Nov 23, 2012 - 8:21 pm
OK the wait to see the hematology oncologist on Monday is killing me. We found out Tuesday there is definitely something wrong, but with the holidays and the clinic being closed Thursday and Friday we had an appointment scheduled for Tuesday. Last night we received another call and they changed our appointment to Monday morning and have added a second appointment at noon with a hematology nurse practioner. I am hating the wait not knowing exactly what the plan is. We know it is either Multiple Myeloma or Plasma Cell Leukemia, but other than that I am an extreme newbie. David has not felt well the last couple of days and his skin color has been horrible. I have been watching a low grade fever, but so far it hasn't reached the 100.4 mark that they told us to be concerned about. David's neck looks good so far. He finished week three of radiation. He is having a lot a mucous and the thrush is really bad right now. I feel like I am in the twilight zone.