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As the winter rain sweeps in and falls CEA count rises

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

Our big rain storm is due this morning, the darkened clouds, the raindrops reminding me of tears from the heavens as the Gods weep in sorrow for us and our sometime misfortunes.
Unfortunately I arose at 4:00 AM this morning to find an email waiting for me (I inquire each time via email of my CEA count)while 3 weeks ago the email showed a 5 point drop and now a 6 point rise.
I shall be getting another CEA count done 3 days before my regular chemo appt., to see if I now need to change my chemo regime.
I am a bit down with this disappointing news. But we have predicted sunshine in about 4 or 5 more days and I'm sure that will cheer me up some.
Winter Marie

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Good morning! I have been told repeatedly not to pay too much attention to CEA levels until a trend shows. I will say a prayer for you that the next CEA drops again. I'm at a point with mine that I don't really want to know so I can just focus on fighting instead of letting these test mess with my head.

Here's to looking forward to the sunshine in a few days!

Vicki

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

And look forward to the sunshine. Thanks Vicki.
Winter Marie

Lovekitties's picture
Lovekitties
Posts: 2989
Joined: Jan 2010

I am sorry that the results are not better. Perhaps the third time will be the charm and there will be a more significant drop.

Bad weather can have a significant impact on how we feel physically and emotionally. I hope that when the sun comes out again, it brings you hope and better news.

As a vetran of this war, you know that things can change in a positive way even at the darkest moments.

My prayers for you and much sunshine, real and physical, in your near future.

Hugs,

Marie who loves kitties

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

Worried about my math test, so got up at 4:00 AM to study and found the email from my oncologist (he emailed back at 12:35 AM, the hours that Doctor must work, last time, he emailed good news back at 12:00 AM, he works some crazy hours).
So in the rain, middle of night, it was a depressing moment. I'll overcome it eventually.
Thanks for the hugs,
Winter Marie

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

thinks the chemo isn't working, and the way the little pains came back the past few days (they disappeared after first chemo)I've been thinking so before this last CEA test.
I've never had a rise of CEA while on chemo, only drops. The CEA has always been a factor in my cancer as being very reliable, tumors shrink, CEA goes down (they have never risen before on chemo, ever)tumors grow, CEA goes up
Winter Marie

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Sometimes when we wake up very early it's because we need to be alone, and in your case this morning, to let your newest news settle in. Sounds like you know your body pretty well and how your CEA operates.
However, one thing we've all learned on this crazy journey is how much we don't know.
Try not to let it spook you WM. You are STRONG. You've come this far.
Take it easy today, perhaps have a good cry. Rage against the machine!
Here's to a brighter tomorrow, literally and figuratively.
Hugs,
TC

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

I'm sure the brighter tomorrow is around the corner, I'll get out of this depressing funk soon I'm sure, after all I've got all you encouraging me after all.
Thank you,
Winter Marie

Sundanceh's picture
Sundanceh
Posts: 4312
Joined: Jun 2009

I'm supposed to be in hiding:)

But, you brought me back out...and Vicki too:)

As Michael Corelone said in Godfather III...
"Just when I thought I was out... they pull me back in."

:)

You know the drill, honey, let's get some more info:)

I'm sorry you are feeling so down, Winter...

Your thoughts remind me of two of my most favorite expressions in the whole world - and it's especially true with cancer...

"Sometimes the sunshine we are waiting for - will turn to rain..."

"But from the ashes - we can build another day..."

I'll leave you now with those thoughts...and a big hug from your friend:)

Stand tall, WM...The Sundance Army needs you:)

Love/Craig

wolfen's picture
wolfen
Posts: 1198
Joined: Apr 2009

You won't have to wait for that sunshine very long. I'm bottling some up and sending it from Arizona right away. Hoping your doc will figure this out and a new plan of action will follow soon. With that and your attitude, you'll kick a$$ again.

Computer mouse acting weird. Think I'll give it to the cat and get a new one. Hope this reply doesn't get garbled.

Luv Ya,

Wolfen

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

Thank you for that sunshine being sent, I could use it right about now. Thank you for being therefor me.
Winter Marie

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

As always, making me stand up and start moving forward again.
Thank you for always being there my friend, even during your rough days.
Love,
Winter Marie

YoVita's picture
YoVita
Posts: 562
Joined: Mar 2010

Winter Marie - you need some sunshine. I don't have any to send your way (Chicago) but hope you get some soon. And I hope your doctors find a new path for you if necessary.

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

The sun will shine again, I usually enjoy the stormy rainy weather, but today, it brought no comfort. I'll get over it soon I'm sure, when the sun shines again.
Winter Marie

Semira's picture
Semira
Posts: 299
Joined: Mar 2012

... dark November is not the right month for such news.

All fingers crossed here in Germany!!!
And a big hug to you

Petra

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

I take all the crossed fingers from across all the countries!!! I appreciate them from Germany!!
Hugs back,
Winter Marie

Annabelle41415's picture
Annabelle41415
Posts: 4354
Joined: Feb 2009

Lab results can vary so and at least it is a drop and not a gain. Most labs during treatment are all off because of what you are going through. Hoping that the next test you get better numbers.

Kim

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

It's a gain not a drop.had 5 down last time, up 6 this time, so at highest number of 17.1 now this year. Started out at 2.1 I think this year.
Winter Marie

ron50's picture
ron50
Posts: 1309
Joined: Nov 2001

Ron((((())))))

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

Thank you for the hugs, I needed them, and truly appreciate them.
Winter Marie

Annabelle41415's picture
Annabelle41415
Posts: 4354
Joined: Feb 2009

Misread it. Hoping for better news next time.

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear winter,

they predict snow here tomorrow, what a crazy world, snow on one side and sunshine on the other. i get my cea results in a fews days, and I have tried to fill my mind with the beauty of the black forest. i hope you can find something peaceful to fill you mind with. on the whole I am convinced these tests punch above their weight in terms of our quality of life. that said i hope you results are better than what you expect.

hugs,
Pete

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

We journey together all of us, a strange journey we are on, is it not?
Hugs back,
Winter Marie

Trapbear's picture
Trapbear
Posts: 97
Joined: Sep 2009

Winter,
Sorry you got this news. When is your next scan? Sometimes CEA can increase as cancer cells die, so don't make too much of this. Stormy here all day too, I love the rain, but am sure I will be missing the sun if we really do get 5 inches of rain by Sunday night. Sending you big hugs. Stay dry....
Bill

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

about a post you had wrote,you know the one about a hero.so dont be so down(easier said than done)just remember we are all hereos and that includes you too.get that crying thing done and over so you can fight,fight,fight.we are here for you....Godbless....johnnybegood

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

Done crying, hurt too much. Thank you for the reminder to stand tall and fight the fight, you are one of the best examples of that, how can I fail you?
Thank you JBG
And God Bless you back,
Winter Marie

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

If the CEA had gone down, my next scan would have been in 3 weeks, but that will wait until we see the new CEA count and if it's still the same or going up, on to new chemo and scans after hopefully the CEA goes down quite a bit. Just had 3 scans in prep for the surgery that didn't happen in October, a CT, then a PET and then a CT to double check. So a little scanned out right now.
Thank you for the hugs,
Staying dry,
Love,
Winter Marie

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

sorry you are down & i too am sending you some sunshine. from indiana. with so many people sending sunshine you better put sun screen on! i hope the rise is nothing other than cancer cells that have died & messed up the cea. keep your chin up! praying for you
hugs
judy

herdizziness's picture
herdizziness
Posts: 3478
Joined: Apr 2010

Thank you for the additional sunshine, I needed it all I could get today, and appreciated all that was sent.
hugs,
Winter Marie

mukamom's picture
mukamom
Posts: 371
Joined: Oct 2010

Cyber hugs and prayers for you. Hoping that your kick@ss returns soon. :-}

Angela

smokeyjoe
Posts: 1428
Joined: Feb 2011

Ahhh, Winter...sorry you're feeling so down. I had to re-read your original post a couple of times I read it as being down 5 then 6.....then saw you clarified it had gone up. Do you have any idea what chemo. oncologist is planning on switching to if need be? I finally got on avastin...supposed to have infusion yesterday, had to be cancelled...I have to get in to dentist, face swollen, obvious infectin from a tooth...oncologist put me on penicillin....I'm amazed how quick the penicillin has kicked this down..I didn't have to pop tylenol for the pain yet overnight or yet this morning. I have to get this resolved before chemo. again. Oncologist wants to see me next week to "make sure I'm okay".....good thing my white counts don't go down with chemo.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I hope you got your sunshine today. I send you a hug.

annalexandria's picture
annalexandria
Posts: 2296
Joined: Oct 2011

I hope you get some sun soon and a lift in spirits. You seem like a tough lady, but you've really been through enough already. Keep us posted on how the next test goes...keeping my fingers crossed for you that this one was perhaps just a glitch. Hugs~Ann Alexandria

Cathleen Mary
Posts: 623
Joined: May 2011

Hi Winter,
I'm so sorry you are going thru this. CEA is a good marker for me, too, so I understand your anxiety, Hang in. You are one strong gal and even stronger with all of us behind you. We are in this for the long haul....blessings and wishes for better news soon. Sunshine is just around the corner.

Carhleen Mary

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

Wish the news was better. but 6 point raise is really not that horrible... it is less than 10..
Your sun will shine...
Remember the power of positive thought

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Whatever the cea does, I know you will handle it.
Praying it's a fall.
Hugs,
Pete

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