Nov 30, 2012 - 10:32 am
Wow, this has just been a whirlwind for me. I was sent in early (age 48) for a colonoscopy after a nasty bout of diverticulitis. I was so surprised to get a call back with a cancer diagnosis. Right now I feel like the hardest part is all about waiting. I got the call on November 17th after having the colonoscopy two weeks earlier. I was referred to Huntsman Cancer Institute and will be working with a very renowned surgeon there. Unfortunately I won't even get to consult with him until Dec. 6th of next week. All anyone has been able to tell me thus far is that it looks small and they are optimistic. Having been thru melanoma before I am familiar with all of these panic feelings, but it is still very hard to sit around and wait. They were originally concerned that this started as bladder cancer so I was sent in for ct scans as well as a cystoscopy to rule that out. Thank God no signs of any cancer there. I think this all stemmed from blood that had showed up in urine test. At least they are being thorough. I have no idea what stage I am at and was wondering how they test for that? With melanoma is was measured as to how deep the tumor was set, but I'm confused as to how that is measured in this circumstance. Does a PT scan tell the docs that?
The urologist from Huntsman was able to shed a little light on things for me. I was so freaked out about the idea of surgery in that area after reading a few stories. He told me that my doctor is not surgery inclined and radiation and chemo are options. I wasn't sure how I felt about that. But with all your success stories I'm feeling a lot better. This sight was so helpful. I was up at 2:00am and couldn't sleep and decided I'd go down and try and find a support site. I read Gigi's story and wow. I went to sleep and woke up feeling so much more confident.
The other part of this anal cancer thing is the stigma attached. At first I was calling it colon cancer out of embarrassment. I've gotten better at being truthful as the first time I confided in a friend from work her respone was "well at least it's not anal cancer, I have a friend..." and she went on to tell a horror story. Honesty is the best policy I've found when sharing my predicament. This site is incredible.