transplant, he still has a hip to deal with and residual H&N cancer. I am trying so hard to stay positive, but not seeing any light at the end of the tunnel is hard. I need to start looking into the compassionate care allowance for the leukemia. I am so afraid I will lose my job and I need him taken care of.

Skiffin16's picture
Skiffin16
Posts: 8053
Joined: Sep 2009

Actually it sounds pretty good.....

The blood counts should be easily brought up with meds.

Keep on pushing forward...

Best,
John

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

This is good news. With transfusion his levels should return to normal limits. Stay positive, I know easier said than done but do try. I will continue to pray for you both. I woke up at about 2 this morning and thought of you and offered up a prayer.
Please keep posting so we know how things are going. If I hear of any resources to help you financially I will let you know.
Be well,
Billie

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

Again I am overwhelmed by the support of my head and neck family. You guys have been here for me through all the emotional ups and downs. I know all my posts have not been easy to read, yet you read and support me in this chaotic life I am leading. I am fortunate to have had the opportunity to get to know you guys/girls before this nightmare began. I know I keep telling you how thankful I am for each of you, but now knowing how each day is precious and how at any moment I could lose any of you I want you to know exactly how I feel about you and how much your time in my life has enriched it. I wake up every morning and tell David I am happy we have another day together.

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

You are an amazing woman, so loving, so caring, a beautiful wife. I send my prayers for you and David every day, several times a day. Cherish each moment of every day, one day at a time. David seems very strong himself and I pray that he rises to the challenges ahead of him. Your love and support and patience are your beautiful gifts to help him. And you are such a good role model for the rest of us caretakers...

My best to you and David,

Kari

cureitall66's picture
cureitall66
Posts: 837
Joined: Aug 2012

Keep them close to you...even if you're doubting it. With all that David is dealing with, you have to take one issue at a time. And as you said you are thankful for each day, then you take one day at a time also.

Thinking of you both constantly. Your in my prayers....

~C

phrannie51's picture
phrannie51
Posts: 3601
Joined: Mar 2012

good than bad...Hurrah that he is responding to the chemo...that is HUGE!! The low blood counts...well, anyone getting chemo gets those, it's part of just the way things are. They can help him with that.

From what they told you when he began this treatment, how incredibly hard it is on the body...the fact that he feels like he's got the flu is understandable...and from my perspective, not as bad as it could have been.

I think there are way more plusses here than minuses.

p

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

and prayers. You and David really need a break. Some positive results and a little vacation from the treatments. Hope that is in your future. Rick.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

You all blew that plasma cell count goal out of the water! Wonderful to hear for a fact that the cancer is responding to treatment. Hoping for more progress along these lines. One hurdle at a time. Keep it up!

CivilMatt's picture
CivilMatt
Posts: 2809
Joined: May 2012

Vivian,

I’ll hang my hat on the good news. I am always hoping for the best for both of you.

Positive thoughts,

Matt

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