CSN Login
Members Online: 14

surgery soon

katenorwood
Posts: 1853
Joined: May 2012

What a day !
3 hr. wait for thorasic guy...several people left due to schedual being pushed back so far. We of coarse stayed as it is 165 mile ride to get to them. I have a 3 cm. spot in my right lung lower lobe. They will be doing VATS to remove it, won't know of coarse if it is mets or another primary til after path is done. If ths is ACC...trials may be an option. They are going to biopsy the mass in the mastoid area H/N the same day. I did not want to go yesterday, the anxiety level was massive. But now I have some idea of a plan...probable 4 day stay in hospital. Depends on how lung heals...needs to not be leaking before they release me. Will post when I know date and time. Katie

phrannie51's picture
phrannie51
Posts: 3781
Joined: Mar 2012

very high tech, but it appears that recovery time is shortened a great deal. I also had to look up the mastoid, as I didn't have a clue where that is...so they'll do that at the same time?

No doubt your anxiety level was huge, Katie...just know we're virtually holding your hand as you go thru this. Saying prayers and sending positive thoughts...

p

katenorwood
Posts: 1853
Joined: May 2012

Phrannie,
Yeah VATS is probably the best way to go...scope procedure. Was told pretty painful...I just looked at the guy and said really. As I'm sitting there with a scar from ear to ear. O.K. I'm being a bit sarcastic...sorry ! Yeah the mastoid is the bone behind your ear...there is a enlarged lymph node tight against it, and a mass below it. You're pretty cool to take the time to look these things up. Thank you P ! Katie

phrannie51's picture
phrannie51
Posts: 3781
Joined: Mar 2012

that they'll find it's something else, that they'll take a little wedgie out and give you the "good to go" after your recovery. I imagine anytime they mess with your ribs there is pain, but gawd it's got to be better than laying the whole open like they used to.

Is that node pressing against the mastoid painful?

p

katenorwood
Posts: 1853
Joined: May 2012

P,
This jaw and neck issue I thought was maybe my new normal....guessing not. Still have numbness and severe pain in resect area. My ear also feels numb and pain comes and goes. I don't think this is related to the mastoid itself...just butted up to hopefully ! Katie

longtermsurvivor's picture
longtermsurvivor
Posts: 1819
Joined: Mar 2010

and enjoy whatever piece of every day you are able. VATS will be a lot better than an open procedure for recovery time. Best wishes.

Pat

katenorwood
Posts: 1853
Joined: May 2012

Thanks Pat !
I have had several family members that have had this procedure...cousins and aunt. They came out of it really good. Katie

Crazymom's picture
Crazymom
Posts: 300
Joined: Nov 2011

sending prayers....you are a sweetheart and I am praying for you. Ann

katenorwood
Posts: 1853
Joined: May 2012

Thank you Ann,
My surgery will be pretty simple. And will give me conclusive answers on where to go from here. Prayers I truely believe in...thank you my friend ! Katie

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

boo--long ride and long wait is an anxiety multiplier.
but you are a strong person with a healthy attitude, and that gives you an edge over the beast. we hope for good news from you soon.
bless you,
douglas

katenorwood
Posts: 1853
Joined: May 2012

Douglas,
I've been using the term beast more than cancer when folks ask me about my condition. If I think of it this way, I want it gone even more. It doesn't get to stay in me. Thank you for your kind words. Katie

yensid683
Posts: 236
Joined: Apr 2012

Is no where near as nasty as a complete throacotomy.

I had VATS biopsy in June of 2011 for an issue totally unrelated to my SCC BOT and I was able to be back at work after just two weeks.

3 one inch incisions, one in my upper back and two along the side/rib line were all that I had, the two side incisions had the drains in them and in retrospect, they were the most uncomfortable part of the entire experience

I had 4 wedge resections on the lower right lobe and the first day was not too bad, what with the residual anesthesia and the morphine, but the second day was a bit more challenging as the chest tubes were a bit painful, despite the pain meds. They pried my butt out of bed and had me walking around, my chest muscles would cramp and boy that was no fun.

I was in the hospital for just two nights, surgery was Friday and they removed the chest tubes on Sunday and I was discharged later the same day.

You should do fine and of course here's hoping that pathology comes back with good news.

Peter

PS, selective neck dissection 6 weeks ago, so I know just how you feel.

katenorwood
Posts: 1853
Joined: May 2012

Peter,
This is how the surgeon explained it to the tee. He said mine will be simple as they are only taking the one spot in the lower lung....tube removal will depend on how long that air leaks. I have 37% lung function right now, and he said this could take a bit longer due to this. We'll see ! I've been hearing from alot of folks who have had this procedure with very good results. How are you doing now after your surgery on the neck. Nothing like the tubes hanging from both sides there either. (mine were only in for 3 days) Thanks again Peter ! Katie

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

You know I'm following your progress. Actually, I need you to pull thru almost as much as you do. I think this board is due for a few more success stories. What do you think? Rick.

denistd's picture
denistd
Posts: 509
Joined: Apr 2009

I had a vats procedure just 3 weeks ago. I was not in pain after and would have left the hospital if it were not for A-Fib. Doctor said all was okay. I only had two incisions and did not need any pain meds. Denis

luvofmylif
Posts: 344
Joined: Sep 2012

Well at least you have the plan of attack. Sorry you have to go through...it really sucks, pardon the language. Please keep us posted. Wishing, hoping and praying for nothing but the best for you

Joan

katenorwood
Posts: 1853
Joined: May 2012

Joan,
Plan of attack sounds so positive ! And sucks is a good description of this creature lurking in all of our worlds. Prayers are very welcomed and sent back to you ! Thank you ! Katie

katenorwood
Posts: 1853
Joined: May 2012

Denis,
I was hoping to hear from you. So things went really good with the vats for you too ! All I hear is great stories with this procedure ! Is that A-Fib controlled ? My husband had a procedure to control his 7 yrs ago. Their gonna use 3 incissions on me...and only one hr. under so sounds positive ! Good to hear from you ! Please keep in touch ! Katie

katenorwood
Posts: 1853
Joined: May 2012

Rick,
It's so weird but the calm has set in now. Well at least for today ! You are sooo right on this board with the success stories. I pray for David and think to myself....old woman this is nothing...you got it ! All the hero's and warriors on board here gives me inspiration and the courage to kick the c as far from me as I can ! I've been keeping tabs on you also...and I think we're both gonna be fine ! Katie

CivilMatt's picture
CivilMatt
Posts: 3010
Joined: May 2012

Hi Katie,

Well it sounds like a darn good plan to fix you up. I hope all goes smoothly and they find the results you are hoping for.

Best always,

Matt

katenorwood
Posts: 1853
Joined: May 2012

Matt,
You have been such an uplifting person through all of my trip. Goes for everyone of coarse. I'm going in swinging and will continue to send my hopes and well wishes to everyone on board with us ! Katie

katenorwood
Posts: 1853
Joined: May 2012

Hey all !
I tried to post under each one of yours but....didn't work. I will be getting the confirmation call on the date on the 11th. It's a big hospital..and the doctor is opened for that day...but they need to have an OR opened and of coarse a bed. So now I can bake some cookies for Christmas for the grandkids and maybe decorate a bit ! Sounds good to me ! Thank you all ! What a group of people....you're all simply amazing ! Katie

luv4lacrosse's picture
luv4lacrosse
Posts: 1398
Joined: Jul 2010

Katie, thinking of you today, and praying for a good outcome on the 18th.

All the best!!

Mike

katenorwood
Posts: 1853
Joined: May 2012

Mike,
I think of you often, and am praying that you're doing well. Thank you for the prayers ! Katie

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

I just wanted you to know you are in my thoughts and prayers for easy procedures, fast recovery, and an excellent future...

John

ditto1
Posts: 634
Joined: Mar 2012

always you will be in our pryers and you are one strong gal so Im sure you will do well. Your an inspiration to all of us.

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

Yes, as always! Strongly praying and thinking of you! Let it all be ok! You're an amazing person, so I still believe that good things happen to good people.

katenorwood
Posts: 1853
Joined: May 2012

Vanessa,
I feel like if I drove up the road for a visit you'd be on my list. We live many miles apart and yet you've become a great resource of comfort and support. You my friend have been awesome and I thank you from the heart ! Tell your parents and family hello for me ! I hope all is doing well ! Katie

katenorwood
Posts: 1853
Joined: May 2012

ditto1,
But not at your post ! I thank you so much. If anyone you have been such an inspiration on courage and determination for me ! I'm giggling because every time I try to post under someone's post it gets thrown where I don't want it. Oh well, kinda like every day...things go where we don't want them to. I'll just keep smiling and pushing through ! Best sent to you and that wonderful wife of yours ! Katie

katenorwood
Posts: 1853
Joined: May 2012

John,
I know our dx's are different...but saying this tons of your posts have brought me so many smiles. This isn't an easy adventure for anyone...no matter the dx or trip. But I want you to know you have made mine and others easier because of your excellant advice on living. Thanks again John ! Katie

Grandmax4's picture
Grandmax4
Posts: 585
Joined: Dec 2011

with you in spirit and the printed word..glad you have a little time to be with family before Christmas..New Year will be better!

katenorwood
Posts: 1853
Joined: May 2012

Grandmax4,
I am so looking forward to Sunday...we will be on an adventure to the local bowling alley with our 3 grown children and 9 grandbabies. We will be all together and lots of laughter and holiday fun ! Shopping right now for presents is not on my mind...but family most defineately is ! So this is our Christmas celebration. Here's wishing for a better next yr. for us all ! Katie

lts's picture
lts
Posts: 75
Joined: Nov 2012

I am sorry what has happened. Sounds like you found a good doc to help you through. Will keep in my thoughts.

katenorwood
Posts: 1853
Joined: May 2012

I want you to remember to stay positive through your journey...I just read your other post and jumped for joy ! Not everyone with ADCC has the trip I'm on. We are a rare breed, but as more and more is talked about this...and the more that the doctors educate themselves on this dx....the better treatments will evolve. I think early dx is the main stay...and getting clean margins and no perineural spread or mets. I will contine to stay on board here because of this ! Continued success...and remember yours is the BEST CASE SCENERIO ! I am so happy for you....and we have another Meagan that is in NED with this same dx ! Katie

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network