CSN Login
Members Online: 23

Minimal rise in CA 125

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

Had my doctor's appointment this week. It was 5 weeks since my last marker was done. It was 357 last time and 360 this time. I cold not believe it was such a small increase. My lab was not back yet when I saw the doctor. So he ordered a CAT scan to be done the end of January which would be three months from the last one, and repeat lab.

When I got the results the next day, I called t see if I really needed to have the CAT scan. I do not need one at that time. I will have a repeat CA 125 the end of Jan.

My daughter bought me bio cucurmin several years ago. Either I was on chemo, or nauseated, so I never took it. I tried it and it made me more nauseated. Well I started it when we came to Florida. I don't know if is one of the reasons for the small increase in theCA 125. I know many have talked about the advantage of tumeric. I'll see if the results are as good the next time.

I will continue the Aromasin and blood thinner shots. I also have several cups of green tea most days. Don't know what's woking, but I will continue doing what I am doing.

The doctor told me I will need t have chemo again, which I new. I asked him if he would recommend the Cisplatin/Taxol again. He said probably. Or we could do just Cisplatin alone, or Taxol alone, or try Doxil. I asked if Doxil was available now and approved for uterine cancer. He said yes it is available and got approved recently by NCCN guidelines. He said we could try Doxil and keep the cisplatin/taxol in the back pocket. Or do the cisplatin/taxol and keep Doxil in the back pocket.

I told him I would rather do the Cisplatin/taxol because I know it works. i am afraid of the side effects of Doxil. Fear of the unknown, not nowing what side effects I will have.

Hope you are all having a good day. In peace and caring.

ConnieSW's picture
ConnieSW
Posts: 539
Joined: Jun 2012

You are such a fighter, Ro, and a big inspiration. Keep it up.

Double Whammy's picture
Double Whammy
Posts: 2267
Joined: Jun 2010

I have no idea how "they" read a CA-125, but I'm going to interpret this a no rise at all. You've done so well keeping this monster in lock up. I hope you can stay off the ugly chemo for a long, long time because I know how you dread it.

Best,
Suzanne

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

Sounds promising that things are stable. Thinking of you and keeping you in my prayers as well as all the ladies here.

Sisters three's picture
Sisters three
Posts: 149
Joined: Nov 2012

I just got back from a Whole Foods grocery store. I had read about the turmeric and then after remembering your post picked up a bottle today.
Also purchased more juicing vegetables. I'm a little worried to wait another 30 days till the Oncologist sees me again we really don't know how far it has spread and even though I haven't been dieting I have lost some weight. Figured I better start doing some stuff on my own.

HellieC
Posts: 428
Joined: Nov 2010

That's so good that your CA125 has hardly changed, Ro. Whatever you are doing in terms of diet and supplements (and your hormone treatment) must be working to keep the beast in check. I SO hope that you can keep the chemo at arms length for a while longer and enjoy the continued break from it. The longer the better. Fingers crossed that the CA125 doesn't change much between now and the next test in January.
Kindest wishes
Helen

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Wonderful. I am very interested in you thoughts on what is helping. What type of curcumin are you taking - tablets?

I hear you about fear of Doxil. I was in tears with fear before getting my first dose. But I had none of side effects except the fatigue which is quite depressing at times. But do what you think is best for you.

Hang in there and enjoy your holidays. Many hugs, Mary Ann

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

Mary Ann I am taking Life Extension Super Bio-Curcumin 400 mg. once a day. I tried them before but they made my nausea worse. I tried tumeric spice, but could not tolerate that either. I have to make sure I take the pill with food. I do not know what is helping. The only change is adding the Curcumin and Co Q 10 since the last test. My primary care doctor suggested the Co Q 10 to help with my joint pain and fatigue.

I hope your fatigue is not as bad this time, and the hand/ foot syndrome has stayed away.

Hope everyone continues to do well. In peace and caring.

beila
Posts: 97
Joined: Sep 2012

I have the same experience with Doxil...only real side effect is fatigue
But mine is probably worse because I already had post chemo fatigue from my Taxol/Carbo when I started the Doxil, so it was fatigue on top of already existing fatigue.
Do you think the Co Q 10 is helping with your fatigue? What does your oncologist think of it?

By the way your ca 125 is not a minimal rise, it is just unchanged

Are you in Florida now?
Enjoy,

Beila

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

hi Ro! soooo glad the ca125 only has a slight hic-cup! I took the Curcumin, same brand. The intergrative dr. took me off of it, but I am wanting to go back to it. Can you tell me if this had the Biopene in it already, if you took it seperatly, or not at all? Thanks, debrajo

HellieC
Posts: 428
Joined: Nov 2010

I found this information about an in vivo study, which indicated that there is a synergy between curcumin and letrozole (an aromatase inhibitor), which might be of interest. I have a feeling that the hormone therapy that you are taking is one of the other aromatase inhibitors, rather than letrozole, but perhaps there is synergy with whatever AI you take? Let's hope so!
http://www.ncbi.nlm.nih.gov/pubmed/19823063
Kindest wishes
Helen

laura25's picture
laura25
Posts: 157
Joined: Mar 2011

Since the summer I have been using tumeric and black pepper in my organic eggs... the infection that was in my lungs was gone at the 6 week follow up.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Important to remember that curcurmin needs black pepper to work. the pepper makes it 2000 times more effective so if it is not already in the capsule remember to add to your food.

Ro, I am also taking CoQ10 - recommended to prevent heart damage from doxil. But since I started taking it I have also heard from both Dr. Oz and Dr. Weil how important this supplement is. Take it with some fatty foods for best absorption.

I'm still very fatigued - have to push myself daily. I will get scan in Jan.

So happy for your good news. Enjoy the holidays, Hugs, Mary Ann

beila
Posts: 97
Joined: Sep 2012

Mary Ann

Please let me know if CoQ10 is helping you with your fatigue.
Mine is severe...today is my 10th day in bed most of the day

I am afraid of taking any supplements due to more possible GI side effects.
But if you notice that it actually helps you, I will take it (?Health food store??)

Thanks,
Sheila

In addition to Doxil, I am also on Avastin, but no side effects except initial diarrhea
I started my Doxil (now day 13 post 2nd dose) while I still had post chemo fatigue from my initial Carbo/Taxol, which I tolerated well (except for mild-mod fatigue), but which didnt work

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Any of us who've been on these message boards for a while remember Claudia touting the importance of this mixture. They all work together as have higher absorption rate as Mary Ann posted. I have a mixture of this most every evening in my dinner salad. Many do take it in pill form, but I've not gone that route as trying to rid of many of my supplements and get nutrients from more food.

I as well have been taking CoQ10 for the past 3 years. Recommended by my therapist/nutritionist and as I see more postings on the positives of this nutrient, happy I started and have continued.

Ro, happy for your news...keep the faith as you'll keep doing better every day. How's Florida, thinking that's where you hang out in the winter months???

Take care,
Jan

plantlady2012
Posts: 49
Joined: Dec 2012

You mentioned that you make a salad dressing with turmeric. Can you tell me the recipe, please? I am trying to incorporate more turmeric into my diet!

Thanks!

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Yes I basically have the mix of turmeric (organic) spice, extra virgin olive oil, black pepper. Just eye it so can't really give you specifics of measurements. Add it to my cabbage salad with lots of raw veggies such as broccoli, carrots, onions, and avocado/artichoke slices. Yummie! Takes a while to get used to the harsh taste of the dressing, but I've been at it for a few years, so not too bad.

As well, put turmeric mix in soups and sauteed veggies.

My husband tells people I could eat bark off a tree...hee hee!

Enjoy,
Jan

nempark
Posts: 580
Joined: Apr 2010

Ro continue with what ever you are doing since you are stable at this time. I hope it gets even better. love always and thank you for your comforting words.

txtrisha55's picture
txtrisha55
Posts: 423
Joined: Apr 2011

Keep up what you are doing. I do take the supplement form of cucurmin everyday and I eat a ton of black pepper and only use Olive oil. However it is not taken all at the same time. I guess I need to work on that. I am happy to hear of such a small increase in your numbers. My dr told me that signle digit rise is nothing and only when it goes up by double digits will she worry. The CA125 is not a real good marker for me anyway as it has never been high and continues to go down even after a year on no chemo. Enjoy your winter in Florida. Prayers for you. trish

Shell bug's picture
Shell bug
Posts: 68
Joined: Nov 2011

Hi Ro,

I am so happy the increase was so minimal. That is a huge positive.

I just want to tell you how much I appreciate you and your fight with this thing. You just keep on livin' as best you can and that sets such a wonderful example. You have helped me through this ordeal.

I think and pray for you every day and hope that you continue to get good news. I hope you are in Florida. I am completely envious. My sister lives in FL and I couldn't be farther away and still be in the continental US. Some day I hope we can have a place in FL too, is it crazy to have those dreams that are so far away?

Anyway, I hope you have a great Holiday Season and you have at least one person in the Great Northwest pulling for you!

Take care,
Rachelle

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

I continue to try to keep on "living large". I remeber Linda P saying how important that was. We just returned from a 7 day cruise to the Western Caribbean. We went to Honduras, Belize, Costa Maya and Cozmel. We saw Maya Ruins in Belize and Costa Maya. They were very impressive. What a culture that must have been. We had great weather as it did not rain and it was cloudy, so it was not so extremely hot. The humidity was 100 per cent everyday, so it did not take any exertion to work up a sweat.

We have returned to Florida and are glad to be back home. The sun is shining and the humidity is not so high.

When I started my cucurmin, I also started Vit D3 daily. When I was reviewing the Anti Cancer book, I read that Vit D3 can slow the progression of cancer. So maybe the combination of the cucurmin, vit D and Aromasin are slowing my recurrence. I guess the end of January I will see if the progression is still slow.

I continue to feel good. My hair growth is so much slower than all the other times. My last chemo was the end of May and my hair is still less than one inch long. My hair always grew so fast before. I would go for haircuts about every 4 weeks before I got cancer. I had natural curl before, but it is pretty straight now.

You all remain in my thughts and prayers. In peace and caring.

Double Whammy's picture
Double Whammy
Posts: 2267
Joined: Jun 2010

Hi Ro -
I think the slow hair growth is due to the Aromisin - that is if it acts anything like anasterozole. My onc told me that many of her patients on anasterozole comment on how seldom they need to get haircuts.

Your cruise sounds wonderful. Continue to live large.

Suzanne

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

I was wondering if the Aromasin had a nothing to do with the slow hair growth. I was going to ask the doctor on my next visit. At least I have enough to cover my head. It does not take long to wash and dry it.

Hope you are doing well. In peace and caring.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network