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coffee in duderstadt - out of the pan and into the fire "dendritric cell vaccine"

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

https://docs.google.com/file/d/1odbnNoKKsNYlsI17dkXBZ6s3bgSEPt4-iPkpqemeP00ZVUpZQJ1oqJpZQnuZ/edit

written by Thomas Neßelhut1, Dagmar Marx1, Jan Neßelhut1 and Fred Fändrich2
1Institute for Tumortherapy, Duderstadt
2Clinic for Applied Cellular Medicine, University of Kiel
Germany

these amazing doctors and researchers are saving lives without chemo, they are not sharks, they are legends and I am blessed to be here when all my sydney oncologists wereing offering palliative chemo and a quick longer term visit to lucifer! to much loving and living to do!

starting the above therapy tomorrow, but the colorectal version.

will this save my but ?

only one way to find out! i just left hallwangen clinic after 2 months and a small $100Kusd bill, now i am at duderstadt for 4 months of therapy. I will be back scuba diving in under 3 weeks, not a bad effort for 46 year old which had some mets to the liver, lung and peritoneal cavity. just about to redo the ct and pet, maybe sydney or germany. i feel fine and will have as much fun and excitement as treatment permits.

hugs,
pete

ps the science is compelling, thank you nwnm aka tony. your suggestions months ago were the equivalent to foreplay, all those months ago how ironic i am using this now. when you are a trail blazer you get shot by some and loved by others. one day I pray we will all realise "we can have our cake and eat it" please read and push your oncologists hard to expand their clinical awareness. they have to stop looking at themselves in the mirror each morning and think of you and realise the germans almost won the war. maybe they will win the war on cancer. thats my bet! thats where my life and money is going. you bet with your decisions, bet well my friends and have fun. I am! The roulette wheel is still spinning and I am still breathing. amen and thank you to all my friends.

pps my blog weeks ago about nobel prize winning science being implemented here.
http://petertrayhurn.blogspot.de/2012/11/todays-research-ginseng-nobel-prize.html

ppps this is the juicy part of the paper I have studied, its going to save my life with low or no chemo! thats my prayer.

promote antigen-specific recognition and avidity of potential anti-tumor effector cells, the
biology of antigens expressed by malignant glioma cells must be taken into consideration
while designing protocols for programming autologous dendritic cells and defining the
appropriate patient. For example, Prins and coworkers could recently shown that the gene
expression profile of the individual glioma can identify a subgroup of patients, that may be
more responsive to dendritic cell based immunotherapy (Prins et al., 2011). In this context
the combination with NDV seems to be a promising tool to modify tumor cells in vitro as
well as in vivo to a more immunogenic phenotype resulting in better immune recognition as
well as in better immune response.
The encouraging results of phase I/II trials have to be confirmed in phase III studies with
special emphasis on the maturation protocols for improvement of TH1-polarisation of
dendritic cells, which so far are still a matter of controversial discussion. Moreover, the
optimal antigen source, cell number of injected dendritic cells, frequency of vaccinations as
well as the right time point for vaccination are still not fully defined. Future studies should
also involve an immune monitoring of vaccinated patients. Immune monitoring methods
can include quantification of CD8+ and CD4+ T cells generated in response to the antigen or
measurement of the functional status of T cells analyzed by cytokine production. However,
it has to be taken into account that in vitro measurement of T cell responses do not always
correlate with clinical outcome (Carpentier & Meng, 2006). Thus, the best immunological
monitoring strategy is still intensively debated.
Finally, clinical trials for the evaluation of immune therapeutical approaches have to be
designed in a different way as for chemotherapeutical drugs. In this context the overall
survival rather than the reduction of tumor burden is probably the best primary endpoint.
Based on such a study design ProvengeTM, an immunological treatment based on antigen
presenting cells, received the FDA approval for treatment of hormone refractory prostate
cancer in spring 2010.

pppps http://petertrayhurn.blogspot.de/2012/12/my-life-in-his-hands.html
picture of my actual colorectal targetted personal vaccine.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

I wokeup, 5 am fresh and excited, getting prepared for my 10am with dr thomas nestlehut.
i have already done an hours discussion at the medical conference with him and dagmar. it pays to go to german conferences, you meet your medical team professionally and personally and its a free consult.

no replies here yet, come on, can some wish me well. i just drove 7 hours across germany in a snow storm to get here. then i made maf314 gcmaf yogurt in the hotel kitchen last night to midnight, then i put this post together.

sorry friends but these series of posts, removab and dendretric cell are the most cutting edge serious therapies that we can access. their are options to hardcore chemo, just saying and sharing... even if you don't agree with my choice you could wish me well, otherwise i will comeback and haunt this board. but don't worry that will be in another 54 years. i am still aiming at 100.

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

LOL, wish you well.
Glad you made it safe after driving in the snow storm.
Hugs,
Winter Marie

wolfen's picture
wolfen
Posts: 1198
Joined: Apr 2009

Not ignoring you and I definitely wish you well. Just a lot going on here now.

Luv,

Wolfen

steved
Posts: 836
Joined: Apr 2004

Pete, you wil get used to the fact that those of us in Europe are out of synch with the larger us contingent in posting time so delays on replies are common- you did only wait six hours!

Anyway, I do wish you luck- I haven't read much on treatments you are having and the stuff in your post above doesn't really give me much understanding so will try to find time to understand more. It is still very experimental in its development with a lot of unknowns so I do hope it goes well for you and the good thing is none of what you are doing now rules out more mainstream treatments down the line if necessary.

Will be following your progress closely and esp interested in the scan results which I guess will be a nervous time for you and your family.

All the best,

Steve

Chelsea71
Posts: 1170
Joined: Sep 2012

Happy you arrived safely. Wishing you the very best of luck. Anxious to hear all about it.

Chelsea

smokeyjoe
Posts: 1428
Joined: Feb 2011

Best wishes on your treatment, Pete!!! Keep us posted.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Thanks Pete, great post!
I usually don't have a CLUE what you're talking about, but have to say I admire your spirit.
Your Friend in California~
Tommycat

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i had another amazing meeting with doctor nestlehut.

I am the first rectal patient in the world to try the vaccine and the new peptide to induce a tumour apoptosis. i wanted to be on the cutting edge of science and now i am.

we are doing baseline scans 14 dec when i get my third chemoembolisation with doctor vogel.
the direct injection of chemo and avastin is positive for the micro tumour environment in that down regulating vegf stops/ prevents minimises the tumours ability to suppress the immune response using il2. i have to research this. my mp3 recorder died during the consult.

absolutely no chemo obver xmas, i can just relax with family this summer and pray these vaccines and therapies work, back here on 2feb13 for the second vaccine hit, this will be monthly for the next 6 months.

so i have asked for the german pet and angio ct and mri with contrast. its being organised.

the took 300 ml blood, and have started my vaccine.
we ordered the latest blood for cd4 and cd8 analysis of my immune system.
we ordered the bloods for tarlivin and the ketogenic diet test.
we are ordering today the heavyy metal blood test.
tomorrow ozone, hyperthermia and ndv injected, the goal being to dilate the tumour microenvironemnt to ensure the virus gets into the tumour cells.

the dreaded immune suppression from my folfox has me worried, my leocytes levels are low and i will see what we can do. i am sure when i get my platinum and mercury out my immune system will bounce back, it takes 7 years i think for our bone marrow cells to regenerate.

i just found a personal trainer here, joined the local gym for 2 weeks and am learning zumba. off to get a message and try my first session of ocothermia and newcastle virus disease.

did i tell you i was born in newcastle.

i get the vaccine next monday.

its bittely cold here.

peace and love to everyone, the therapies i am trying are not widely accepted and have risks, just be happy and have faith in whatever you do, smile and I pray whatever we try works well for each of us, we are all so different. what we have in common is this illness and a desire to live well and help each other.

another exciting day in the search for a cure. one small step for pete, maybe a giant leap for the colorectal community. i can dream that i will be lucky, to be the first on the planet with the most cutting edge science. another xmas present. but who is counting.

see my blog about the school community doing a fund raiser and my reply.

http://www.blogger.com/blogger.g?blogID=2969302819198622741#allposts/postNum=0

hugs,
Pete

ps i will get all the details about these therapies and put them here, i got the panadol to cope with the side effects of the ndv.

hugs,
Pete

ps i should get the exerise post going again, its still a top progostic indicator.

manwithnoname
Posts: 399
Joined: Jun 2012

I was born in Newcastle (UK), bizarre I come back here and you are doing DC vaccine, thats our route too, NDV failed us, just got out of hospital for 4th recurrence, huge tumour, they wanted to send our kid home to die, they changed their minds when we mentioned DC vaccine.

We are doing DC vaccine with tumor lysate ( if all goes to plan) still taking NDV, (our son still has faith in it) Israel can compete with Germany on cutting edge, shame it costs a fortune.

I have some crucial info. on DC vaccines, will mail you it soon.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Our dear friends may learn.

Did you do mutated ndv, did you do oncothermia to head?
You goto get the virus into the tumour, every last screwed up Cell.

What about the snail virus? Other options besides ndv!

For what's worth I'd get an opinion from Dr colic or Ursula Jacob, see my blog.

I have not heard from you and I suspected you boy was in trouble.

You are both in my prayers as all my friends here and at home.

Be strong, my Friend, it's xmas, it's the time for miracles.

Hugs,
Pete

Ps maybe the Germans have the edge, did your guys share the Nobel prize last year?
I am renting an apartment here, with lots of Rooms, and a place is reserved just in Case!
I took out a lease longer than my use by, just for fun!

tanstaafl's picture
tanstaafl
Posts: 1006
Joined: Oct 2010

Tony,
Sorry you're in the thick of it again. DC sounds promising.

It might be useful if you could clue everyone in on various Dendritic Cell vax sites that you considered or compared. Any summary about costs, availability present and projected, and technical features. Thanks.

manwithnoname
Posts: 399
Joined: Jun 2012

Hi, will put something together wed. too late here now, I have a few places and costs on the HD.
Shame they don't have a 'sticky' here, it will be lost.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i am getting quotes but have already started.
tans , just read the paper, its done by my doc. they are on the blog.
if you cannot find dr nestlehut on the net in under 1 min i'll be amazed.
just email him your ?

hugs,
Pete

manwithnoname
Posts: 399
Joined: Jun 2012

Ok, there are a few variations on the DC vax.
These vaccines have been used by themselves, with tumour or with oncolytic viruses.

Dr. Chang in NY works with Dr. Marx and Nesslehut from Germany, they do a DC vax combined with NDV, cost is approx. 3000 euros per injection. There is also a Dr. in Cologne doing the same. Im guessing they use strain MTH-68h or PV701.
I think the full treatment would be $30-$50k.

We want to do a 'tumor' version, Prof. Slavin in Israel does this, cost is $35k for full course 12 injections over 24 weeks. He needs tumor frozen in liquid nitrogen. (this is the only place doing this I have found)

Saisei mirai in Japan do a vacccine from a tumor sample not frozen (formalin) cost is $18k and takes up to 2 months.

DC vax is also available in China, cost is $35k (Google it)

This treatment has been tried more for brain tumours, some people have been 'cured' most have not, when it 'works' it gives the immune system a memory, cancer does not come back. Some people have had regression and very long remission but still eventually died.

This works best with minimum disease, tumour sample of around 2 grams is needed for the lysate version, seems if radiation is used after surgery it will negatively affect the outcome as radiation 'changes' the remaining cells.

Pubmed is full of papers on DC vax, another one is about to be FDA approved ( for GBM ) there are clinical trials all the time for these for various cancers, treatment is low toxicity and out patient based, it has been combined with low dose metronomic chemo for better effect.

Depleting T-reg cells with chemo before injection potentiates the treatment, also being tested are adjuvants like imiquimod at the injection site, we will be doing these. Imiquimod also extends the lifespan of DC cells.

"the 3-year survival rate had increased from 3.2% in historical control patients to 37.5% in vaccinated grade IV glioma patients; and the 5-year survival rate had increased from 0% for historical control patients to 18.8% in vaccinated grade IV glioma patients"

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

your research are invaluable and synergistic, you know they took my blood last monday.
just a few tips, have they done the full immune status yet, something about the cd4/cd8 ratio and a few others.

and then the level of leukocytes for leukophersis if they use it in israel.

as it was explained you want your immune system in the optimimum condition when the vaccine is injected.

if you do all the israel stuff and i do all the german ( which includes the usa chang ) then between us we got at least a patients persepctive of a very very dynmic field.

my cost estimate is $4000 euro but that only the beginning, not sure of repeat visits but i think its less.

goodluck and thanks for adding such really valuable info. for the record i had ndv yesterday and i am still feeling great and happy a few crc's have died. hopefully lots.
in 5 more days the first vaccine is injected and more tumours cells can go to hell.

this stuff beats hardcore chemo everyday of the week in my books. how my friends here with a disabled, non existent or non functioning immune system transition to dc therapy is another discussion. but one that would be worth having if this therapy is effacious.

now why they don't give every stage 3 a dc shot for the first few years, instead of 6 blood moths of folfox. gee in my books thats a no brainer. one day soon we will look back at our current treatment protocols and cry.

hugs,
Pete

ps thanks mwnn

manwithnoname
Posts: 399
Joined: Jun 2012

http://www.youtube.com/watch?v=FzrHS5YgbbE

2 parts on Youtube giving a brief description about whats on offer here.
If you google shimon slavin you will see he has a very impressive CV

He also uses NDV and Gc-maf

I watched an hour lecture he gave in front of peers, unfortunately in Hebrew, but this guy knows his stuff.

He also confirmed yesterday we can continue NDV with his vaccine treatment, says it wont interfere and might potentiate it.

Our son is getting back to himself, last op. was hardest for him, I wish I had his strength.

Look up AHCC immune booster, they use it routinely in Japan.

http://www.ahccresearch.com

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i could not get a straight definitive answer out of dr nestlehut yet, so I am interested that slavin uses ndv and gc-maf, really interested, its the point i need to extract an answer out of nestlehut. i am slurping maf314 as i type to activate the macropages in the tonsils.

goto the transcript. to me its gold.
http://forums.phoenixrising.me/index.php?threads/professor-marco-ruggiero-on-maf-314-video.18909/

the best bit is here(11:23) So this is the first trick. The GcMAF that is a protein stimulates directly your macrophages in your mouth, in your throat. Then of course, it goes into the stomach and in the stomach there is the chloride (11:41 can’t quite grasp the word used here), there are the proteases that destroy most of the proteases but even there you have tricks, two tricks. The caseins which are proteins present in the milk, MAF 314 derives from milk and colostrums just like a regular yogurt, you start your preparation with whole milk. And so the caseins protect and ? the MAF 314. Since they are in huge amounts, it is as if they distract the proteolytic enzymes and the digestive enzymes of the stomach and so the digestive enzymes are busy destroying the caseins and they let some GcMAF pass through.

off to get my second shot of ndv and hyperthermia, hopefully dear dr N has sometime to talk to me today, thanks to your kind replies, i have somethings to discuss besides the weather and how sexy his nurses are. I have asked 2 out for dinner and been rejected. I am crushed.

my tktl1 protien just came in this morning, i am on the ketogenic diet as of breakfast, with map. see the details on the site below. i met the doc at the conference who developed this, i would give to any really sick cancer patient, may help give a few extra days.

hugs,
Pete

ps I just got an email from these guys. I might become the australia asian distributor if the products help save my butt. not to make money, just to help save lives. I got enough $

http://www.drreinwald.de/dr-reinwald-vital.html

Lorainne
Posts: 2
Joined: Jan 2012

I was wondering if I could get the "crucial info" on dc vaccines that you mentioned to Pete.  I was also wondering how your son was doing.

manwithnoname
Posts: 399
Joined: Jun 2012

I think was using imiquimod on the injection sites, also trying to deplete T-reg before hand with Cyclophosphamide, with hind sight I would also use Sirolimus after the final injection for at least one week.

Unfortunaley our son is not doing good, although the tumour we targeted with the vax still hasn't grown back.

Laurenrosie1963
Posts: 2
Joined: Nov 2014

Hi. I am start DC and Nvd vaccines in Germany. I reas that you have information. Thanks for sharing. 

Annabelle41415's picture
Annabelle41415
Posts: 4354
Joined: Feb 2009

Anyone know how he is doing?  He did post a lot and then nothing.  I'm thinking he got banned but not sure.

Kim

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Pete, You are always amusing and inspiring. Good luck my friend!
Ron

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

just read your post & i am sending good luck to you! i am amazed at how informed you are about all of this. there is a lot of new info for you, but somehow you stay on top of it. amazing!!! stay warm!
hugs
judy

cinreag
Posts: 154
Joined: Oct 2012

If attitude and passion could win this war you would definately be the victor!!!

I hope it all turns out the way you want.

I believe the body was built to heal itself but somewhere along the line something went drastically wrong.

Best of luck, Cindy

JayhawkDan's picture
JayhawkDan
Posts: 206
Joined: Apr 2012

And frankly, I don't really have a clue what you said, but I admire that you do, and you're leaving no stone unturned in your quest to defeat this sonofab!tch. You succeed on two levels -- entertaining and inspiring, I hope it's all successful! Hugs, Dan

Annabelle41415's picture
Annabelle41415
Posts: 4354
Joined: Feb 2009

Wishing you all the luck during these treatments. Have no clue what it is but it sounds profound. Keep up the great attitude. You still eating tofu?

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

I hate tofu, but still eat it.
Tonight I did weights and yoga tonight, so I needed some protein.
Google xmas goose veganism is for the birds
My diet is evolving, the goose was exceptional.
Hugs,
Pete

annalexandria's picture
annalexandria
Posts: 2294
Joined: Oct 2011

I pretty much have no clue, but no matter what, I wish you the best in your search for a cure. I hope to be able to say "I knew him when...", once you are the famous Patient Zero in the world of cancer treatment! Hugs~Ann Alexandria

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear ann,-alexandria,

if i am 0 you can be 1 and the first 1000 are reserved for csn colorectals.

lots of nice comments, heck why would you want to checkout early with such interesting and caring friends, even if our conversation is a touch morbid and repeatitive.

we should have a no cancer chat day when the only posts are about things in life besides cancer. now that would be a change.

i am so easily over excited about cancer research papers and books, i have a pretty good feeling i am getting the best care i can find and to have mwnn aka tony come on the post with lots of supportitive cool stuff then i have more faith.

imagine we can all do these super effective DC treatments, go into chemo free remission and then we could to this really cool 600km walk in spain that famous. i am sure pepe would be in on it. alas i am dreaming again and soon i will be dreaming for real.

sweet dreams, its late and everyone in germany should be asleep.

hugs,
Pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Thats what happened yesterday, only cost 6500 euro, getting another shot early feb and then monthly until remission of death. if I am blessed to get to need then the injections will go out to bi monthly, them quartlerly etc etc , but with metatstatic you are never free.

yep its alot of dollars, I am teaching the kids myself starting next feb, as we won't have money for a fancy college education, but whats dad worth ? heaps i say, wife agrees.

so the german experiment continues with your favourite aussie volunteer.

send a positive thought or prayer my way, I am lonely and its chilling here ( emotionally and literally ) looking over the precipice. Its along fall, and I am concerned about my direction. I am worried that I maybe heading down rather up. ie hell versus heaven when this current adventure is all over, whenever that is going to be.

I could not get any prognostic estimate from dear doctor, just some make it into remission, so thats still my mission. I will be here for about about a year and yes, thats alot of euro's but possibly still cheaper than chemo shots.

Info and details are here about the vaccine and the science
http://immuntherapie.net/anfahrt.php

we went over the most detailed analysis of my immune system in 5 minutes, i recorded it, its like gold to me. there is so much to helping our immune system to be done, not destroying it with chemo is foremost in my mind. but thats determined by my treatment selection and the opportunity my life insurance payoutt provides. If chemo was my only choice I would embrass it, or tcm or whatever my decision. self directed change is my new mantra.

I really look at me in the vaccine, those little troublessome pete's have got alot of good work to do. if they try has hard as i do, the bigger version of themselves then my cure is assured. I hope and pray they are up to the task. Its my job to help them, so I am on
http://livecelltreatment.com/http:/livecelltreatment.com/thymus-therapy

now depending on the ratios in my immune system, different adjuvanant therapies could be used.

I am quiet proud to be the first colorectal person on the planet to have the vaccine activated with a new peptide as well as newcastle virus disease.

this is an expensive and seriously scientific and experimental approach with no guarantees but it offers the chance of cure thats so much more compelling for me personally than the current offering from conventionl medicine.

I got to take a few risks if I want to stay in this game. the game of life that is.

yesterday was a great day in the journey, those little trained killers are working in me 24 x 7 by 60 days until they die. I wished they could reproduce, but alas I got to get another shot, hence another weeks therapy early feb. maybe this is my xmas present early.

got a pet scan on friday 8am and chemo embolization 1pm, the mri with contrast and the pet will dictate the targets of mets to be selectively poisoned, likely with avastin, irenotecan and mitomycinin. wish me luck, as I wish us all luck in whatever treatment we choose faith and confidence in what we have access to is the best approach.

hugs,
Pete

ps another update from snowy germany.
pps pm me if you are interested in the risky side of colorectal treatments, its lonely in germany. I know the best bars, hotels, massage joints, physios, restaurants and have topped
220km/hour on the autobahn, so I can get around germany fast in my lovelly audi,

PPS http://petertrayhurn.blogspot.de/2012/12/my-life-in-his-hands.html
a picture of my vaccine and one of the newest immune system therapies delta gamma

Lovekitties's picture
Lovekitties
Posts: 2989
Joined: Jan 2010

I am having a bit of difficulty following you and your treatment as you move around Germany.

Could you take a moment and answer the following for me?

I take it you have left the clinic you originally went to in Germany.
1. Did you leave because they could not offer you any further treatment?
2. Did you have any positive results from their treatment as seen on CEA level or
scan results?

I take it you have moved to another clinic in Dunderstaht.
1. How did you determine this was the next place to try?
2. How long do they think it will be to know if new treatment is effective?

I am sure that somewhere in your posts or blog you have given this info, but I tend to get lost with all the medical/scientific stuff. I know you recently wrote that CEA went down dramatically. Which treatment were you on when that occurred?

You mentioned that you will have scans and blood work done at home over your Christmas holiday. Is there any reason to beleive that they are done differently or will have different results from what you have gotten in Germany?

As always wishing you the best.

Marie who loves kitties

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

I take it you have left the clinic you originally went to in Germany.
1. Did you leave because they could not offer you any further treatment?
the clinic was hallwang, they are oncology based as well natural therapies, kind of the one stop shop. they organised most secondary therapies, they organised dendritic cell vaccine in duderstadt and prof vogel chemo embolisation in frankfurt.
2. Did you have any positive results from their treatment as seen on CEA level or
scan results? YES CEA WENT DOWN FROM 1770 to 39 IN 7 weeks, also saw some shrinkage between scans with prof vogel.

I take it you have moved to another clinic in Dunderstaht.
1. How did you determine this was the next place to try? its was mutual, but suggested by dr kopic the oncologist.
2. How long do they think it will be to know if new treatment is effective?
about 2 months to see if dendritic cell therapy is effective, its hard as i am doing another chemo embolisation on friday, with the pet directing the embolisation target. its not possible to isolate one factor, but i know for sure REMOVAB causes a massive CEA spike, so it certainly killed my tumour cells, i also felt like craap for a week after the first shot only 5mcg.

I am sure that somewhere in your posts or blog you have given this info, but I tend to get lost with all the medical/scientific stuff. I know you recently wrote that CEA went down dramatically. Which treatment were you on when that occurred? The spike was caused by removab, the total fall over 7 weeks a combination of removab and 2 chemo embolisations and some very very low dose chemo ( targetting tumour stems cells not the tumour )

You mentioned that you will have scans and blood work done at home over your Christmas holiday. Is there any reason to beleive that they are done differently or will have different results from what you have gotten in Germany?
I am doing the tests at home so i can prove beyond any doubt how accurate and effective the german treatments are. Aussie doctors would say the scans and the test are fake or false. so I will do a round of pet and angio ct end of january ( for free )

I am spending 3000 on the 8am pet so as to see how i am going. The german doctors complain about the quality of us and aussie pets and their reporting.

i am back to duderstadt 3 feb for another 7 days therapy an another vaccine shot. and then off to prof vogel and my 4th chemo embolisation and down to hallwang for a for weeks r and r where i suspect i will get another round of removab. at some point i may be ned in process. thats the goal.

i have plenty of contigencies, but lets not go their yet! i can get the clincial trial based peritonecomy done here as well, but its not worth doing unless i have been stable for 6 months and the liver mets and the lung met are gone. the vaccine targets lung mets, so hopefully it will be gone by friday hopefully or the pet in end of january.

thanks for asking.

hugs,
Pete

Minnesotagirl
Posts: 141
Joined: Sep 2011

Pete and Marie,

I was thinking the same thing Marie...I to get lost in all the information you provide us Pete. I appreciate all the information Pete and your fortitude to make a difference for all of us. I continue to pray for you daily as I stated before.

Wonderful news that your CEA went down. I hope the best...

I wish you could spend time with your family. I can tell you are lonely fighting this battle ~ please remember we are all embracing you with loving thoughts and well wishes during these "new" procedures you are trying. Keep us in the loop and give cancer a kick in the butt!

Pete...I have been reading and researching alot about essential oils. Francenscence (boswalia or something like that)is one of them...have you done anything with that oil?

Blessings to you from Minnesota ~"Minnesotagirl

manwithnoname
Posts: 399
Joined: Jun 2012

Not a Honda but it is from Japan, the missing link to DC therapy?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1389847/pdf/20042592.pdf

http://jem.rupress.org/content/204/11/2641.full.pdf

This has been used for humans with mets. and very good results.

lisa1001
Posts: 1
Joined: Feb 2013

Pete, How are you doing? I'm heading to Duderstadt in 2 weeks and just found your posts. Lisa 

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

how wonderful my first csn friend, you will like nesselhut, stay in the hotel for lions . i love it. i am back around the 3rd march so our dates will overlap.

pm me with your email, i am onto my 3rd vaccine, so far all good.

welcome to the immunotherapy revolution, do you like qigong, massage and sauna. i have a few tricks that may have help the tumour disappear.

hugs,

pete

honkyvet
Posts: 2
Joined: Mar 2013

Hi Pete

How has the last treatment been? Hope you are feeling fine and the results are good!

Have been glossing through your posts about the dendritic cell treatment in dunderstadt, which is possibly on my travel agenda for this summer. It's helpful to learn about your procedures and meeting with Dr. Nesselhut.  My doctor says that it takes about a week to develop the dc vaccine, and then I will need 6 treatments in the first year, ideally 4 close together (but that may not be possible for me as I don't live in Europe). Have you heard of anyone getting this done on private health insurance? I know it's expensive - is it a fair estimate to say $60 K (US) for the year's treatments? Then there's the cost of staying in the hotel too. Is Dunderstadt a place for complementary therapies? 

Looking forward to reading your news!

Christine

janie1
Posts: 753
Joined: Apr 2011

Hi Christine,

If you live in the U.S., some people make an appt. with Dr. Raymond Chang is NYC. He sends some patients to Germany to have blood drawn, etc, and to have a vaccine made. Then Dr. Chang is able to administer the vaccine at his office, therefore people do not have to make the numerous trips to Germany.
Dr. Chang is very busy. Not really sure how many new patients he sees, but thought I would run that by you.
I assume you know that vaccines ( or this one) can only be provided if there is not much tumor load.....don't know the specifics, but may be worth even an email to Dr. Chang to get an idea of what he does.

Keep us posted, Ok?

honkyvet
Posts: 2
Joined: Mar 2013

Hi Lisa

How was Duderstadt and your treatment? Hope it all went well,

Christine

annalexandria's picture
annalexandria
Posts: 2294
Joined: Oct 2011

And keep us posted. We may not all be able to understand your posts, but it's good to hear from you and hear how you're doing! AA

janie1
Posts: 753
Joined: Apr 2011

Thanks Pete. And thanks, Tony, for what you share.
Pete, i had mitomycin put in the Hai pump. It took my cea down about one-third, which was steadily climbing fast. I see that you will be taking that. It knocked down the wbc's too however. But taking neupogen for
that. Would you mind posting if your wbc's go down and do they use neupogen or neulasta in Germany??
I had to increase neupogen which is another worry. I dont want to destroy my immune system to where i wont be able to try other things, or, be eligible for a trial or vaccine.

Thanks, and always the best to you.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

on no drugs for wbcs, just ahcc , psk  and my supps inc off labels.

wbcs a touch down, but i just had removab, feeling great.

lisa, see you overhere if you make it, maybe get a quote hallwang inc vogel if you need it.

i love duderstadt, here for long term, leaving details to god.

hugs,

pete

sdp's picture
sdp
Posts: 169
Joined: Jan 2012

Hi pete,

I am having my pet scans tomorrow. The CEA and ca19.9 have increased to double the numbers while I was on maintenance chemo of erbitux. CEA now is 4.3 , after resection it was 1.6 . Ca19.9 is now 18.7 and after resection it was 8.6 or so.

Had resection last year in august at univ of Regensburg hospital, Germany.it is about an hour from Munich.

If the pet scans show something I am hopping in a plane and going back to Regensburg for further treatment. I hope it is limited to my liver. In that case I hope just an RFA would do the trick. Also, this time I do intend to evaluate further treatments to curtail recurrence and may just adopt one or few of your many treatment plans thay seem to have worked.

Details of my condition and treatment so far are in my profile on this site. I was advised by my oncologist to do the blood test for cancer markers and the pet scan after a month from the last infusion of erbitux. I got the blood test done after two weeks and same showed an increasing trend in both the cancer markers. I discussed that yesterday with the doc and now he is on my case to do the pet scan asap. I am scheduled for the same 8 hours from now and I hope it all works out well. Definitely some activity due to the markers being elevated , but I hope it is limited to the liver and to small spots we can get with the RFA. After that I am motivated to walk a bit on your approach after reading about all that you are doing for yourself. I-m-press(ive)ed.!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

if i were in your shoes, up up and away. suspect your pet is clear, but you still got a met.

see my advice to ted or ren.

but the earlier the better, you know why, today of all days you know the cost.

2vogels and 3 removabs and where in the sauna relaxing. maybe get a quote hallwang if your serious, cometo germany and do the intrcellular malignacy test. why wait to grow another few million cells. nail the ***** now, dont give it achance.

hoping for rfa is just wishful, even then you got high ctcs likely.

long term vaccines with minimal disease the best curative strategy i have found.

consider rgc asap, and start targetted botanicals. read defeat cancer, chapter 3has rgc ccovered. the book explains many alternatives.

if you got the resources do it all now, the longer you delay the poorer your prognosis. to try these therapies over 5 weeks, then you know.

conventional also has great options.

goodluck with whatever you decide. i am living hallwang 2 weeks a month for the next year.

hugs,

pete

 

 

renw's picture
renw
Posts: 282
Joined: Jan 2013

This thread has been here for a while and I was meaning to ask about the title: "coffee in duderstadt". Is that oral or rectal? :)

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its a secret.

i used to own a coffee shop, Dan "the roaster roaster" gives me bags or organic beans.

how lucky for me. i love your enquiring mind, its a very good prognostic indictor. your path is looking good, its your path.

we are like the knights of the round table looking for the holy grail.

one of us is arthur, the other can be merlin.

off to the gym to do sauna and pushups. i cannot wait.

hugs,

pete

 

Laurenrosie1963
Posts: 2
Joined: Nov 2014

I just started this treatment in Duderstadt. Any advice. 

Annabelle41415's picture
Annabelle41415
Posts: 4354
Joined: Feb 2009

Anyone know how he is doing.  My other post got pushed up above somehow.  Think he got banned but not sure.

Kim

Lovekitties's picture
Lovekitties
Posts: 2989
Joined: Jan 2010

Pete did get banned from CSN.

He maintains a blog elsewhere.

He has been to Germany several times, and spent a small fortune, but has had some success at keeping himself going.  It seems that while he is in Germany he has good results from his own brand of treatments, but as soon as he returns to Australia his number start climbing.  He has also used one or more mainstream chemos since last on CSN.

As always, wish him well.

Marie who loves kitties

Trubrit's picture
Trubrit
Posts: 1615
Joined: Jan 2013

Ah look, there is Ren.  

Sad but happy to see his face pop up. 

Some old names here. Steved. Judy. 

Sue - Trubrit

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